Sudden Arrhythmia Death Syndromes Foundation
SADS E-NewsletterSeptember 2010
In This Issue
SADS Safe Schools
SCA Coalition Day on the Hill
Families Helping Families
Sudden Unexplained Death Outreach
Join the email list
Recent Events
Post Your Toast

Ask your teen (or child) to answer this month's featured question!

 How do you manage your SADS condition at school (i.e. carry an AED, buddy system, educate staff, explain your condition to friends and students, accommodate P.E. or sports)?

Answer by emailing

Upcoming Events

Sing it for SADS 2 -Dunmore, PA -September 25, 2010

Sudden Cardiac Arrest Coalition Day on Capitol Hill -October 5, 2010 -Washington, D.C.

To add to your special fund-raising event, please contact Laura or call 800-786-7723.

SADS Safe Schools campaign is happening now!
School Bus
Request materials today!
Donate Online
Join Our Mailing List
Join us Online
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International SADS

SADS Canada Logo2

Preventing SCD in the Young

Nova Scotia, Canada
October 2, 2010


Heart to Heart Conference

London, England
October 23, 2010


Thanks for checking in with the SADS Foundation. Lots to on!
It's SADS Safe Schools Season!
Each year the SADS Foundation hosts a SADS Safe Schools campaign.  It's time again for you to take materials, give presentations and meet with school staff and administration to raise awareness of SADS conditions.  This could save a life!

One of the most important tools to awareness in schools is our risk assessment form.  The SADS Foundation advocates that all students complete a risk assessment form to ensure proper recognition of SADS conditions and potentially save lives. 

Will you help us?  Visit our website to request materials.  Or, contact Adrienne at or call 800-786-7723 to get your information today!

October is Sudden Cardiac Arrest (SCA) Awareness Month and to kick if off, the SCA Coalition is planning an event on Capitol Hill on October 5th.  SADS is a proud member of the Coalition, and working together, we will be heard.  Come join us as we raise awareness of SCA, and celebrate the 50th anniversary of CPR.  We want YOU to share your story of SCA, and help strengthen our message.

For more information, please visit our website.  RSVP to Adrienne at or call 800-786-7723.

Families can support one another by sharing how they have dealt with various issues (e.g. pregnancy, delivery, newborn, treatment options, teen support, playing sports, not playing sports, etc.)

Go to the Local Network Participation Survey and let us know which of the following you are interested in:
  • networking via email/phone
  • meeting other families
  • helping with group medical education, advocacy, awareness, or fundraising
  • local seminar
Sudden Unexplained Death Outreach
Sadly, the first indication of SADS conditions for many families is an unexpected death.  When that happens, we at the SADS Foundation are concerned about the other kids in the family (and the parents, etc.). Someone needs to let the parents know that they should have their other children checked. We want to prevent another unnecessary death

When we hear about a sudden death that seems to be due to SADS, we contact the medical examiner, family members, and any other people involved such as coaches, school nurses, church officials, etc.  and provide information.

If you hear of a death in your community that may fit the SADS profile, please contact us with the news article or obituary.  We often have volunteers who are willing to deliver information and even speak with people in regards to a recent death.  If you are interested in becoming part of this outreach program, please contact us at or call 800-786-7723.

New Emailing List!
Did you get the latest awareness e-newsletter?  If not, you can read it on our website.  Did you know you can read all the past e-newsletters, action alerts, etc. by visiting  the archive on our website

Join the awareness email list by emailing Adrienne. You won't want to miss out on exciting updates on the Keeping Hearts Beating campaign, SCA Awareness Month and much more!

Recent Events
Last weekend, both the Layton (CO) and Tolosky (NY) families hosted their annual Octoberfest-type Festivals.  Here are some photos from New York and Colorado.

Christie's Heartoberfest
Group at Christie's Heartoberfest
Christie's Heartoberfest, Saratoga Springs, NY
On 9/18/10, all around the world, people raised a beverage in the name of the SADS Foundation and those who are affected by SADS and then posted comments and pictures on the facebook page.  Visit the facebook page to see everyone's toasts and add your own. 

Alice, Laura, Joanne, Heidi, Amy, Sarah and Adrienne
SADS Foundation