Last week, I traveled to DC to help educate lawmakers on the new bill for people with kidney disease. One of the healthcare aids I met with donated a kidney to her cousin. Senator Schumer of New York shared that his father had kidney failure. It is amazing how many people's lives are touched by kidney disease.
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Have You Heard the Latest on KidneyTalk?
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Alport Syndrome and Kidney Failure, A Family Story
 Alport Syndrome is an underdiagnosed and commonly misdiagnosed disease whose symptoms often go undetected. Sharon Lagas established the Alport Syndrome Foundation after losing her 38-year-old brother to this hereditary illness and then learning that she, her mother, and her two sons and two nieces also had it. Sharon explains what is involved and shares her personal story. Listen to this interview to learn more about the disease and the ongoing research into it, and find out how to stay informed. Listen Now |
Legislative Update
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A New Bill That Would Improve the lives of People with Kidney Disease
 | | I met with Senator Schumer in DC last week to advocate for this bill. |
The bill is called the "Chronic Kidney Disease Improvement in Research and Treatment Act (H.R. 4814)," and was introduced by Representatives Tom Marino (R-PA) and John Lewis (D-GA). If passed, it would: - Improve understanding of kidney disease
- Improve beneficiary access to treatments for kidney disease
- Expand patient choice and improve the coordination of care
Learn More about the bill
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| Read All About It! | |
12th Annual Essay Contest Entries Due August 1st
Calling all writers! This year's theme is "Explain a Choice You've Made to Improve Your Health and How It Could Benefit Others". Don't miss this chance to share your experience to help others, remember that if you are one of the top three winners your essay will be published. The winners are awarded cash prizes. Get the Details!
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