Welcome to OneVoice! We hope that you will enjoy staying connected to the world of Save One Life by reading the stories below.
We thank our 2013 Platinum sponsor FFF Enterprises and 2013 Gold sponsors ASD Healthcare, Octapharma and LA Kelley Communications for helping to make this a great year thus far!
This summer we are raising $7,500 to send 75 children to hemophilia camp. If you would like to put a smile on a child's face, click here to make a donation.
Thank you for all your support! We wish you a safe and fun-filled summer!
The Team at Save One Life
|Our Spring Celebration venue |
Save One Life celebrated its third annual spring event with 105 guests at The Exchange Conference Center, an elegant historic venue on Boston harbor. Guests represented the hemophilia community in full range--from pharmaceutical companies to specialty pharmacies, from patients to families.
Laurie Kelley opened the evening with a story about unexpectedly finding a shoe under her bedroom bureau while getting ready for the event. Read more
|Chris on the summit of |
Mt. Aconcagua holding a picture of
Brian from Zimbabwe
2013 Inspiration Award Winner
Save One Life board member Chris Bombardier is a man with a mission--to be the first person with hemophilia to climb the highest mountains on each of the seven continents. In 2011 Chris conquered Mt. Kilimanjaro (19,341') in Kenya; this past winter he summited Mt. Aconcagua (22,841') in Argentina; and on July 10 he made it to the top of Mt. Elbrus (18,510') in Russia!
Chris writes: "Because I've been so lucky in life, I want to give back in a way that others with my condition can't. I want to bring awareness to those less fortunate than I."
Save One Life presented Chris with its 2013 Inspiration Award at the Spring Celebration. Surely Chris is an emerging leader in the hemophilia community, demonstrating that no mountain is too high to overcome!
Follow his adventures here.
Save One Life display at
Richard Gaton, Edward Stiefel, Jr. and
2013 Sponsor of the Year
Richard Gaton, President of BDI Pharma, met Laurie Kelley in 2008. A year later BDI Pharma was sponsoring its first 10 beneficiaries, adding 5 in 2010, and yet 5 more in 2011 for a total of 20. We appreciate BDI Pharma's enthusiasm for our mission, which is shared with employees, clients and visitors to the office with this very attractive display.
Kunnamkulam Chapter, 2013
Usha Parthasarathy accepting award for Kunnamkulam Chapter
Program Partner of the Year
The Kunnamkulam Chapter of Hemophilia Federation (India) is
located in the state of Kerala in southern India, and joined Save One Life in March of 2010. This very active chapter, with more than 350 registered patients, manages the Save One Life program for 50 beneficiaries.
Our India Program Coordinator, Usha Parthasarathy, was present at the Spring Celebration to accept this award on behalf of the chapter. We also showed a video of Usha visiting the chapter , speaking with families and making a home visit.
|Kunnamkulam 2013 Program Partner of the Year|
|Barry Haarde at the halfway point of his ride |
Wheels for the World 2013
Fast and Furious!
Last year, 47-year-old cyclist Barry Haarde became the first person with hemophilia to bike across the USA. Starting in Ashland, Oregon, Barry cycled 3,667 miles through eleven states and Canada to arrive in Portsmouth, New Hampshire 50 days later. He dedicated each day of his ride to a person with hemophilia who lost his life to hepatitis or AIDS. This included Ryan White, the teenager who became the face of HIV/AIDS in the late 1980s when he was expelled from school.
This year? He did it again--3,456 miles in just 30 days!
"Not only have I survived, I am still able to maintain the physical health and conditioning required to ride a bike across America. I can at least honor our lost and help those who still struggle by dedicating my ride to them." Read more.
THANK YOU, Barry, for raising $37,600 for Save One Life.
Wheels for the World Gold sponsor
|Michael Attivor surrounded by his family in Accra, Ghana |
Congratulations to Ghana, which has become Save One Life's 12th program country!
The Ghana Haemophilia Society (GHS) was founded in 2005 by Martin Boakye, father of a son with hemophilia. The organization has been growing slowly but steadily, with 50 registered patients. It is estimated that 3,000 people with bleeding disorders live in the country.
Campers celebrating at Camp "Yes, I Can!" in the Dominican Republic
Send a Child to Hemophilia Camp!
Hemophilia camp is often the highlight of a young child's life.
For a child living in a developing country, it may be the only time he receives donated factor to prevent bleeds, freeing him to enjoy the activities of childhood.
Save One Life's "Smile on Summer" campaign is raising $7,500 by July 31 to help send 75 children to camp in the Dominican Republic and Romania.
Adriana Henderson, a program partner for Save One Life and founder of "Camp Ray of Hope" in Romania, writes:
"Camp is a week long and we invite about 40 kids from all over the country. It's free of charge, and we also provide free medicine and factor. It's a regular camp with activities like soccer, basketball, swimming, horseback riding, arts and crafts, a talent show and birthday parties. The kids are free to do everything that normal children do."
Hemophilia camp is an opportunity to receive medical care, eat nutritious food, learn how to prevent and take better care of bleeds and discuss the psychosocial challenges of having a bleeding disorder.
Above all, it's the chance to enjoy being with other children with hemophilia, and PLAY!!
Please put a "smile on summer" for a deserving camper!
Help us raise $7,500 by July 31. Make your donation here
S. Hari Ramanan (age 8)
We warmly welcome these new sponsors in April, May and June
Dean and Bronwyn Grant
Aaron and Amy Martin
Matrix Health Group
and James Singer
Momina Zia of Pakistan
was sponsored by the
Squellati family in June
We thank these current sponsors who took additional beneficiaries:
Michael and Jean Caggiano
We thank these dedicated sponsors who have supported beneficiaries for five years
Peter and Laura Baay
Tim and Emily Collins
Marlborough Gallery, NYC
Robert and Barbara Maunus
Mark and Susan Phillips
Richard and Jean Roberts
I am so thankful to have you as the sponsor of my son. It's a treasure for me to have a sponsor like you who's very kind and has a big heart to help people. We always pray for your health and more blessings.Thank you very much, and I also thank Save One Life!
Mother of John Ronnel
John Ronnel Maranan
We are glad to inform you that two Save One Life beneficiaries, Rajiv Pandiya and Ram Prabhu, received very good marks in the recently declared 10th Standard results. We are very thankful for your support towards these unfortunate children. Your support has indeed encouraged them to do well in school. Thank you very much for your efforts!
Dr. R. Anburajan
Tirunelveli Chapter, India
We sadly announce the very recent passing of two beneficiaries:
Philip Lapad, age 20, of Cagayan de Oro, Phliippines of a gasro-intestinal bleed on June 28
Vipal Gajera, age 33 ,of Rajkot, India, of septicemia following a fracture and a brain bleed on June 24
Remember, if you would like to receive your 2012 annual update of your beneficiary, you need to let us know! Just click here to leave a message with Tricia Sico.