BLOOM E-newsletter
January, 2010
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A stand-up comedy movie about disability and diversity.
 
The whole idea started with Hope - a little girl who spent her entire life, from birth to early death, in a hospital ward.
 
Handigo disability awareness game
The first awareness-raising game on disability, by Ability Together.
 
At New York City's KIPP Infinity Charter School, in the neighborhood of West Harlem, resilience training is squeezed in after math.

Faith and disability resources 
Three publications from the Elizabeth M. Boggs Center on Developmental Disabilities.

Reasonable People: A Memoir of Autism and Adoption: On the Meaning of Family and the Politics of Neurological Difference

 







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Got a story that resonates with parents of kids with disabilities?
E-mail me.

Cheers, Louise
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What makes us human?
I was hoping my agitated reaction to the New York Times' Motherlode column "Should Down syndrome be cured?" would fade, but it won't. The post covers research from Stanford University that shows that a drug can temporarily restore some learning and memory skills in mice with Down syndrome.
More
Katie's ballet dream comes true
Like many little girls, five-year-old twins Katie and Emily Suggitt wanted to dance. But until last year, Katie had to watch her sister at the ballet barre because she has cerebral palsy and can't walk. Determined to see Katie don her own pair of pink slippers and take her place with the other dancers, mom Sarah created an accessible class. More
Perfectly imperfect
When my middle son Avery was diagnosed with Down syndrome at five days old, my Dad said, "Ah, well. He'll be one of the better ones. He'll be the best." It felt like a kindness, and I remember being buoyed by the thought. He may have Down syndrome, but by God, he'll still be the best.
More
For the love of Annie
When Barb Farlow learned the baby she was carrying had Trisomy 13, her decision to continue the pregnancy "was immediate and innate, and in complete contrast to what I thought I might do," says the Toronto mother and engineer. She was told the syndrome was lethal, but through online support groups met families whose children were living with Trisomy 13. More
Does disability make a parent less fit?
There's been a lot of discussion in the blog community about the rights of disabled parents to care for their own children. The Chicago Tribune has been following the story of Kaney O'Neill, a 31-year-old woman with quadriplegia who's being sued by her ex-boyfriend and the father of son Aidan, five months, for custody, charging that her disability "greatly limits her ability to care for the minor." More
Grief: an unlikely friend
When my son with disabilities was younger, I often felt a failure because I still grieved for him. Why did I feel sad, mad, guilty and anxious - when I adored my son and he brought me such delight? Here are some of the reasons.
More
The time of your life
We may only go 'round one time
As far as I can tell
It's the time of your life so live it well!
Listening to that A Bug's Life song is one of my best Christmas memories. We gave Ben a CD of Pixar songs and he and I sat on the couch and swayed to these somewhat goofy songs with such irrepressible spirit that I couldn't help smiling. More
Science roundup
In case you missed the December print issue of BLOOM, here's a link to its science roundup. More
Send your photos
We invite you to send us a digital photo of your child "in bloom." E-mail to lkinross@bloorview.ca
and we'll feature as many as possible in our summer issue.
Articles in BLOOM are not intended to be a substitute for professional medical advice. Community and web resources listed in BLOOM do not necessarily signify endorsement by Bloorview Kids Rehab. Where appropriate, please consult your physician.
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