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New on the BLOOM blog


By using a measure that reduces quality of life to physical function, bioethicist Peter Singer argues in the New York Times Magazine that health-care treatments that extend the lives of able-bodied people are twice the value of those that extend the lives of people with quadriplegia. Why I think he's wrong.



A new University of Washington study comparing stress levels of moms of children with autism and moms of children with other developmental disabilities provides some unexpected results.


Patty Daly wants parents to know about a sport that welcomes children with disabilities and has opened a world of opportunity for her daughter Lauren.


In The unvarnished reality of autism on the New York Times Motherlode blog, a mother provides what she calls an unsanitized account of "nightmare" symptoms in her child with autism.

An adult with autism responds in Autism from the inside looking out.


Road Map to Holland: How I found my way through my son's first two years with Down syndrome, Jennifer Graf Groneberg, 2008

Road Map to Holland is the perfect companion for new parents of children with any disability. It's a rich, honest account of one mom's journey with premature twins - one of whom has Down syndrome. For seasoned parents, it brings back memories of those painful 'firsts:' getting the news; how and what to tell family and friends; seeing some friends step up to the plate and others fall away; bumping up against professionals or average folks who don't treat your child with respect; navigating the world of intervention. But also the joyous: being filled with love and gratitude for your child; finding a new way to see wholeness and beauty; the first "Ahluvyou" from a child who struggles to speak; discovering strengths you didn't know you had.

Aidan's way: The story of a boy's life and a father's journey, George T. Crane, 2002

The ride together: A brother and sister's memoir of autism in the family, Paul and Judy Karasik, 2003

Thicker than water: Essays by adult siblings of people with disabilities, Don Meyer, 2009

Please post your comments on the blog or email me directly. Louise
lkinross@bloorview.ca

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