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BBDF AWARDS $1.75 MILLION GRANT
Continuing Research at Texas Children's Hospital
Missy and Will Herndon, on behalf of BBDF, presented a $1.75 million check to the Jan and Dan Duncan Neurological Research Institute at Texas Children's Hospital in Houston, TX. The check represents a three-year grant to explore whether the pharmacological activation of TFEB can be used to activate the lysosomal system and promote cellular clearance in juvenile Batten disease and slow disease progression. This grant builds on the research discoveries from the $2.5 million award from Jim and Cherie Flores and BBDF in 2008 that resulted in 6 potential drug compounds.
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BBDF YEAR IN REVIEW
By Christiane Benson
Last year because of you, BBDF raised nearly $1.5 million in direct donations and leveraged $1.2 million in additional research dollars through partnerships and co-funding, totaling almost $2.7 million for Batten research.
Christiane shares BBDF's recent accomplishments.
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6TH ANNUAL HOPE UNDER THE STARS
Event exceeds fundraising goal
HOPE Under the Stars raised over $475,000 for Batten research. With 850 in attendance, the 6th annual event was their most successful night to-date.
Missy Herndon provided a comprehensive research update, allowing supporters to see first-hand the impact of their involvement. From Texas Hold 'Em to music by the Bucktown All-Stars, the event had entertainment galore. Most importantly, all in attendance were provided with HOPE. Thank you to all who came out in support!
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RUN TO THE SUN REGISTRATION OPEN
Sign up early and be entered in a raffle for a RV rental
 Sign up today for the 5th and Final Run to the Sun Relay -- a 90-mile relay through the Texas Hill Country! If you have never participated, this is your last chance to join us for this unforgettable night of camaraderie, dedication and hope. Get inspired by last year's video.
Not feeling up to the 90 miles, join us for the Fun! Run to the Sun 2K. Whether walking or running, this event is perfect for all ages.
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INTRODUCING THE YOUTH LEADERSHIP COMMITTEE
High school students join us in our mission
In October, BBDF launched the Youth Leadership Committee. These young philanthropists have joined us in our mission to eradicate juvenile Batten disease. Full of ideas and energy, these students will help us spread awareness far and wide while gaining service hours. I f you know someone who is interested in joining the committee, please email us.
Our next meeting is December 7th at 5 pm at 2527 Jarratt Ave.
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GIVE THE GIFT OF HOPE
Donate in honor of a loved one this holiday
Need a great gift idea for teachers, neighbors, colleagues, or relatives? Give the gift of HOPE this holiday by making a donation to help all children and families affected by Batten disease.
When you make a charitable donation to BBDF in honor or memory of your friends and family, we will send you holiday cards uniquely designed by children and families affected by Batten disease for you to give to your gift recipients. These cards are filled with inspiring quotations and holiday recipes sure to spread holiday cheer. In addition, we will send an acknowledgement letter notifying you of your tax deductible contribution.
Order Now »
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- December 7, 2014 5 pm: Youth Leadership Committee Meeting at 2527 Jarratt Ave. Pass along the meeting information to any interested high school student.
- February 27-28, 2015: Mark your calendars for The Woodlands Marathon.
The Will Herndon Fund at Beyond Batten Disease Foundation is a spotlight charity!
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