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BBDF PROGRESS AND HIGHLIGHTS
Annual Report Notes Accomplishments and Upcoming Projects


"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi 


YOUTH LEADERSHIP COMMITTEE GROWS
In Its Second Year, High School Group Shines

  

Led by President Hannah Windham, Secretary Kathryn Sharplin, Outreach Chair Susie McCartt and Leadership Development Chair Will Snell, the Youth Leadership Committee has doubled its numbers and impact in its second year. Currently there are 64 members, representing 9 Austin area schools. They've already raised $15,550 this year and they are planning a benefit concert featuring Rob Baird on February 21, 2016. Click here if you are interested in sponsorship opportunities. 

 

View 2015-2016 Members  

A CURE IN THE NICK OF TIME
First Annual Run Raises Over $25,000
  
Jessica Curran, organized the first annual A Cure in the Nick of Time Run in Duxbury, MA in honor of her brother who has juvenile Batten disease. With Nick and his father leading the way, participants ran to raise awareness and funds for research. Raising over $25,000 to support BBDF's research strategy, the Curran's community showed their support for Nick. Thank you for helping us find a cure or treatment for juvenile Batten disease! 

GIVE THE GIFT OF HOPE
Donate in Honor of a Loved One This Holiday

When you make a charitable donation to BBDF in honor of your friends and family, we will send you donations cards for you to give to your gift recipients. Slip these into your holiday cards or neighborhood goodies. In addition, we will send an acknowledgement letter notifying you of your tax deductible contribution.


*Please note the quantity of cards in the acknowledgement section and we will mail directly to you. 


SAVE THE DATE
  • February 14, 2016: Register today for the Austin Full/Half Marathon or the Paramount 5K. 
  • February 21, 2016: Youth Leadership Committee Benefit Concert
  • March 4, 2016: Run to the Sun One-Miler at Camp Mabry
Beyond Batten Disease Foundation
512-275-2600 or 1-877-6BATTEN