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Open House Invitation
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Families & Staff, do you have suggestions
on how we can improve care at the Stollery?
Join the Family Centred Care Council for an open house highlighting just some of the ways we are so much better together.
Tuesday, April 26, 2016
Light refreshments and open house 5 - 6pm
Family Centred Care Council Meeting 6 - 8:15pm
See some of the many ways patients, families and providers are working together
- See how you can make a difference in:
- Policy and programs
- Education of staff
- Delivery of Care
- Stay for our Family Centred Care Council Meeting and watch the collaboration in action
- Meet with Stollery Families, Staff and Senior Leadership
For more information or to RSVP contact the Family Room at
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Traditional Drumming
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Everyone is welcome to this special event brought to you by a partnership with Family Centered Care, Spiritual Care, Pediatric Social Work, and the Aboriginal Health Program as well as ceremony volunteers and elders from the Pê Sâkâstêw Healing Lodge out of Maskwacis.
Tea & Bannock
WEDNESDAY March 23, 2016
Drop in anytime between 2:00PM-4:00PM

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| Families and Fellows - Partners in Education |
The NICU Fellowship Training program and the NICU Family Advisory Care Team have created a unique partnership to practice and provided feedback on difficult conversations between neonatologists and parents. This partnership helps to improve communication at critical times. We are fortunate to hear from Chloe Joynt, Physician Neonatal-perinatal Medicine and Ali Martens, Jacob's Mom and Family Centred Care Council Member about their experience being a part of this important initiative. Thank you to both Chloe and Ali for sharing their experiences with us and showing us how much stronger we can be when we are all working together.
 Chloe Joynt:
Teaching neonatologists-in training ("residents") how to have difficult or serious discussion with parents in the Neonatal Intensive Care Unit presents challenges for both the learner and the teacher. Although neonatologists have shared discussions with parents almost daily, many of us have never truly experienced this discussion from the viewpoint of a parent expecting to have or with a child in the NICU.
This perspective requires partners in communication education who are experienced, invested, caring and motivated- so 4 years ago the NICU Fellowship Training program and the NICU Family Advisory Care Team came together to develop a consultation training session that connected parents who had been with their babies in the NICU, neonatologists interested in communication, and the NICU trainees. Over the last few years, we have been fortunate to work with parents who have graciously volunteered their time, shared experiences and interest in educating future neonatologist. Using role playing between fellows and families, the trainees can work through difficult scenarios with parents and receive feedback from neonatologists and the families- valuable information and perceptions to reflect on before they may be faced with a similar situation in clinical practice. When educators and parents work together, we can emphasize the equal importance of what and how medical information is shared. Over the years the session have evolved with feedback from trainees and NICU parents to ensure that our practice scenarios and seminars cover valuable medical and communication learning points, as well as information on how to give feedback to the trainees. The realism and perspective that the parents bring to these role-playing sessions, combined with the openness of the trainees and interest of the neonatologists, make for a truly rich learning experience for all involved.
Ali Martens:
Volunteering to "play" the role of a parent in the NICU fellows training day is quite natural to me. I am mother to a fabulous young man named Jacob that will turn 8 this spring. Born at 24 weeks, he deals with profound lifelong medical complications as a result.
In my mothering career we have had end of life consults 13 times 2 ending in a compassionate care plan that eventually became obsolete, as Jacob would last months and years past what anyone thought possible. There have been unexplainable medical complications, undesirable surgical outcomes and some truly random moments that scared me to the core along the way. Some were handled by the medical staff very well, others could have used this training to help them communicate in a more clear and compassionate manner.
My personal goal being involved with the Fellows Educational day is to be able to impart on these skilled new physicians that being human, showing compassion, emotion, and above all respect, to families right where they are at, in the moment of learning what can be absolutely crushing news is a good, appropriate, and necessary thing. Being fully present, providing unbiased information and if requested an opinion, in the moment with a family is not only appropriate but can aid in breaking down the barrier between members of the healthcare team. As we are all on the same healthcare team! Though some members of the team have so much more knowledge of what's happening, and others only have the deep love of being a parent to guide them.
Through my involvement with the council, the opportunity to be involved with this training day really does say to me, what I have been through as a mom is not an isolated experience, there are loads of other parents dealing with similar situations, and I can give back by helping prepare these professionals to talk to future families, there is good to be found in my hardest moments, there is learnings I can share as a result of my experiences. That's validation.
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Edmonton ADHD Conference
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Registration is Now open for the May 7th ADHD Conference featuring Dr. Peter Jensen
The morning session will be targeted at physicians, therapists, counselors and education professionals working with ADHD across the lifespan. This is a rare opportunity to update your knowledge on the latest research and treatment modalities. Read more about it here.
The afternoon session will provide caregivers with practical solutions to support children and adolescents with ADHD. If you are a parent, foster parent, group home worker, guardian, teacher's aide, adult role model, or community member with an interest in ADHD this is the session for you! You won't want to miss out on learning about the principles of raising a child with ADHD. Read more about it here.
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Did you know the Stollery Children's Hospital is now on Facebook?
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Family Centred Care at the Stollery
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At the Stollery Children's Hospital families, staff, and physicians work together on many initiatives such as:
- Sharing family stories at:
- New staff orientation
- Education of health professionals
- Grand Rounds
Reviewing and providing input on:
- Policy and procedures
- Educational materials for families
- Design and improvement of facilities and services
- Supporting other families through Peer Support opportunities
- Participating in the selection of new senior level staff and physicians
- Bringing Wifi to patients and families on the units
- Research
- Serving on the Family Centred Care Council
- Serving on the NICU Family Advisory Care Team
- Serving together on other committees and special projects
We are making ripples everyday and those ripples have a growing effect. We are getting more requests than ever to hear from families and patients as advisors, partners and consultants. If you or someone you know would be interested in the opportunity to make meaningful changes at the Stollery, please let us know.
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| Join today. |
Do you know anyone who would be interested in being part of the Family Centred Care Network? Apply Online .
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