Inverted HHT Logo  White 

HHT Foundation International

Greetings!  
 
  

It is my privilege to share with you the first HHT awareness initiative undertaken by the Foundation!

 

 video.HHT.org

 

 

The video production More than a Nosebleed: HHT is the result of a collaborative effort between the HHT Foundation, HHT families, and physicians, with the initial concept support provided pro bono from the Bernstein Rein advertising agency. The Foundation funded the actual production that made this HHT Awareness campaign a reality. It is through the generosity of members and generous donors to the HHT Foundation, that this program is possible.

 

You are a vital part of the HHT family and share our goals: 

 

  • Making sure our children, grandchildren, and future generations do not go through what we have endured;
  • Eliminating tragic cases of people who have not been diagnosed or were misdiagnosed, and suffered dire consequences; and
  • Ensuring we receive the most up to date care available. 

 

We are asking you to please share this important video with your entire contact list, along with a heartfelt and personalized message about the importance of HHT awareness. It is especially critical that you, your family, and your friends use the simple Take Action Now features found on the website: 

  • Fund a Cure
  • Spread the Word
  • Tell Congress 

We are proud of the commitment made by the Board of Directors to fulfill the intention of increasing HHT awareness with the launch of this project. This video is one example of a powerful return on your investment in your family's future. 

 

Your continued financial support is needed to continue important programs like this--please consider making a year end contribution.

 

 

Sincerely,

 

marianne's signature

Marianne S. Clancy

Executive Director

HHT Foundation International