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INTRODUCING FAMILY NIGHT
Join us September 11, 2015 for an evening at Schlitterbahn Waterpark

Join us Friday, September 11, 2015 from 4:30-8:30 pm for a private event at Schlitterbahn Waterpark in New Braunfels. Don't miss out on this unique experience and exclusive opportunity to promote community fundraising while enjoying special time with your family. Admission is limited and this event is expected to be a sell out! 

BBDF CHOSEN FOR GENETIC ALLIANCE'S NEW INITIATIVE
Batten registry for patients, doctors and researchers underway
  
BBDF was one of 15 awardees for Phase I of Genetic Alliance's Platform for Engaging Everyone Responsibly (PEER). PEER enables individuals to share health information with researchers and each other on their own terms to advance an understanding of health and disease and to accelerate the development of cohorts for clinical trials. 

BATTLIN' BATTEN IN BAFFIN FISHING TOURNAMENT
Fundraiser raises over $30,000

Winning Team: Jim Arnold, Kelly Dwyer, Baron Unbehagen and Len Wright
This year's Battlin' Batten in Baffin Fishing Tournament raised over $30,000, bringing the total raised since 2009 to more than $150,000. Thank you to all who came out in support and especially to Neal Meinzer, who has graciously hosted this third party fundraiser for 7 years. Overall, the weekend was a resounding success for all involved.
  
Save the date for next year's tournament: April 2, 2016. 

To learn more about hosting your own third party event, visit the website.  
BIRDIES FOR BATTEN 

Will Ezell demonstrates community leadership through athletics


 
Through the American Junior Golf Association's program Birdies for Charity, Austin High golfer Will Ezell is raising funds for juvenile Batten disease. Birdies for Charity allows junior golfers to pick a charity important to them. They then secure one-time donations and pledges for the amount of birdies they have in any tournament where the USGA rules of golf apply. Will unselfishly combines his passion for golf with giving back to the community.

To learn more about his efforts, visit Will's fundraising page.  
POSSIBLE
By Charlotte Benson

Have you ever wondered if you are relevant, significant, or if anything you do really matters? Sometimes I get moving so fast, occupied with my daily activities, and whirling in a million directions, that I wonder at the end of the day, if any of it really mattered.......does anything I do count?

 

I received a card in the mail the other day from Whitney, a childhood friend, and the cover read: "Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible" - Francis of Assisi.

 

Continue Reading  

HOPE ON THE GREEN RAISES $125,000
Event brings out funky outfits, smiles and HOPE 

On April 20th, The Will Herndon Fund hosted its annual golf tournament, HOPE on the Green, at The Woodlands Country Club Palmer Course. With 52 sponsors, 210 players and 50 volunteers, HOPE had its most successful tournament to date. With a helicopter ball drop and an outfit competition, the event was filled with spirit and hope. Thank you for making our 6th year better than ever, raising over $125,000. 
  
View photos  

RUN TO THE SUN INSPIRES HOPE
Final run raises over $322,000 for Batten research 
  

Thank You - Run to the Sun 2015
On April 11-12, over 200 runners and 250 volunteers stayed up through the night to raise awareness and funds for juvenile Batten disease. Our community came together in strength and numbers. More than ever before, the 
5th and Final Run to the Sun Relay showed the importance and fortitude of our community. 
Thank you to all our supporters throughout the last 5 years! Together, we raised over $1.6 million. 

SAVE THE DATE 
  • September 11, 2015: Join BBDF at Schlitterbahn for Family Night - Sponsorships available now!
  • September 19, 2015: Mark your calendars for Hope Under the Stars
Beyond Batten Disease Foundation
512-275-2600 or 1-877-6BATTEN