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Photo of the Week
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for more photos - gallery
send great photos to
photos@usod.org
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Did you also know that you can send photos to woodbine house for their use? click here for details
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Designate USOD
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 Make a Double Difference!
Please consider designating your UW donation to USOD. Thanks!
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Join Our List
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USOD
Board of Directors |
Casey
Atkinson
David J. Bruening
Allan Buzzelli
Renee Chappell
Denise Cirino
Sandy Donahoe
Scott Eitman
Sue Groszek
Debbie Marks
Michele C. Raia
Ann Regan
Katherine E. Schubert
Lisa G. Trifiletti
Ken Vinikoff
Brian J. Weiss, DPM
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2010 USOD Calendar!
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 Order Yours Today!
We are so excited to launch a 2010 USOD calendar for our members, families & communities. It is chock full of our programming for 2010, information about the USOD & Down syndrome & tons of photos of our wonderful kids. These are the perfect gifts for relatives, teachers, therapists and anyone who works, cares & supports our children & community! Take a sneak previewThey are just $10 each, with a $2 postage fee, & can be ordered securely online, here is the 2010 Calendar order form to mail or email order in or by contacting the office. |
USOD Community Assessment Survey
We Need 40 More Votes to be Viable
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 We thought we could close the survey on December 13th at the Holiday Party, but we are short votes to close the survey & do our fantastic drawings.
The Up Side of Downs of Greater Cleveland is excited to announce the 2009 Community Assessment Survey of our families throughout Northeast Ohio who care for a loved one with Down syndrome.
The survey is accessible here --> 2009 USOD Community Assessment Survey and on the homepage of the USOD website at www.usod.org.
Some prizes to be drawn for participants include a Pair of Tickets to the 2010 USOD Reverse Raffle on March 27, 2010, Aveda Beauty Products, 2010 Organizer Package from Franklin Covey & Office Max, a USOD coolest goodies package, a Gourmet Coffee & Chocolate pack, Walmart Gift Cards and more. We need only a few more families to reach our goal of 300 participants. With 1,200 families in the USOD we can do it.
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Help the USOD Reach Our Goal of 400,000 Votes
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Currently We Are In 3nd Place!
(we have dropped & need to stay in the top five)
We are so excited the Up Side of Downs has been
selected out of 5,000 applicants down to the final 50 in the Clorox Power a
Bright Future program. We would receive a $10,000 grant and a feature in PEOPLE magazine.
Everyone can vote
once every 24 hours for the USOD through January 17, 2010. Please follow the link to
facebook (sign up for an account if you need to.) Then vote for us every
day and spread the word to all of your friends & family.
We will be launching a campaign seeking 400,000 votes for the Clorox Power a
Bright Future program to represent the 400,000 people with Down syndrome
in the United States. To help with this project, join our "group", the Up
Side of Downs, on facebook so we can send out a reminder to you to vote each day.
Please don't hesitate to contact the USOD office with any questions, media contacts, suggestions or to help volunteer to spread the word.
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2009 USOD Holiday Party Was A Great Success!
check out the latest photos - Party
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USOD Family Fun Day at the Rock & Roll Hall of Fame
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Sunday, January 10, 2010, 10am - 3pm
Bring your family and friends to the Rock and Roll Hall of Fame and
Museum to experience the music that changed the world. Discover rock
and roll history from the past, to the present as you explore seven
levels, five movie theaters, thousands of artifacts and numerous
interactive listening stations. Full Event Details....
Cost:
Individuals with Down Syndrome - FREE
Children Ages 8 & Under - FREE
Family & Guests - $5 (discounted from $18 courtesy of USOD)
Registration Deadline: Must pre-register online or send your information & payment to the USOD office by Wednesday, January 6, 2010.
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Stepping Forward to Help USOD
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 Things to Check Out!
Holidays are a wonderful time to enjoy your family & friends. They can also be a great time to step forward and get involved in your community. The USOD is looking for volunteers to come forward to get 2010 started with a bang. Think about for the next two weeks:
- Computer work in the office or your home
- Web research work for media outlets & also donations, services or packages for the Reverse Raffle.
- Mailings for upcoming events
- Hosting a parent support group, play date or education get together
Upcoming meetings include the:
Reverse Raffle Planning Committee Tuesday Jan. 5, 2010
Development Committee Tuesday Jan. 12, 2010
Please contact the office at 216-464-8763 or info@usod.org
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What The Other Children Are Thinking
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Children's Hospital of Boston
The birth of a child with a disability or chronic
illness, or the discovery that a child has a disability, has a profound
effect on a family. Children suddenly must adjust to a brother or
sister who, because of their condition, may require a large portion of
family time, attention, money, and psychological support. Yet it is an
important concern to any family that the nondisabled sibling adjust to
the sibling with a disability. It is important because the nondisabled
child's reactions to a sibling with a disability can affect the overall
adjustment and development of self-esteem in both children.
Parents set the tone for sibling interactions and
attitudes by example and by direct communications. In any family,
children should be treated fairly and valued as individuals, praised as
well as disciplined, and each child should have special times with
parents. Thus, parents should periodically assess the home situation.
Although important goals for a child with special needs are to develop
feelings of self-worth and self-trust, to become as independent as
possible, to develop trust in others, and to develop to the fullest of
his or her abilities, these goals are also important to nondisabled
siblings. read on.....
Additional articles:
What's Needed by Siblings of Special-Needs Children?
When Special Needs Spark Sibling Rivalry
Help For Siblings Of Children With Special Needs
Siblings of Children w Disabilities Have Special Needs Too
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Great Book Based on USOD Friend Jacob D'Orzio
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http://www.frecklebooks.com/
The Freckle Book series is a line of story books targeting classroom teachers and group leaders who want a new way to
introduce children with special needs into their programs.
Laurie Beetler, the author of My Name is Jacob, resides in Strongsville, OH and has worked in elementary education for 10 years. She works with USOD Friend Jacob D'Orzio and based the book on him. Please support this wonderful effort by purchasing the book www.frecklebooks.com and by spreading the word.
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Research Focuses on Helping Parents Adjust to Down Syndrome Diagnosis
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Researchers are working to develop support information and
resources for parents of children with Down syndrome and the
professionals who work with them.
Written by Cory Chandler
The survey requires about 30-45 minutes to complete. Parents of children or adults with Down syndrome may participate. Click here for info
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USOD Mission
To provide support, education, and advocacy for people with Down syndrome, their families and communities.
Vision
The Up Side of Downs is committed to building a community where
people with Down syndrome are independent and have the opportunity to
reach their fullest potential.
History
In the early 1980's, a handful of parents whose children had Down
syndrome began to meet informally over coffee for socialization and
support. Nearly thirty years later, with the help of a lot of coffee
& caffeine, their vision and hard work has taken the Up Side of
Downs from a grassroots parent movement to a staffed nonprofit
organization joining over 800 families throughout Northeast Ohio.
We invite you to connect with our with our support community to join us at one of our many programs & services, do research in our comprehensive resource directory, join our on-line family support network, enjoy our scrapbook photo gallery and so much more.
Contact the Up Side of Downs of Greater Cleveland.
The Up Side of Downs of Greater Cleveland
23230 Chagrin Blvd., Suite 640
Cleveland, OH 44122
phone
216.464.USOD (8763)
fax 888.708.USOD (8763)
e-mail
info@usod.org
web www.usod.org
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