January 25, 2014   
New NHIS and NSCH Data Available on childhealthdata.org!
Updates to health IT tools to engage families! 

        In This Newsletter:        
State Profiles
Using Health IT to Engage Parents
CAHMI's WVP Tools Engaging Parents
This brief video describes CAHMI's Well-Visit Planner (WVP) tools designed to customize, tailor and improve the quality of well-child care for young children by engaging parents as proactive partners in planning and conducting these visits.
Interested in partnering with the CAHMI on patient-centered quality improvement projects? 

Get in touch with us at cahmi@ohsu.edu

Doctors image--smaller size

Want to Learn More About Exciting New Child Health Data and Engagement Tools?

Learn More About the 2011/12 NSCH


partners with the Maternal and Child Health Bureau to make national and state data accessible and understandable to all.




New Paper on the Life Course Perspective for CSHCN 
A new paper examines key issues and the importance of a life course approach for children with special health care needs. Read the abstract and get the paper here. 

Upcoming Presentation on the MCHB MCH 3.0 Transformation

Dr. Michael Lu, associate administrator of the MCHB, will be holding a Town Hall Session on MCH 3.0: Transformation of the Block Grant at the upcoming AMCHP Annual Conference on Saturday, January 25th from 3:15 p.m. - 5:30 p.m.

Dr. Lu will use this time to outline his MCH 3.0 Vision and to seek specific feedback on the straw person measures. We hope that you are attending the conference and if so, plan to attend this important session.

Medical Home Data Portal Update
Advancing the Medical Home Model for Children and Youth State Profiles

In collaboration with the American Academy of Pediatrics, the DRC hosts a special data and information portal on medical home for children and youth in the US: 

Click here to access this portal and read about new work from the National Academy for State Health Policy (NASHP) and the AAP's National Center for Medical Home Implementation (NCMHI) to develop state profiles highlighting how public health programs are implementing and advancing the medical home model in pediatric populations.


Need Technical Assistance or Help Analyzing Data?
Call 503-494-1930 or use our "Ask us a Question" feature:

About Us
The DRC is a project of the CAHMI
The DRC is a project of the CAHMI supported by the Health Resources and Services Administration, 


Attending AMCHP 2014? Visit the Data Resource Center Exhibit at Booth #42!

Your Voice Counts. Help us Help you with your MCH Data Needs!  
Click here to take the DRC user survey to help us prioritize our future work.

Click here to add your voice to the dialogue on MCH measurement needs and priorities.

DRCDataNew NHIS and NSCH data available on childhealthdata.org!
NHIS CAM Data Now Available

Data from the 2012 National Health Interview Survey (NHIS) Child CAM Supplement is now available on the CAHMI's Data Resource Center website and www.nhiscamdata.org.  This new data expands on the existing NS-CSHCN data already available on our site to paint a more complete picture of child health across the nation.


Search NSCH 2011/12 Findings Item by Item   

In addition to key indicators and composite measures from the NSCH, you can also search item by item. The survey sections are fully searchable and offer an in-depth look at data from the 2011/12 NSCH. These data are now available on the DRC website: www.childhealthdata.org/browse/survey


WVPEngage Families to Improve Well-Child Care!
Well-Visit Planner Expanded to Include Spanish Language and Content up to Age 6

In partnership with the Maternal & Child Health Bureau (MCHB), the American Academy of Pediatrics (AAP) and the Administration on Children, Youth and Families, the Child and Adolescent Health Measurement Initiative is pleased to release the free parent-use version of The Well-Visit Planner (WVP) for children up to age 6 available in both English and Spanish.   


Looking ahead, the CAHMI plans to continue to partner to advance tools to engage families through Head Start/Early Head Start centers and across a wider range of pediatric practices, including integration of parent information into the electronic health record prior to visits. For more information on the Well-Visit Planner visit the public site, check out the educational materials for parents, and watch a 5 minute video tutorial of the tool.     


Also be sure to check out this issue brief on community efforts to improve pediatric prevention, care, and outcomes from the Office of the National Coordinator for Health IT. The introduction was written by the CAHMI's Dr. Christina Bethell!


Under Development: Local Area Estimator for NSCH and NHIS  
The Data Resource Center is working with MCHB, CityMatch and many other national partners to create a local area estimator for children's health statistics. Through the integration of local area census data, we will generate county and city-level child health data findings using standard synthetic estimation methods. This feature will be available later in 2014.  


Email us at cahmi@ohsu.edu if you want to learn more about the local area estimator and help in its design and use.  



State Snapshots

Curious about the health of children in your state?  Access our interactive state-by-state snapshots for new data from 2011/12 NSCH child health indicators.     


MCHMCH Measurement Research Network 

Crafting an MCH Measurement Framework   

The CAHMI is partnering with UCLA's Center for Healthier Children, Families and Communities, AMCHP, and CityMatch on a new HRSA/MCHB-funded project called the Maternal and Child Health Measurement Research Network (MCH-MRN). We are creating a vibrant and productive network of MCH professionals, developing an MCH measurement research agenda and online measures compendium, and working to improve the application of existing measures to policy and practice. 
One of the crucial first tasks of the network is to gain better understanding of current MCH data and measurement uses, capacities, and unmet needs at a national, state and local level. If you use data or measures at your organization, please take this quick online survey to help us learn more.

If you're interested in contributing to this new network of MCH measurement professionals, please contact John Son at json@mednet.ucla.edu. CAHMI and UCLA staff members from the MCH-MRN will be attending the 2014 AMCHP Annual Conference and will have more information and materials to hand out at the CAHMI's Data Resource Center booth (#42). 

 CAMSpotlight on Complementary and Alternative Medicine (CAM)




Measuring the Impact of Complementary and Alternative Medicine on US Children

The CAHMI now provides micro-data findings on  the use and impact of complementary and alternative medicine for US children. See these findings and more at www.nhiscamdata.org.  


Complementing the release of this new data query on the DRC website are two papers on children's use of CAM and the design of the NHIS CAM supplements. Click here to read a summary of a paper on use of CAM for children with recurrent headache. This study showed that among youth with recurrent headache, the nearly one third who used CAM also:

  • Had higher total expenditures for conventional care.
  • Were twice as likely to have seen a medical specialist.
  • Were more likely to take prescription medications.
  • Had six or more conventional care visits in the past year.

This research was also highlighted in the OHSU Healthy Families blog.    


Click here to access a paper summarizing the design of the NHIS CAM supplements for adults and children.



AtsmSpksAutism Speaks Grant Awarded to the CAHMI to Advance Data and Research 

This spring the CAHMI will begin to integrate the Pathways Survey data on children with ASDs into the DRC micro-data query tool. We will also produce key reports and integrate multiple data sources to advance family-centered data and knowledge. These efforts will support early access to screening and high quality treatment for the growing population of children with ASDs in the US.


You can find more information about this new work by visiting the Autism Speaks website.          




MindfulMaking Data Matter with Mindfulness
National working group seeks to advance mindfulness in MCH to promote improvements in leadership, provider and family well-being and resilience
By now we have all heard about the science and possibility of mindfulness to improve health, leadership and even health care
quality. Mindfulness is just as important to making data matter.  There are many MCH measures and data available already and discussions are taking place to develop and collect more data and measures. As this focus on data is renewed, pause to purposely reflect and dialogue on the purpose, value and use of data to promote MCH outcomes. 

Here is a video of Dr. Don Berwick explaining the role of mindfulness in improving healthcare.

Taking on transparency and accountability in MCH is a challenge. Data is essential and is just another way to discover and be mindful about what is true about MCH population well-being and system performance. As your work continues to make data matter, be sure to pause and reflect -what has worked thus far? What is needed now? How can we leverage what we have already? What would inspire and inform you in concrete ways? Click here to let us know if you would like to dialogue more on the mindful development and use of data.  Since more data is not always better data, beginning any search for data or MCH measures with a "mindful data" practice might be essential to ensure data is translated into information, knowledge and action!  

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