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RUN TO THE SUN ONE-MILE FUN RUN
Join runners of all ages March 4
  
This exciting fundraiser will be held at Camp Mabry on March 4 from 4 - 6 pm and kids of all ages are invited to participate.

Help participants to reach their $10,000 goal to help cure Batten disease and register to run today!

Special thanks to our friends, Larry and Emily Chauvin, Courtney Ewing, Kim and Brandon Batiansila, Sheri Bryant, Ali Phillips and Sandra Yancer for keeping the Run to the Sun legacy alive.
YOUTH LEADERSHIP COMMITTEE HOSTS BENEFIT
Concert featuring Rob Baird raises over $8,500

 President Hannah Windham and Secretary Kathryn Sharplin 
Spearheaded by President Hannah Windham, the Youth Leadership Committee combined a love of music with philanthropy to raise over $8,500 to benefit Beyond Batten Disease Foundation. Musician Rob Baird graciously accepted the invitation to partner on the event, and the rustic charm of the Historic Scoot Inn was the perfect venue. View the event album!

YLC committee members enlisted sponsors to help underwrite the costs of the event and all ticket sales went directly to research. Thank you YLC for such an incredible turnout!

Event Sponsored By: Pitt Construction, Inc. - Benton Real Estate - Fat Tire Partners  
                                     Shannon Windham Realtor: Gottesman Real Estate - Range Rover 
AUSTIN MARATHON
Runners raise over $22,000 for BBDF
 
Volunteers: Ireland Tindler, Water Station Co-Chair Susie McCartt, Claire Peterman
A huge thank-you to the runners and volunteers that came together to make our first year at the Austin Marathon such a great success! We are extremely lucky to have such dedicated volunteers. 

Check out highlights from the water station! Special thanks to all the runners for doing the hard work. 

Full Marathon: John Chapman, Rafael Garcia, Stuart Sack
Half Marathon: Lindsey Brown, Sheri Bryant, Jonathan Campbell, Larry Chauvin, Pam Hathaway, John Hathaway, Kamyab Javanmardi, Harmony Lorentzen, Stephanie Mareth,  Mark McKnight, Laura McKnight, Susan Palombo, Joanna Perrine, Alan Restreppo, Jennifer Rozas, Shelley Shuman
5K: Carrie Baker, Chase Baker, Ella Nasi


BATTEN BALL BASKETBALL TOURNAMENT 
Middle school students raise over $2,100 to fight Batten disease 

Thank you Trinity Middle School! The Batten Ball Basketball Tournament was the perfect way to educate kids about Batten disease. BBDF is so grateful for your enthusiasm and support in the fight for the cure. Go team!

Special thanks to all the kids and parents who participated and organized the event, especially Development Board members Lucy Butter and Jocelyn Johnson.
AMPLIFY AUSTIN 
Community-wide Austin fundraiser 


Over the past three years, Amplify Austin has raised over $16.2M for hundreds of local organizations and this year Beyond Batten Disease Foundation is honored to be included as a participant. 

Promote the culture of giving back within the Austin community and take part by supporting BBDF on March 8 - 9

 

A MOTHER'S STORY

Christiane's First Deer

 

SAVE THE DATE
Beyond Batten Disease Foundation
512-275-2600 or 1-877-6BATTEN

Beyond Batten Disease Foundation | P.O. Box 200998 | Austin | TX | 78720