| Greetings!
This is an exciting time for the HHT Foundation. We are embarking on a new HHT Awareness Campaign and have recently released a new video, entitled More than a Nosebleed: HHT. This video is now available on our website - www.hht.org along with toolkits that will allow you to spread the word about HHT.
This newsletter contains crucial information about our new HHT Awareness Campaign, as well as important articles concerning HHT that you will want to share with family members.
We have highlighted several key articles and provided a complete listing of all articles for your easy reference.
We hope you enjoy this edition! |
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HHT AWARENESS CAMPAIGN
Now is the Time to Take Action!
by Marianne Clancy, Executive Director
HHT Foundation International, Inc.
The HHT Foundation's Marketing & Awareness Committee, headed by Vice-President Terry Thompson, Jr. has been hard at work increasing HHT Awareness to the public and medical community by investing in the production of a professional video, creating a new landing page on our website to showcase the video, and developing online tookits to make resources available to all who want to make a difference.
Click HERE to read the article. |
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DERMATOLOGY AND HHT: TREATING TELANGIECTASES ON MOUTH AND SKIN
by Anne Curtis, M.D.
Director of the Women's College Dermatory Laser Centre
Women's College Hospital - Toronto, Ontario
Patients with Hereditary Hemorrhagic Telangictasia (HHT) frequently have vessels on the mouth and skin which are prone to bleed. Patients often try to protect larger lesions on the hands from injury since once they start bleeding it takes very prolonged pressure to get them to stop. Vessels in the beard area may be injured by shaving, and again prolonged pressure is needed to stop bleeding. In an emergency department, electrocautery - which involves use of an electric current to produce heat to stop bleeding--may be available.
Click HERE and go to pg. 6 to read the full article. |
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HHT Foundation and HHT Centers
A tale of separate institutions working toward a common goal.
by Nicole Schaefer
Director, Education and Research Programs
HHT Foundation International, Inc.
Over the past year, the HHT Foundation has received several phone calls, emails, and letters asking about the differences between the HHT Foundation and the HHT Centers of Excellence. On the surface, we may look and act as one entity but the reality is that we are completely separate institutions.
Click HERE and go to pg. 5 to read the full article.
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ARTICLES...
- Office-based Sclerotherapy for Recurrent Epistaxis due to HHT: A Pilot Study
- Hereditary Hemorrhagic Telangiectasia: Children Need Screening Too
- CDC Report
- HHT Conferences
- Regional Conference Update
- National Conference - SAVE the Date
- Brain AVM Study - Now recruiting!
- NOSE Study - Now recruiting!
- Investing in HHT
- HHT Foundation's 2011-2012 Legislative Priority
- HHT Personal Stories - Misa Leonessa Garavaglia; Allan Olitsky
- Grassroots Fundraising
- Donations to the Foundation
- In Memoriam - Mary Jenkins Blevins
- Double Your Donation... Double Your Impact Annual Appeal Campaign 2011
To read these articles, click HERE.
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Thank you for choosing to receive your newsletter electronically. Your decision not only saves the HHT Foundation money, but it allows you to receive your newsletter weeks before members who have a hard copy mailed to their home.
For the latest information and events, visit our website at www.hht.org.
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Sincerely,
Nicole Schaefer
Director, Education & Research Programs
HHT Foundation International, Inc. |
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