SADS 20th Anniversary Logo
 
Greetings!
Flat Bob!
Have You Heard About Flat Bob?
The successful "Where's Bob?" campaign continues with the creation of Flat Bob! Flat Bob is helping raise awareness all around the world. Flat Bob made his debut at the Heart Rhythm Society's (HRS) 33rd Annual Scientific Sessions in Boston, MA on May 9th.  Click here to see photos of Flat Bob at HRS.

Throughout the summer, we'll have different assignments for Flat Bob.  In celebration of upcoming CPR week (June 4-8, 2012) the first assignment is to take a photo with Flat Bob at a CPR class or an AED in your community. Click here to print your Flat Bob and get going on the first action item!


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Sabrina Keller, passed away unexpectedly last year due to undiagnosed LQTS.

Recent News at the SADS Foundation
webinar
New Resource for School Nurses

The SADS Foundation is pleased to include a new webinar "Cardiac Disease and Risk Prevention - An Overview for School Health Professionals" in the resources we offer for school nurses.  This project was a collaborative effort between Linda Khalil, Director of the NY Statewide School Health Services Center, the SADS Foundation and other advocacy organizations.  We encourage you to watch this informative webinar and share with your school nurse.

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AZ Cert Logo
An Update from Arizona CERT

After recent news surrounding the popular antibiotic azithromycin (Z-pack), it has been moved to the list known to cause a cardiac event and should be avoided by patients diagnosed with Long QT Syndrome.  Arizona CERT has found that at least half of its website visitors have LQTS or are family members and say they have refrained from taking a medicine because it was on the list.  Overall, about 90% reported finding the website helpful. 
Did you know you can now easily access the drugs-to-avoid list on your mobile phone?  Use the website www.AZcert.org/m for a mobile friendly view of the drugs-to-avoid list and always be informed!

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Kids
Help Create a Better Future for SADS Patients!

This is your chance to help us understand the issues for individuals with SADS in obtaining health, travel, disability and life insurance.  Please take a moment to participate in this valuable insurance study for both US and Canadian citizens.

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CPR
Improving SCA Survival Rates with CPR Over the Phone

Several studies have found that SCA survival rate depends on where a person suffers their event.  Until now, there have been few ideas on how to combat this issue.  A story on National Public Radio today showcases a simple and innovative program: train emergency dispatchers to coach CPR over the phone.  Communities who have tried the program have shown up to a 50% increase in survival rate--that's amazing! These efforts will also empower bystanders to take action and help save lives.  We'll be sending more information about this program and how you can help next week as we kick off National CPR/AED Week!

Thank You!
Thank you to all those who have supported the SADS Foundation's medical education program.

Educating physicians to recognize, diagnose and treat SADS conditions is a major focus for the SADS Foundation. Thank you to everyone who has made a financial contribution to this life-saving effort!  You can donate to the SADS Medical Education Program by clicking here now.

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Share This With Your Doctor!

Expert clinicians in treating people with LQTS are needed for a research study examining physician's decision making regarding medical and behavioral treatment recommendations for LQTS patients.  Click here to print a flyer to take to your doctor and help advance research in providing quality care for LQTS patients.

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SADS Logo
New to the SADS Foundation Team!

We're excited to announce the addition of two new staff members to the SADS team!  Monica Hasebi joins the team as our new Special Events Assistant.  With her Bachelor's degree in Public Relations and a Master's degree in Strategic Communications, Monica has found her passion in networking with people and continuously challenging herself through various projects.

Carol Lai is our new Awareness Intern.  Carol is currently a sophomore at the University of Utah studying Speech Communications and Economics. In high school, she volunteered at the Primary Children Medical Center serving young patients and their families and is now sharing her talents to the SADS Foundation.

Welcome aboard, Carol and Monica!   

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Join us in Salt Lake City this October!

On October 12, 13, and 14 the SADS Foundation will host the 6th International Conference: Preventing Sudden Unexpected Death in the Young.  New this year will be Friday sessions and a special networking event that evening.  We hope you and your family will plan to join us for this informative and memorable event. 

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HRS 2012
News from the 33rd Annual HRS Scientific Sessions
In addition to attending many scientific sessions, the SADS Foundation's trip to HRS was very busy this year!  The SADS Foundation convened a special meeting of the NSGC (National Society of Genetic Counselors) Cardiac Special Interest Group and also hosted a SADS Family Meeting featuring Dr. Heist, Dr. Etheridge and Dr. Sears.  Our Scientific Advisors had a fantastic meeting this year to plan the SADS Research Agenda and to update our policy on screening. Watch for the details on our website soon.  We will also provide a more detailed update in our medical enewsletter next week.
 
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Medi Cal Logo
Calling all SADS Friends in California!

This week we sent an action alert regarding proposed changes to California state Medicaid, also known as Medi-Cal, to move to a value-based purchasing plan.  This would allow Medi-Cal the authority to review and either eliminate or restrict coverage for therapies and technology including the Implanted Cardio Defibrillator (ICD). The SADS Foundation needs help from California residents to ensure proper access to this life-saving device.  Contact Adrienne Butterwick or call 800-STOP-SAD to get involved today!

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Coming Events: