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GIVE A GIFT OF HOPE
Donate in honor of a loved one this holiday
  
BBDF is offering holiday cards designed by children and families affected by juvenile Batten disease. Your charitable donation to the foundation in honor or memory of someone is a convenient alternative to shopping and wrapping. Give the gift of hope to all children and families affected by juvenile Batten disease and order a card today. 
 
A MOTHER'S STORY
Muddy Bogs and Steep Hills
by Charlotte Benson

Some say control is an illusion and if you want to make God laugh, tell Him your plan.
  
ANNOUNCING OUR NEW WEBSITE
  
Things are changing for the better in the world of Batten disease research. So our website is changing too. The foundation is excited to unveil our improved website! It is now easier than ever to stay up-to-date on the latest in Batten disease research, the foundation's progress and explore ways to get involved. We invite you to explore all the new options the website has to offer. Feel free to share your feedback with us at [email protected]
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DOUBLE YOUR DONATION
Will your employer match your donation to BBDF? 

 

We've made it easy to find out! Simply click here and search your company name. If your company is listed, you can fill out and submit the necessary forms to make your donation go TWICE as far!

 

If your company isn't on this list, get them involved in corporate philanthropy. More and more companies are getting involved in corporate giving and the results have had a positive influence in more ways than one. Increasing corporate social responsibility is a great way to foster team spirit, improve the company brand and engage and retain talented people in your business. Read more about this growing trend and the positive effects corporate giving can have on your company.

 

Your gifts are critical in our mission to eradicate Batten disease. Doubling your donation allows us to move even faster towards our goal to find treatment and a cure.

 

  

FEATURED FUNDRAISER 
Team Beyond Batten: Debby Oatman

BBDF would like to thank Debby Oatman for helping raise over $1,000 for Batten disease research. Debby and her family traveled to San Francisco to participate in the full and half marathons. By choosing to join Team Beyond Batten, Debby turned the race into an opportunity to help her swim student, Christiane. Read more �

 

Thanks Debby! Have a hobby or interested that you want to turn into a way to raise money for Batten disese? Join Team Beyond Batten today �

 

Gummy Bear Gourmet class raises funds for BBDF
  

A big thank you to BBDF supporter Ashley Crider and the members of her Gummy Bear Gourmet class! This summer Ashley and her students hosted a lemonade and cookie sale benefitting the foundation. Their hard work and tasty treats raised $115 for the foundation.

 

"We always donate the money to BBDF because it's a tradition that we do, and children learning to help other children is as important as children learning how fun and simple it is to eat healthy!"

 

-Ashley Crider 

Learn more about hosting a third party event �

INTRODUCING BBDF'S WEBINAR SERIES
    

This summer, BBDF presented the first in what will be a series of webinars on JNCL designed for foundations, parents, family and loved ones of those affected by Batten. The webinars are a platform for us to share the latest information on juvenile Batten disease research and provide a forum for information sharing. This 30 minute webinar allows us to describe our strategy as it relates to finding a treatment and cure for juvenile Batten disease. We talk about the global efforts in JNCL research and how all the pieces fit together to get a treatment as quickly and inexpensively as possible. This first presentation gives a broad overview of our strategy and we will provide more detailed information in the webinars to follow.


SAVE THE DATE  

HOPE on the Green, Carlton Woods: November 4, 2013 

Registration will be opening soon for this year's HOPE on the Green Carlton Woods golf tournament. Sponsorships and player registrations will be available.

Learn more � 

   

Run to the Sun Relay: April 26-27, 2014 

Plans are under way for the 4th Annual Run to the Sun Relay! New this year, a 2K Fun Run for runners of all ages and paces! So start getting your team
 together and plan to bring along friends and family to run toward a future without Batten disease. Registration opens in October.

Learn more � 

Beyond Batten Disease Foundation
512-275-2600 or 1-877-6BATTEN
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