| Greetings!
The staff at the HHT Foundation would like to wish everyone a Happy and Healthy New year!!! We are thrilled to present the latest issue of the Direct Connection. We have highlighted several key articles and provided a complete listing of all articles for your easy reference.
It is our hope that you will share this information with your physicians and family members. The Direct Connection and the monthly electronic News Bulletin are member only benefits. We appreciate your membership and commitment to the HHT Foundation. Click Here to make a donation or renew your membership today! |
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 SMPOSIUM ON NOSEBLEED MANAGEMENT A Highlight of this year's National Conference
by Nicole Schaefer, Director of Operations
HHT Foundation International
Recurring nosebleeds can, and does, significantly impact a person's quality of life. In fact, they are the number one complain from HHT patients around the world. Other than telangiectasias on the skin and in the mouth, nosebleeds are the most visible symptom of HHT. Most people think of nosebleeds as part of their HHT life but the reality is that they can become life threatening and should be managed by an otalaryngologist (ENT) who is familiar with HHT.
The challenge with managing and treating nosebleeds is that no one treatment is effective for everyone. Some people respond to topical ointments; other people don't. Some patients have experienced success with septodermoplasty while others prefer sclerotherapy. Still other individuals have resorted to the Young's Procedure or injections of Avastin for relief from their chronic nosebleeds. So what is right for you?
Click HERE to read the article.
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NAMED 14TH U.S. HHT CENTER OF EXCELLENCE
| David Poetker, MD; Robert Krippendorf, MD, MPH; William Rilling MD, FSIR |
We are excited to announce a new partnership with Froedtert & Medical College of Wisconsin as our 14th HHT Center of Excellence in the United States. Dr. Robbert Krippendorf, MD, assistant professor in the Department of Medicine, Division of Internal Medicine at Medical College of Wisconsin, is director of the new center. Other team leaders include, William Rilling, MD, interventional radiology and David Poetker, MD, otolaryngology.
The dedicated team will feature physicians in 16 different specialites and will offer the full spectrum of coordinated care, from genetic counseling to diagnostic testing and treatment.
Click HERE and go to pg. 6 to read the full article. |
NATIONAL FUNDRAISER SET FOR MAY 2013
Please join the HHT Foundation in the fight against a disease that affects 1 in 5,000 people. You can organize your very own walk-a-thon to raise money toward funding research that will aid in finding a cure for HHT. The walks are not limited to school children. They can be done by anyone at their place of business, church or local park.
Click HERE to read how to get involved in this exciting event. |
OTHER ARTICLES INCLUDE...
- Dr. Marie Faughnan Named Scientific Research Director
- HHT Welcomes Joe Wallen as Manager of Special Events
- Save the Date - HHT Scientific Conference in Cork, Ireland
- Robert I. White Young Clinician Award Recipients
- European Respiratory Society Award for Rare Pulmonary Pulmonary Disease 2012
- Highlights from the National Conference
- Children Learn About HHT and Have Fun in Florida
- HHT Foundation Recognizes Members Making a Difference
- The Key to Unlocking the Cure
- Our Story - "The Importance of Keeping a Medical History- Linda Parsons
- New England Wedding Planner Creates Unique Opportunity for HHT Awareness
- Lake to Lake Bike Tour
- Hopefest 2012
- Tough Mudder for HHT
- Hopecrew Kids Making a Difference
- Save the Date - WillPower 5k
- Donations to the Foundation
- 16th National Patient and Family Conference DVD
To read these articles, click HERE. |
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Thank you for choosing to receive your newsletter electronically. Your decision not only saves the HHT Foundation money, but it allows you to receive your newsletter weeks before members who have a hard copy mailed to their home.
For the latest information and events, visit our website at www.hht.org.
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Sincerely,
Nicole Schaefer
Director of Operations HHT Foundation International, Inc. |
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Quick Links
 16th National Patient & Family Conference DVD |
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