Spring 2013

Volume 7, Issue 3



Your "Good News" from TSA of Texas

TSA of TX:  Helping Children and Changing Lives 

Tourette's syndrome (TS) is a chronic neurobehavioral movement disorder that begins in childhood.  Those affected make motor movements and vocalizations they cannot control.  Additionally, many have associated obsessive compulsive disorder, attention deficit hyperactivity disorder, dysgraphia and other issues.  Today's estimates indicate up to 3 percent (1 in 33) of all children may have Tourette's syndrome.  In spite of its high incidence, TS continues to be greatly misunderstood.  Although medication may help control the symptoms, as of yet there is no cure.  TSA of Texas, one of the largest Chapters in the country, is a 501(c)(3) non-profit organization.  We directly assist Texas area families and children in crisis, 24 hours a day, 365 days a year. 

Meet the Staff:  Cindy Sacks


Cindy Sacks

     Because the Tourette Syndrome Association of Texas is blessed with hundreds of hard-working and dedicated volunteers -- from our Board to our support group leaders; from Camp physicians, counselors and ancillary staff to Tee-Off, Gala and Targets for Tourette's Chairmen and to many, many other volunteers -- we are able to maintain a very small staff of only two full-time employees and one part-time accountant.  


     Most everyone is very familiar with Sheryl Kadmon, RN, TSA of Texas Executive Director, as she travels the state for Educational In-Service, ARD support, support group meetings, holds endless phone meetings, and so much more.  Our other staff person is Cindy Sacks, Director of Programming and Development -- and the "magic fingers" behind those thousands of emails we answer!


     Cindy first became involved with TSA of Texas, as so many of us have, when she called Sheryl Kadmon decades ago to seek help for her two sons with TS, ADHD, OCD and other issues.  Those sons are now long-grown (ages 26 and 23), but Cindy remains dedicated to TSA!  At first, Cindy did small volunteer activities, but after selling a direct-mail marketing business 13 years ago, she began working part-time and finally full-time for the organization. Promoted at the end of 2012 to her current title, Cindy not only answers those emails, but helps edits this newsletter, plans events such as Museum Day, Holiday Tree and parties, maintains the web page and Facebook, applies for grants and other funding, creates and updates all forms and non-educational materials,  works on design and layout for events, manages auction for Gala -- and lots, lots more!  


     In addition to her two sons, Cindy has been married for nearly 32 years to Howard and has two adorable Standard poodles, Jean-Claude and Maksim.  


     Want to make Cindy happy?  Read this newsletter!  Play golf at Tee-Off, purchase tickets for Gala, round up a team for Targets for Tourette's!  Link your Randalls, Tom Thumb or Kroger cards for donations!  Solicit items and certificates for Gala!  Make a donation of any size via PayPal, check or credit card.  Get involved or stay involved with TSA of Texas!  (This newsletter tells you how to do all of these -- and more!)


     Because of YOU and all of our TSA of Texas family, Cindy has "the best job in the world.  I love what I do, the people I meet and the incredible good and important work this organization does!"

In This Issue
Meet the Staff
Tee-Off for Tourette's
Grants Awarded!
Ask the Expert
Bullying Prevention Month
Rio Grande Valley Marathon
Tri for Tourette's singlet
Save the Dates
Museum Day
Calling Young Artists
Link your Grocery Cards!
Good News!
Help Find the Genes for TS
Physician Referral List
How Can TSA of Texas Help You?
How Can You Help TSA of Texas?
Join our Mailing List!

Texas Hotlines

Houston:  281-238-8096

Toll Free:  866-894-8686
Emergency Pager: 281-932-0632

Quick Links


Find us on Facebook

Support Groups

All support groups are FREE of charge and have supervised fun for kids with TS and their siblings while adults meet separately.  TSA of Texas has support groups in:

To start a support group in your area, please contact us toll free at 866-894-8686. 

19th Annual Tee-Off for Tourette's Golf Tournament - October 28th


Support Your Children and the TSA of Texas!  


Grab your well-used clubs or dust off your old ones!  

We still have room for YOUR 4-Person Team or Individual Golfers on 

Monday, October 28 at Canongate at The Woodlands - Panther Trail Course.  


Our 19th Annual Tee-Off for Tourette's includes lunch, golf, dinner, auction and awards -- and a fabulous day on a premiere golf course.  Proceeds from Tee-Off help TSA of Texas fund our many programs and activities throughout the entire state.



Not a golfer?  Cash donations of any size are always welcomed or a few sponsorships are also still available.  Join the fun -- come in the evening for dinner and auction -- only $25 per person.  

Tee-Off for Tourette's  Chairpersons:  Barbara and Daryl Brister 
darbar4@comcast.net or 281-395-5392 



Tee-Off 2013.4 Tee-Off 2013.3 Tee-Off 2013.2

THANK YOU to The Gordon Hartman Family Foundation and 
The Brad Cohen Tourette Foundation for Their Support!

TSA of Texas is honored to have recently received grants from 


The Gordon Hartman Family Foundation





Brad Cohen Tourette Foundation


 Please join us in thanking these Foundations for their generosity and support!


Ask the Expert

How to Best Access the LSSP for Your Child with TS                     By Sandra Buffolano, LSSP

Sandra Buffolano and daughter Lauren -- who has TS.  
Photo courtesy of SUZI ISSA


The Licensed Specialist in School Psychology (LSSP) can play many roles in your child's school career. In order to provide your child services, they do require permission from you in writing. This is called an "Informed Consent" and this form will need to be signed by you before an LLSP can observe or work with your child directly. If continued psychological services are needed for your child's program of 504 or Special Education, the LSSP will help determine this through related services procedures.


Here are some common roles that I provide as an LSSP:


Observation of tics: If trained in the identification of tics, the LSSP can observe your child to help in logging the frequency of tics during a particular time period (such as 30 minutes or one class period) and identifying what appears to be new, or reoccurring tics. As a parent, you may need to spend some time teaching the LSSP about your child and what his or her tics look like at home. It would also be helpful to supply the LSSP with literature about tics and TS.


Physician liason: There are times when outside physicians, counselors, or psychologists would like to speak to school personnel or obtain forms or information from the school. The school counselors and LSSPs are often good resources to outside providers. This will require a Release of Information form before school personnel share information to outside providers.


Psychological services and counseling to student: Students with TS may receive psychological services and counseling through the school counselors or LSSPs. This is usually determined to be helpful but there is a balance between missing class and gaining benefit. Students who have very difficult symptoms of TS may need to know that there is a mental health person to talk to and to be their advocate at school. Sometimes they need to be reminded that they play a role in helping teachers understand what their TS is about. If a student is being bullied, the LSSP may work with administration to help create solutions.


Teacher and Administrator consultation:  Tourette's syndrome is a very complicated neurological disorder. Education of your child's particular symptomology is a key piece in the educators' understanding of his or her needs at school. Using information provided by the Tourette Syndrome Association is very helpful for educators. I encourage them to register as educators on the national site at tsa-usa.org.


Providing resources: One of the best resources for school staff is the video: "I Have Tourette's Syndrome, but Tourette's Syndrome Doesn't Have Me." I ask all teachers and administrators to also read basic literature from the Tourette Syndrome Association and to ask questions. I also stress that each child with TS is not like any other child with TS.


Bridging parents and educators: Having a child who has TS can be a very rewarding and challenging experience. This is true for both parents and teachers. The LSSP can sometimes provide a valuable bridge of communication and understanding for all. If you find that you are in need of services described above, write an email or letter to the school asking the Licensed Specialist in School Psychology to contact you.


A special note: All LSSPs are not as well versed on TS as I am.  
I have had 25 years of working with our special kiddos. I learned because children, parents, and TSA personnel were patient in teaching me. I have also raised a delightful daughter with TS (Lauren, pictured above) and thus have "lived it personally." Please be helpful and patient with your LSSPs and all school personnel. Be their resource until they can be yours.  [Call the TSA of Texas office at 281-238-8096 to request materials to share with your LSSP, teachers and School District.]




SANDRA BUFFOLANO is a licensed specialist in school psychology in a Texas school district and has 25 years of experience with Tourette Syndrome.  Sandy also authored Coping with Tourette Syndrome: A Book for Kids with Tic Disorders. It provides 40 activities to help children, parents, and counselors manage school, home, and community issues.  Available from New Harbinger Publications, 2008, or an amazon.com.  

October is National Bullying Prevention Month

 "The End of Bullying Begins with Me" is the message during the National Bullying Prevention Month in October. PACER created this national campaign back in 2006 and the National Tourette Syndrome Association has been a partner because that believes that this is the time for communities to unite nationwide to raise awareness of Tourette Syndrome and bullying prevention through events, activities, outreach, and education.



From the National Tourette Syndrome Association:


Even one child being bullied anywhere is one too many, but reports indicate that over 160,000 children stay home from school every day due to bullying issues!  Often families affected by Tourette Syndrome contact TSA to share their experiences and seek support. 
It is heartening to learn that new and hopefully more effective approaches are being developed and implemented to address this important issue affecting our children and our schools.  Educators and clinicians are increasingly working to cultivate school cultures that won't put up with bullying behavior. Moreover, fellow students are being encouraged to step up and do what they can to end bullying among their peers. Opportunities to help our young people develop leadership skills in this process sound promising!
Tourette Syndrome Association offers a changing and growing array of Bullying Prevention resources for your consideration. We hope this material will provide you with ideas and strategies to effectively manage this issue. Simply put, bullying is not acceptable.  


 Access Bullying Prevention and Strategies from National TSA here.  


Rio Grande Valley Support Group Goes the "Extra Mile"!


Spearheaded by Natalie Armendariz, the Rio Grande Valley TS Support Group turned the Fiesta Marathon in Elgin, Texas, on Sunday, October 13, into a marathon of  TS support, awareness and fundraising!  With nearly 30 people in attendance, all in bright neon shirts, they could not be missed and many people stopped them to learn more about Tourette's. 


As Dr. Christina Johnson, RGV Support Group Leader, proudly notes, "We have some pretty fast runners in our group.  Natalie's husband, Alonso, finished second in his age group for the half-marathon at the blistering pace of 10 minute miles!  David J., yes my son, finished 3rd in his age group (12-15), and Katy T. finished 3rd in her age group (1-11).  I am so proud of everyone who came out to support us.  We had a ton of people drive all the way from Rio Grande City (1 hour) to support us, all in their bright neon shirts.  You could feel the love.  I cannot thank Natalie enough for organizing this, and for all of her hard work in pulling it off: t-shirt orders, colors, designs, delivery, etc.   She made many trips into McAllen from Rio, and she participated in the half-marathon.  She deserves a medal!"


We agree, Christina!  Natalie not only recruited other runners for the Fiesta Marathon itself, she also raised funds for the group via donations, a Silpada Jewelry sale, a bake sale and more!  Nearly 30 folks from the group were there on race day -- participating, supporting other runners and spreading awareness for TS.  We think the whole RGV group deserves a medal!


Learn more about the RGV Support Group:  Christina at cpj.mission@gmail.com.


HURRY - Order a Tri for Tourette's running singlet!
Tri for Tourette, a fundraising initiative for the TSA of Texas, was recently started by Michael Conway, current TSA of Texas President and Camp Director of Camp du Ballon Rouge. Michael will be raising funds for our Camp by racing IRONMAN triathlons.  
TriForTS.SingletA very limited number of specially designed Tri for Tourette running singlets are available for sale at $35, with a portion of the cost coming back to TSA of Texas.  These singlets are made of sublimation quick-dry polyester and look and feel great whether you are running a Marathon or errands.  

Your purchase of a singlet can help support our FREE children's camp and support Michael at IRONMAN Texas (May 17, 2014) and future events.  We know it will help Michael get through the 13+ hour race if he sees you    wearing the Tri for Tourette logo in the race audience.  

Contact the TSA office at 281-238-8096 or  TouretteTexas@aol.com with the number of 
singlets and sizes desired.  Have your credit card # handy.
Orders MUST be received and paid for by 5pm on Wednesday, October 23 -- no exceptions!  
Save the Dates


Wednesday, October 23 -- 
"Halloween Holler" party at Gulf Coast/Southeast Texas Support Group, Memorial Hermann Southeast Hospital, 630-8pm.  Contact TouretteTexas@aol.com for info and to RSVP.
Saturday, October 26 -- 
Tyler-Longview Support Group:  Speaker: Lloyd Mercer, MD, on "Medications used to treat TS."  ETCIL, 1:00 - 2:230pm.  Contact TouretteTyler@gmail.com for info and to RSVP.
Saturday, October 26 -- 
FREE tickets to the San Antonio Scorpions Soccer game, 7pm, Toyota Field, San Antonio. Contact TouretteTexas@aol.com for info.   
to the San Antonio Scorpions and Harvey's Heroes/Harvey E. Najim Family Foundation
  for providing free soccer tickets to TSA of Texas all season long!


Monday, October 28 -
Tee-Off for Tourette's--19th annual Charity Golf Event. Canongate at The Woodlands -- Panther Trail Course. Teams, single golfers, sponsorships, dinner/auction only tickets all available. Contact 
darbar4@comcast.net for more information. 


November 10 & 23 -- 
Museum Day -- FREE tickets to various Museums around the state! Attend events in Houston, Dallas, Lubbock, San Antonio or Tyler.   Watch for other city/dates soon.  You MUST RSVP -- see specifics for each city in the newsletter section below!


December -- 
Holiday Parties!  Festive gatherings at Support Group meetings around the state.
Contact your support group leader or email Cindy at tourettetexas@aol.com for more information.


December 3 through January 2 -- 
Holiday Tree Displays! Visit the lobby of the Houston Museum of Natural Science to see live trees decorated by non-profits in our area -- including the "Shimmer and Shine" tree from TSA of Texas. Trees are on display through 1/2/2013. Find our tree photos on Facebook after 12/5  


Note these SPECIAL EVENTS in 2014! 


January 30, 2014  
TSA of Texas GALA Fundraising Event: "
Shimmer and Shine: Shedding Light on Tourette's Syndrome."  
Our major fundraiser for the entire state. Reception, entertainment, dinner, Live and Silent Auction. Chairmen:  Margaret and TJ Farnsworth; Honorees Dr. Ian J. Butler, Randy Roach and Kathryn Hargrove.  Reserve your Table or Tickets NOW to be included in our mailed invitation. Tables of 10 start at only $2,000 and Individual Tickets start at $200.  CLICK HERE for RSVP form.
Cash donations of any size are always welcomed.  
Items and certificates for Silent Auction are also being accepted.  CLICK HERE!
Your support is very much appreciated and is very important to help us continue our mission and programs throughout the state. 


March 21, 2014  JOIN US at our third annual: Targets for Tourette's -- Texas fun!

Clay shoot event, dinner, live Auction and live entertainment. Teams of four shooters, individual shooters and dinner/dance only tickets. Visit our 

T4T page for photos and details from 2013.  Email Cindy at TouretteTexas@aol.com with your mailing address to receive your 2014 invitation via mail.



March 28 - 30, 2014

12th Annual Camp du Ballon Rouge
Visit our Camp page for more information. Applications for our 2014 Camp will be available on-line in December, 2013 and MUST be completed and approved by the TSA of Texas office for all children attending, whether new or returning campers.  FREE to Texas families -- thanks to the funds raised at Tee-Off, Gala and Targets for Tourette's, as well as the volunteered time and incredible dedication of our dBR physicians, nurses, counselors and staff.


TSA of Texas Museum Day Specifics -- read carefully!




TSA of Texas is sponsoring FREE Museum outings for your family in November. Choose from any one of these locations and RSVP by carefully following the specific instructions listed. 



Dallas:  Perot Museum of Nature and Science - Sunday, November 10; 12 noon start

2201 North Field Street, Dallas, TX  75201    http://www.perotmuseum.org/

Explore the 11 permanent exhibit halls, including the Moody Family Children's Museum, Lamar Hunt Family Sports Hall, Rees-Jones Foundation Dynamic Earth Hall and more. 

RSVP to TouretteTexas@aol.com with your name, cell #, total number of people attending and ages of all children by October 31.


Houston: Houston Museum of Nature and Science -- Sunday, November 10; 12 noon start

5555 Hermann Park Drive, Houston, TX  77030    www.hmns.org

Explore regular exhibits and choose either a Giant Screen Theatre movie (formerly IMAX) OR the Butterfly Exhibit OR a Planetarium show. 

RSVP to TouretteTexas@aol.com with your name, cell #, total number of people attending; ages of all children attending AND your choice of Giant Theatre/Butterfly/Planetarium by November 1.


Lubbock: Science Spectrum Museum -- Sunday, November 10; 2:00 pm start

2579 South Loop 289,  Lubbock, TX      www.sciencespectrum.org

Explore regular exhibits, attend an OMNI film and enjoy snacks with the group. 

RSVP to Pam at pzweaks@yahoo.com or 806-438-6601 with your name, cell #, total number of people attending and ages of all children attending by November 4.


San Antonio:  Morgan's Wonderland - Sunday, November 10, 11:00 am start

            5223 David Edwards Drive, San Antonio, TX  78233     www.morganswonderland.com/

Enjoy the unique experience of Morgan's Wonderland: Pirate Playground, The Wharf, Sensory Village, Wonderland Express & Depot, Off-Road Adventure Ride and more. FREE PARKING.

RSVP to TouretteTexas@aol.com with your name, cell #, total number of people attending and ages of all children by November 1.


Tyler: Center for Earth & Space Science Education - Saturday, November 23, 11:00 am start

            Tyler Junior College, 1411 E. Lake Street, Tyler, TX 75701   http://www.tjc.edu/cesse/

Explore regular exhibits, attend a Planetarium film and enjoy snacks with the group.  Specific film title and time to be provided after 11/1.

RSVP to TouretteTexas@aol.com with your name, cell #, total number of people attending and ages of all children by November 9.



For all RSVPS, remember to include your first and last name; the Museum/city you wish to attend; your email address and phone number; the number of adults and the number of children (with ages) attending.  Parents and children invited; immediate family only. Unless otherwise noted, there may be a cost for parking.  You will receive details about your event in a confirming email.  If you call the TSA office to RSVP (281-238-8096), please be sure to include all the information requested above.

Calling Young Artists!


 We invite our young artists to help us with decorations for our November Holiday Tree and January Gala! 


1.  On an approximately 4"x4" piece of white cardstock, have your child draw a self-portrait using colored pencils.  If possible, keep a 1/2" white border on all edges.  Sign the drawing with first name, age (if desired) and city.

2.  If you are truly up for fun, also have your child create the frame for the portrait.  Here's how:  Paint popsicle craft sticks black and create a crossed-edge border.  Glue colored glitter stars or "jewels" on the frame.  Insert your child's drawing in the frame and secure with glue and more glitter stars on the back.  SEE PHOTOS FOR REFERENCE!


3.  Mail colored pencil portraits (and frames if created!) to TSA of Texas, 3919 River Forest Drive, Richmond, TX  77406 to arrive no later than November 22nd.  


We will post photos on Facebook of our Holiday Tree, showcasing our children's ornaments.



Start planning for and submitting your original art, poems, stories for inclusion in our January Gala Program.  Those whose arts/writings are included will receive a copy of the Program after Gala.  Email Cindy at TouretteTexas@aol.com for details -- deadline is 1/12/2014.  

Our Gala theme is "Shimmer and Shine: Shedding Light on Tourette's Syndrome."  If possible, your submissions should reflect this theme.

Support TSA of Texas While You Shop!



 If you purchase groceries at Randalls, Tom Thumb or Kroger,

you can help TSA of Texas every time you shop!


At Randalls or Tom Thumb, ask the cashier or Courtesy Booth to link your Rewards Card and future purchases to Tourette Syndrome of Association of Texas at  #2493.  That's it!  Our number stays linked to your card unless you cancel it.  


For Kroger, grab your Kroger Plus card and go to www.krogercommunityrewards.com.  Sign in and go to My Account and then to Account Settings.  Once there, look to the right and edit "Community Rewards" by putting in #82092  (Tourette Syndrome Association of Texas).  This is a NEW system for Kroger, so you MUST re-link this year -- they no longer scan bar codes.   


This new system is so much easier than you think.  However, if you need further assistance, either ask the Kroger Courtesy Booth to help, or email Cindy at TouretteTexas@aol.com for further instructions.  


This is an incredibly easy way to support TSA of Texas!  

Ask you family and friends to link their cards also.  There is NO COST to you to do this 

and TSA truly appreciates every penny we receive!

"Good News" from Our Families 
Brenton and his proud parents
Brenton B. of Katy graduated from University of Phoenix on September 21, 2013, with a Bachelor of Science degree in Business Administration.  Brenton is the oldest son of our Tee-Off for Tourette's Golf Chairmen, Barbara and Daryl, and has been a Camp Counselor and a very active volunteer for TSA 
for many years.   
Sarah G., age 12 from Fort Worth, was Knighted for going above and beyond working with
Sarah being Knighted
seniors. The Knights are a group of young people that are chosen by their peers.  United with groups all over the world, they travel to to places that are in need of help.  The organization is church related and Knighthood is handed down.  Sarah's great-great 
  uncle was knighted in England by the Queen.The Knights have gone to England, Australia, Mexico and all over the US to build orphanages and work with the elderly. Additionally, Sara's soccer team,1st in their district, embrace and support Sarah.   


Macy H., age 13, from Huffman, TX has started the school year out with great reports from all teachers for participation and classwork!  
Macy passed ALL of her classes for the first 9 weeks grading period, including 4 A's and 3 B's.  
Her first period (Texas History - which is her favorite subject) teacher said, "I love having Macy in my class.  She has a great personality and keeps me on my toes!"  Macy is also enjoying dance class in school, and plans to try out for the Dance Team in high school.  She is a very creative soul, and continues to excel in her Drama Club.


Markus Horner



Markus Horner reports that his book "Consistently Persistent, Living with the Tourette Trifecta" is now available on Amazon. It is his life story about how he coped -- undiagnosed until the age of 43 -- with Tourette's syndrome, OCD, and ADHD. The book is written with adult readers in mind.   





Kirk L. of Dallas was one excited young man after his school's Homecoming!  Although the score did not go in his favor, he played his heart out the entire game. The best consolation was that Kirk was crowned Homecoming King that night at the game! Even better is that a group of  lower school kids have formed "a sort of fan club" for him. He adores children. Kirk's mom Marcie reports, "Kirk was so very, very happy that he talked to me until 1am about the game and the excitement of being crowned Homecoming King. My heart swells when I see him this happy." 
Tyler ready for work
         Tyler M., 17, from Sugar Land is enjoying an internship with 
         Texas Instruments and keeping busy with college applications. 
         Tyler has been a TSA of Texas Youth Ambassador for many years 
         and has taught both children and adults much about living with TS!






Charles J. Hart, past President of TSA of Texas, is now an instructor of Finance and Accounting at North American University in Houston.  Charlie, an MBA from Rice University, is also a 
Principal of Business Owners Network, LLC.



Ian H., age 12, of Tomball, earned all A's in a Pre-AP, Accelerated Program.   Ian will be 

testing for black belt in Tae Kwon Do at the end of October and is playing soccer at the 

YMCA.  His family is proud of his hard work to do his best. 



Sterling S
. of Katy was invited to attend and compete in the First Shaolin Temple Cultural Festival in Los Angeles, CA, in October.  He was honored to compete with well over one thousand Kung Fu practitioners from around the world.  Sterling won first place in his age division with the Shaolin staff form -- which unfortunately had to be forfeited due to a technical error with his staff.
Nonetheless, Sterling accepted this decision better than most grown men.  His "Shifu" was amazed at his honorable reaction, noting "He was first place in his heart -- and the judge was stubborn."  
Sterling's mother states, "Maybe having Tourette's has made it easier for Sterling to accept this, because life sometimes throws unfair curve balls -- even when we have done nothing wrong to deserve it."  
We are extremely proud of Sterling for his incredible accomplishment and especially for his amazing wisdom! 


Alexander T. from Garland, TX is really excited to be a Freshman at Texas Tech University 
this Fall.  He received a community scholarship based on commendations for his compassion and support to high school peers with disabilities and community volunteer work. 



Sam W., age 12, from Lindale, had an exciting summer and beginning of the school year!  Sam and his older brother, Mason, were ushers in their sister,Laura Leigh's, wedding!  Sam was excited to be able to walk his grandparents and mom down the aisle.  Sam also made the 7th grade tennis team at Lindale Junior High, and competed in a couple of tournaments already!  We are very proud of Sam!

Sam.Tennis   Sam.Wedding



Sean Wolfson umpired for the Sugar Land Skeeters in September, another huge step to fulfilling his dream to become a pro umpire. 





Katy and Pipsqueak Plop


Katy Y., age almost-10 of Katy,has a new pet -- a corn snake!   Katy's mom notes, "Katy has wanted a snake since pre-school (they had a special group come to the school and teach the kids about snakes - which led to us having a birthday party one year with the same snake people - it was a hit).  Katy wanted a snake then and we said no - finally after all these years she has not relented so we thought maybe it's not a passing phase and she's ready to take responsibility!  Here's "Pipsqueak Plop!"  








Leigh-Andrea Z., TSA of Texas Youth Ambassador, met with Congressman Joe Barton to spread awareness about Tourette's.  As part of her presentation, Leigh-Andrea had Congressman Barton's assistant attempt to write the Pledge of Allegiance while ticcing -- always an eye-opener to those without TS.



Would you like to share YOUR "good news" in our next e-newsletter?

Email information and photos to TouretteTexas@aol.com.  Deadline for our next issue is 12/30/13.

Help Find the Genes for TS
The Tourette Syndrome Association International Consortium for Genetics (TSAICG) has identified several chromosomes that may contain genes for TS. The TSAICG is collaborating with the National Institute of Neurological Diseases and Stroke (NINDS) and TSA to continue genetic studies and confirm these findings. 

But to do so, we need to enroll 3,000 people who have TS.

Taking part in the study involves answering questions about your tics and related symptoms. Or, if you are the parent of a youth with TS who is 6 to 17 years old, answering questions about your child's symptoms. If your answers to these questions qualify you for the second part of the study, you will be asked to donate a sample of blood for genetic analyses.

To learn more about this research, please visit www.findTSgenes.org.   

Physician Referral List

TSA of Texas maintains a list of Texas physicians who are experienced with TS.  To receive a PRL for your area, please email TouretteTexas@aol.com with your city location.  We are also seeking to expand our list, particularly in smaller cities, so if you have a physician who does a great job dealing with TS, please email us his or her contact information.  PHYSICIANS:  if you are interested in learning more about TS or being considered for our PRL, please contact Sheryl Kadmon, Executive Director, at 281-238-8096 or 866-896-8484.

How Can TSA of Texas Help You?

TSA of Texas is here to assist families dealing with TS throughout the state.  We offer:

  • EDUCATIONAL PRESENTATIONS for physicians, school districts, students, parents and the community.   
  • INFORMATION DISSEMINATION via packets, brochures, web site downloads, email and telephone conversations.  
  • LIBRARY of DVDs, videotapes and books. 
  • REFERRAL to physicians, therapists, community services, and state and county agencies.  
  • ADVOCACY through assistance with ARDs, IEP, 504 or OHI classification.  
  • SUPPORT GROUPS throughout the state.  
  • CHILDREN'S WEEKEND camping program "du Ballon Rouge."
  • FAMILY ACTIVITIES such as baseball games, museum visits, swim parties, theater outings and more. 
  • SPECIAL FUNDING sources such as the Kenneth H. Davis Family Assistance Fund and Fund A Need. 
  • ...and much, much MORE! 

Call TSA of Texas at 281-238-8096 (toll-free 1-866-894-8686) or email TouretteTexas@aol.com for more information.  Visit our web site at www.TouretteTexas.org.  If you have needs other than those listed above, please let us kno w and we will do our best to help. 

How Can You Help TSA of Texas? 

TSA of Texas funds its services through private donations, fundraising events and grant support.  We receive no state or federal funding.  You can help TSA of Texas and support Texas families dealing with TS by:

  • ATTENDING our fundraising events (e.g., our major Gala held each January, Targets for Tourette's Sporting Clay Shoot in March; or our Tee-Off for Tourette in October),
  • DONATING items or gift certificates for Silent Auction at either Gala or Tee-Off,
  • ORDERING a tribute card sent in honor of someone's special event or sent in someone's memory  
  • CONTRIBUTING via cash, check or credit card to our general fund or a support group of your choice
  • MAKING A MATCHING GIFT through your employer.  Check if your company does this!
  • DESIGNATING TSA of Texas to receive 10-100% of your final sale price the next time you list something on EBAY.  Or look for listings that support TSA of Texas when you shop at the
     TSA of Texas eBay Giving Works page.
  • LINKING your Randall's or Tom Thumb Remarkable Card to charity #2493, or your Kroger Plus Card to #82092 (see article above)
  • MAKING PAYROLL CONTRIBUTIONS via Community Health Charities. CITY OF HOUSTON EMPLOYEES - use code #1314

All donations are tax deductible.  Learn More>>  

Bonne Nouvelle is published quarterly by TSA of Texas.  It is co-edited by Sheryl Kadmon & Cindy Sacks.