The HHT Foundation International is the only organization that advocates, educates, and supports individuals and their families about Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome.

 

HHT is an inherited disease that affects over 1 million people worldwide.  It is caused by defective blood vessels in the brain, lungs, liver, nose, skin, and intestines, and typically begins with nosebleeds during childhood. HHT is highly treatable but can result in serious health problems if not promptly diagnosed and treated.

 

Archived emails may include, tri-annual newsletters (Direct Connection), monthly news bulletins, legislative call to action, new treatment center announcements, conferences, and other pertinent information regarding this disorder.

 

To return to the HHT Foundation website, please click here.