| Greetings!
We are thrilled to present the latest issue of Direct Connection from the HHT Foundation. In this issue, you will read about our newest HHT Center of Excellence, the exciting new research in HHT, as well as our upcoming HHT Patient & Family Conference that will take place October 26-28th in Orlando, Florida.
We have highlighted several key articles and provided a complete listing of all articles for your easy reference. We hope that you share this information with your physicians and family members. We NEED your help to create awareness for HHT. The Direct Connection and the monthly electronic News Bulletin are member only benefits. We appreciate your membership and commitment to the HHT Foundation. Click Here to make a donation or renew your membership today!
|
|
|
University of Arkansas Medical Sciences
Named 13th U.S. HHT Center of Excellence
The University of Arkansas for Medical Sciences (UAMS) has a proud tradition of excellence in medical care, education, and research. UAMS was founded in 1879 and has been the only academic health center in the state of Arkansas. UAMS offers leading programs in neurosurgery, children's health care (through their affiliation with Arkansas Children's Hospital), and liver transplantation. In addition, the interventional radiology (IR) facilities are second to none in the country with a dedicated IR CT suite, five angiography suites, and additional treatment room. Morover, there is a close affiliation with the Central Arkansas Veterans Administration Medical Center with most faculty holding joint appointments. Now, Dr. Michael Beheshti and Dr. Mary Elizabeth (Mollie) Meek are Co-Directors of the new HHT Center and they have organized a team of specialists who are knowledgeable in the care and treatment of HHT. We are really excited about this new collaboration!
Click HERE to read the article. |
|
LOW IRON LEVELS AND BLOOD CLOTS IN HHT
by Dr. Claire L. Shovlin, PhD, MA, FRCP
Imperial College London, and
HHTIC London, Hammersmith Hospital, Imperial College Healthcare NHS Trust, London, UK
You probably know that people with hereditary hemorrhagic telangiectasia (HHT) are often short of iron because of bleeding, particularly from the nose. Being short of iron is what makes you anemic. But how does this fit in with blood clots?
Click HERE and go to pg. 8 to read the full article. |
|
16th NATIONAL HHT PATIENT & FAMILY CONFERENCE
ORLANDO, FLORIDA
OCTOBER 26-28, 2012
HHT is a Family Affair. What better place for a family reunion than sunny Florida!!!
Whether or not you inherited the gene, HHT affects your family. As with any medical condition, it is important to understand the risks of not being screened and the benefits of managing and treating this disease well. The HHT Foundation is committed to educating patients, their family members, children, and physicians to prevent catastrophic events from happening. You need to come to Orlando to learn about HHT - the latest guidelines, treatments, and research - but you will leave with so much more!
Click HERE and go to pg. 14 to read the full article.
|
|
ARTICLES...
- 2012:The Year of HHT Awareness
- HHT Foundation International Funded Research Published in Nature Communications!
- Study Examines the Use of Bevacizumab (Avastin) Among HHT Patients with Severe Liver Involvement
- Exciting New Advances in HHT Research
- HHT Q & A Corner
- University of Arkansas for Medical Sciences (UAMS) Diagnoses Woman's 16-Year Illness
- Growth in HHT Publications
- Brain AVM Study - Now recruiting!
- NOSE Study - Now recruiting!
- 10th HHT Scientific Meeting - SAVE the Date
- Our Story - The Power of Social Networks
- HHT Progress on Capitol Hill
- Recent Media & Awareness for HHT
- Upcoming Fundraisers
- Donations to the Foundation
- In Memoriam - Sean Neal Bass
- June 2012 is HHT Awareness Month Learn How to Get Involved
To read these articles, click HERE.
|
|
Thank you for choosing to receive your newsletter electronically. Your decision not only saves the HHT Foundation money, but it allows you to receive your newsletter weeks before members who have a hard copy mailed to their home.
For the latest information and events, visit our website at www.hht.org.
|
Sincerely,
Nicole Schaefer
Director, Education & Research Programs
HHT Foundation International, Inc. |
.
|
|
|
|
|
|
