Stollery Family Centred 
Care Network
Summer 2016- 
Family Centred Care Primer
Header with Logos

Patient and Family Centred Care Council
Do You Know Youth, Patients or Families who want to Give Back after Their Experience at the Stollery?
 
Are you a Staff Member or Physician interested in Furthering the Culture of Patient and Family Centred Care at the Stollery?
 
The Stollery Patient and Family Centred Care (PFCC) Council is now recruiting youth, families, physicians and staff. 
 
Since October 2009 the Council sets priorities and takes action on hospital wide initiatives to improve both hospital operations and the care of pediatric patients.   
For more information about the PFCC Council please view our 2014-15 Family Centred Care Network Annual Report.
 
We are looking for members who:
    • Work well in collaboration and in partnership with others
    • Are positive and supportive of patient and family centred care values
    • Share insight in ways that  others can learn from them
    • Respect the perspectives and opinions of others
    • See beyond their own personal experience
    • Speak comfortably in a group meeting setting
    • Can attend (in person / via phone) monthly Council meetings on the 4th Tuesday of the month, 6 to 8pm, September to June.

If you or someone you know is interested and wants to learn more about current and upcoming Council initiatives, please forward their contact information to Heather McCrady, Manager of Patient and Family Centred Care by August 12, 2016  at  heather.mccrady@ahs.ca or  phone: 780-407-7875



If you are referring someone, please share with them why you believe they would make a good addition to the Council.  Personally inviting them and acknowledging what strengths you see in them supports their engagement on the Council.   
 
Diversity of youth and family members is essential - we welcome applications from Aboriginal families those living in rural or distant areas, fathers as well as mothers, siblings and youth, and individuals with unique perspectives and family circumstances. 
 
We also strive to have Physicians and Staff represented from the different areas and professions of the hospital. 
 
"Our children have already paid; let's make sure we honor them and use these experiences to bless as many families, children, caregivers and healthcare professionals as we possibly can.  Our kids are worth it."
~ Council Family Member
 
The greatest strength of the Council is, "the enthusiastic commitment and collaboration of all the members towards a common goal."
~ Council Staff Member
Upopolis
Upopolis is a social network designed specifically for Canadian kids and teens ages 10-18 years with hospital experience.


Upopolis gives kids and teens a chance to connect with other kids/teens across the country that are going through similar experiences. 
Benefits include:
- a safe place to find support, encouragement and peer support. 
- access to reliable and accurate medical information so it is a safe place for kids and teens to access medical information about their own diagnoses 
- a chance to be creative, expressive, and in control 


Know someone interested in having a profile? Carley from Child Life at the Stollery can help you:
- review a pledge form with the user and a parent or guardian
- the user and their parent/guardian must both sign the pledge form and agree to following the guidelines 

 
Users must be signed up by Carley from Child Life. 


Stollery officially began inviting patients to signup on Upopolis at the beginning of June and we had our big launch party on June 29th. Tell me more! 




Helping Premature Babies Thrive with Family-Centred Care
New research hopes to show that everyone benefits when parents take on a greater role nurturing their premature babies in the hospital. Read more about how a new research project, funded jointly by Alberta Innovates - Health Solutions (AIHS) and Alberta Health Services (AHS) is being spearheaded by Khalid Aziz, MD and Jill Larocque, NNP to help families leave the hospital sooner with healthier preterm babies.




NICU Fun Run



4TH ANNUAL NICU FUN RUN 2016 AT GOLD BAR PARK 



fit_women_friends.jpg Come join us for a fun afternoon in support of the Stollery Children's Hospital Foundation, Neonatal Research and Education fund! 
Let's run/walk, kids can jump in a bouncy castle donated by Kanga Inflatables! Enjoy some post race snacks and fun times catching up with NICU staff and graduates! Everyone is welcome to attend! 


Sat Sep 17 2016 
Party starts at 1pm. Run/Walk at 3pm!


Location Gold Bar Park Edmonton. REGISTRATION IS ONLINE! 


Edmonton Parent 2 Parent for Resource - Rare Disease Foundation
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The Rare Disease Foundation (RDF) has partnered with local Parent Leads and the University of Alberta Medical Genetics Clinic to establish the 'Edmonton Parent 2 Parent' resource network!  
 
The Edmonton P2P resource network has been built for families and individuals impacted by rare diseases, disorders and those who remain searching and undiagnosed.   The Edmonton P2P network will be hosting monthly meet-ups for parents and individuals to connect, share and learn together in a positive empowering community.      
 
To officially launch the Edmonton Parent 2 Parent Resource Network, please join us for a fun family "Picnic in the Park" event in support of the Rare Disease Foundation.  
 
Picnic in the Park - Edmonton Parent 2 Parent 
Date:  Sunday, August 28, 2016
Time:  1-4 pm 
Location:  Ronald McDonald House, 7726 107 Street NW, Edmonton
 
All families and individuals are welcome to join us for light snacks, beverages and entertainment with "Music Together" for the children.  
 
 
The Edmonton P2P meet-ups will begin on Thursday, September 29, 2016 (7-9 pm) at the Ronald McDonald House.    
 
To stay connected with the Edmonton Parent 2 Parent resource network for meet-up dates, please join our email distribution list:edmontonfamilies@rarediseasefoundation.org 
 
For more information on the Rare Disease Foundation and join as a free parent member:  www.rarediseasefoundation.org
 
To connect with our Edmonton Parent Leads and many more families in Alberta impacted by rare conditions, please find us on Facebook as the 'Alberta RARE Families' group. 


CTV Edmonton recently ran a story on the Rare Disease Foundation. You can find that video here. 




Traditional Drumming Tea and Bannock
Everyone is welcome to enjoy traditional drumming with tea and bannock.

Where: Bernard Snell Hall
When: Thursday, September 22, @1:00-3:00 PM
   Thursday, December 22, @1:00-3:00 PM
In This Issue
Recruiting for Council
Upopolis - New For Youth
FI Care
NICU Fun Run
Rare Disease Parent Resources
Traditional Drumming
2014/15 Annual Report
Facebook
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Family Centred Care at the Stollery

At the Stollery Children's Hospital families, staff, and physicians work together on many initiatives such as:

 

- Sharing family stories at:

  • New staff orientation
  • Education of health professionals 
  • Grand Rounds
Reviewing and providing input on:
  • Policy and procedures
  • Educational materials for families
  • Design and improvement of facilities and services
- Supporting other families through Peer Support opportunities



- Participating in the selection of new senior level staff and physicians 


- Bringing Wifi to patients and families on the units


- Research



- Serving on the Family Centred Care Council



- Serving on the NICU Family Advisory Care Team



- Serving together on other committees and special projects



We are making ripples everyday and those ripples have a growing effect. We are getting more requests than ever to hear from families and patients as advisors, partners and consultants.  If you or someone you know would be interested in the opportunity to make meaningful changes at the Stollery, please let us know.
Join today.

Do you know anyone who would be interested in being part of the Family Centred Care Network? Apply Online .

Previous Issues

Don't miss out previous editions are  available here.


Stollery Children's Hospital Family Centred Care | 452.02, 8440 - 112 Street | Edmonton | AB | T6G 2B7 | Canada