| Greetings!
We are thrilled to present the latest issue of Direct Connection from the HHT Foundation. In this issue, you will read about the exciting new research in HHT, as well as a complete summary of the 9th HHT Scientific Meeting held this past May in Antalya, Turkey. In addition, readers can find useful information on managing their HHT. |
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HHT Foundation Awards Research Grant for 2011
By Nicole Schaefer
Director of Education & Research
The HHT Foundation is pleased to announce that Beth Roman, Ph.D. from the University of Pittsburgh has been awarded a $45,000 grant for her research entitled "In Vivo Cell Biology Approach to Defining the Natural History of HHT Associated AVMs". Read how zebrafish can provide insight into the cellular behaviors that lead to AVMs. A summary of Dr. Roman's research is explained in her own words.
READ the FULL STORY, page 1 of the NEWSLETTER |
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Liver Vascular Malformations in HHT & Recommendations for
Management and Treatment
By Guadalupe Garcia-Tsao, M.D.
and Lawrence Young, M.D.
Yale University School of Medicine
Liver vascular malformation (VMs) in the liver are common in HHT. However, they cause symptoms in only a minority of patients later in adult life. The liver receives blood from two blood vessels, the hepatic artery and the portal vein, and blood exits the liver through the hepatic vein. VMs result in 3 types of abnormal blood flow patterns (short circuits or :shunts"); from hepatic artery to hepatic vein, from portal vein to hepatic ven and from hepatic artery to portal vein. The most common is hepatic artery to hepatic vein shunt.
What are the symptoms of liver VMs?
To read the full story, click here and go to pg. 7. |
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9th HHT Scientific Conference
Antalya, Turkey
By Luisa Maria Botella, Ph.D.
HHT Global Research and Medical Advisory Board
Centro Investigaciones Biologicas, CSIC (Spain)
The 9th HHT Scientific Conference was held in Kemer, Antalya (Turkey) at the Mirada del Mar Hotel from May 20th to 25th and was organized by the HHT Center in Utah (USA), coordinated by Drs. Jamie McDonald, Pinar Bayrak-Toydemir and Kevin Whitehead, together with an international organization committee lead by Carmelo Bernabeu, Ph.D. (Spain), chair of the HHT Global Research and Medical Advisory Board.
The goal of the HHT Scientific Conference is to provide a meeting point for clinicians and scientists where participants have access to the most recent advances in clinical research, therapeutics, and basic research in the field of HHT. This is the one time every other year when clinicians and scientists from around the world present their HHT research findings to an audience of attendees, this year over 150 clinicians and scientists descended upon Kemer, Turkey. Every conference, we see more young scientists, new to HHT research, join forces with veteran researchers. The enthusiasm and collaborations that ignite from this meeting are priceless to the HHT community because the individuals who attend this meeting will ultimately find a cure for HHT.
To read an overview of the Scientific and Clinical Sessions, click here and go to pg. 8.
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ALSO IN THIS ISSUE...
- HHT Global Research and Medical Advisory Board Welcomes New Members
- NIH-TRND Group Meets with HHT Foundation
- HHT Seminar in Australia
- HHT Southwest Regional Patient & Family Conference
- Brain AVM Study - Now Recruiting
- NOSE Study - Now Recruiting
- Our Story - by Kim Anzell
- Legislative Breaking News
- Member's Spreading Awareness through Social Media
- June HHT Awareness Month
- HHT Foundation Salutes Our Fundraising Champions
- North American HHT Treatment Centers of Excellence
- North American Genetic Laboratories
- International Patient Support Groups
- International Treatment Centers of Excellence
- International Genetic Laboratories
- Directory of Regional Network Allicances
- Donations to the Foundation
To read these articles, click HERE.
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Thank you for choosing to receive your newsletter electronically. Your decision not only saves the HHT Foundation money, but it allows you to receive your newsletter weeks before members who have a hard copy mailed to their home.
For the latest information and events, visit our website at www.hht.org.
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Sincerely,
Nicole Schaefer
Director, Education & Research Programs
HHT Foundation International, Inc. |
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Quick Links
HHT Southwest Regional
Patient & Family Conference
NOVEMBER 5, 2011
DALLAS, TX
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