Dear Annual Conference Attendee 

Thank you for attending our 29th Annual "Real Lives" Conference in Worcester on March 23. We hope you were inspired as much as we were, and that you learned a thing or two that will help you in your daily lives! 

 

We were amazed by all the "Real Lives" on display at the conference. How about  Rory Callaghan, this year's self-advocate keynote speaker who talked about his past, present and future, including his years at Wellesley High School, where he has read 7 Shakespeare plays, wrote a 26-chapter novel and had his artwork displayed in town-sponsored show (pictured below with Grant Hightower, his teacher's assistant for four years).

  

 

Or John Anton (below at the Legislative Advocacy table), just back from a triumphant 2-month stint in Washington, D.C., getting a standing ovation after receiving the Allen C. Crocker Award of Excellence, the MDSC's highest honor.

 

  

Or, all the self-advocates living their Real Lives by manning their own exhibitor tables or lending a helping hand - Tracey Newhart with Tracey's Kitchen, Chris May of Chris May Photos, Guitarist Ricardo Coloma who performed at the Awards Luncheon, Legislative Advocate Ashley Wolfe, Eve Skoletsky of Go Team 21 and Micah Lindsay of Reece's Rainbow.

 

 

But the day was not ALL about celebration. During the conference, of course, there were dozens of workshops led by regional and national experts speaking on a wide range of topics related to Down syndrome. None of this would have been possible without the generous support of our sponsors: Mass. Department of Developmental Services, Seven Hills Foundation, Massachusetts Developmental Disabilities Council, Boston Ballet Adaptive Dance Program and Alphagraphics Boston. 

 

There was also MDSC business to attend to. At the Annual Meeting (in the early morning pre-conference hours), Executive Director Maureen Gallagher delivered the Annual Report, covering highlights of the MDSC's accomplishments this past year and explaining the future direction of the organization. She expressed thanks to the many people who supported the MDSC this past year. (See the Annual Report Powerpoint slides here.)

The Real Lives Video by Beverly Beckham -- "Nothing's Gonna Stop Me Now (from living my Real Life)"
 

It was a thrill to honor three other remarkable individuals (in addition to John Anton) for their life's work of empowering people with Down syndrome and other disabilities to live their Real Lives: our Media Award to 'Chronicle' Producer Amy Masters; our Educator's Award to Maureen Blazejewski of The Learning Program; and our Leadership Award to State Rep. Tom Sannicandro. All three were recognized as true champions of people with disabilities. 

 

Ultimately, though, it may be those fun, feel-good moments that will be most remembered. And there were many of them:

  • Self-Advocates marching into the Grand Ballroom proudly hoisting their rally signs that proclaimed not only how they live their Real Lives now, but how they want to live it in the future (photo below).
  • The stunning video (here or above) put together by Board member Beverly Beckham, who every year for the past several has culled through hundreds of photo submissions and brought our conference theme to life.
  • Your photos on display! They captured the infinite ways that your loved ones with Down syndrome live their Real Lives and we tried to use them throughout the conference in as many ways as possible. (Below is a slideshow that includes photos that Beverly was not able to include in hers.)
  • The Coverize-Me Photo Booth, in which individuals, friends and families got to play out their Real Lives, and appear on the cover of our "Real Life Magazine." If you had your photo taken in the booth, you can find it here. Thanks to John Crookes for taking that on, and to our other volunteer photographers, Kyle Gendron and Jessica Dolly.

All in all, it was a magical day! Thanks for being a part of it! If you haven't already, please take just a few minutes to fill out our Evaluation Form. Please email the completed form to conference@mdsc.org. And, be sure to check out our Facebook page for more photos and all the latest...

 

It's My 'Real' Life - Celebrating the Very Real Lives of People with Down syndrome
It's My 'Real' Life - Celebrating the Very Real Lives of People with Down syndrome

 

Register Now for 17th Buddy Walk & Family Festival 

  

Building on the theme of this year's Annual Conference, the MDSC has officially launched our 17th Annual Buddy Walk & Family Festival, dubbed the "Walk for Real Lives." Teams can sign up and individuals can donate here.

 

The name, the "Walk for Real Lives," like our Real Lives Conference, stems from the "Real Lives Bill," the critical piece of state legislation that promises to give people with Down syndrome and other disabilities more control over the their funds and their lives. 

 

This year, we are pleased to report that some things remain the same, and some things are different. In the first category, we are thrilled to welcome back our lead sponsor, Verizon

 

In the latter category, you might notice a slightly different name. We felt that our previous name, Buddy Walk & Family Picnic, didn't quite describe the "festival" atmosphere and the variety of entertainment offerings - live performances, face-painting, music-making, climbing trucks, etc. - that our Buddy Walk now boasts. That is why it is now more accurately called the Buddy Walk & Family Festival. 

 

Second, in response to demands for more variety in the food offerings, we are launching a new lunch program. Rather than include lunch in the cost of registration, we are giving you more control over your lunch options. You can reserve a bagged lunch when you register for an additional cost, or you can buy food from private vendors who will be on site throughout the event. 

 

The MDSC Buddy Walk Program is New England's largest public awareness platform to promote acceptance and inclusion of people with Down syndrome. The Buddy Walk & Family Festival, our signature walk, takes place during National Down Syndrome Awareness Month and draws in 4,000 people to celebrate our community and support the important work of the MDSC. 

 

We ask that all walkers, ages 13 and up, strive to reach the $150 fundraising minimum by October 31st. Your fundraising efforts are critical to our mission and directly impact programs and services that provide hope to new and expectant parents, training to medical professionals and students, best practices to educators, opportunities for teens and adults, and a strong voice on Capitol Hill.
 
Take Action: Sign Our 'Real Lives' Petition Now 

 

Now you have an an easy, fun way to support one of our priority bills -- and the namesake of our Real Lives Conference -- the Real Lives Bill. 

 

With a few quick steps on your smartphone, you can send a strong message to your state legislators to pass this critical piece of legislation that will make a "Real" difference in the lives of people with Down syndrome. For you tech-savvy folks out there, the image above says it all. Just text REAL or real to the number 9 10 11, or use your QR Reader to scan the code above! 

Go here for further explanation.

 

The Real Lives Bill, sponsored by Rep. Tom Sannicandro, was the centerpiece of our Annual Conference last weekend. It  would change the way developmental services are delivered, by shifting the balance of power away from the legislature and into the hands of those actually using the services. For more information on the Real Lives Bill, see a Fact Sheet here. 

Complete Northeast Down Syndrome Ed Conference Archives Available Online

  

 

On Nov. 30 and Dec. 1, 2012, the MDSC hosted the first-ever Northeast Down Syndrome Education Conference in Burlington, Mass. More than 400 people from 25 states and 6 countries attended. 

 

The conference featured speakers from Down Syndrome Education International of the United Kingdom, widely recognized as the world's leading experts in Down syndrome education.

 

 

 

For a limited time, the complete recordings, including all 6 keynotes and 18 hour-long workshops are available for only $39.99 for those who attended the conference and $69.99 for non-attendees. These are professional recordings packed with useful information on all education-related topics for parents, educators, and others interested in best practices in educating students with Down syndrome. 

PURCHASE EDUCATION VIDEO SERIES HERE

 

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