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| We've come a long way! |
While everyone is busy making New Year's resolutions and planning for the future we think this is the perfect time to celebrate just how fabulous the last year was. If you are new to the Network or if you have been following us and wondering all the ways we are making a difference at the Stollery Children's Hospital, this issue of the Primer is your chance to get all up-to-date. Grab a coffee and get ready for a blast into the past year of the Stollery Family Centred Care Network.
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| Stollery Family Centred Care Council | 
The Family Centred Care Council continues to have an active membership of 24 members (young adults, family, staff, physicians and senior leadership).
The goals of the Stollery Family Centred Care Council are:
1. Leadership: to nurture leadership in families, staff, physicians, and management to be full participants in family centred care at the Stollery
2. Collaborate - Partnership: to promote opportunities for collaboration and partnerships between families, staff, physicians and management
3. Voice: to provide a consistent vehicle for the family voice to be respected and engaged in the operation of the Stollery Children's Hospital and in the delivery of care
The FCC Council annually identifies strategic priorities and initiatives for the Family Centred Care Network.
The Strategic Priorities identified by the Council for the September 2015 -16 year are:
- Strengthening the membership and infrastructure of the Family Centred Care Network to meet the requests and needs of the Stollery
- More intentionally engaging Young Adults and Youth in the initiatives of the FCC Network
- Establishing a Cardiology Family Advisory Care Team
This year we would like to thank our fabulous out going Co-Chair Jodi Craven for her wonderful work and her innovative activities and ability to keep us all on topic and on time.
Looking forward to 2016:
We'd like to welcome Tristan Pidner on board as the new Co-Chair who has done a fabulous job working along side the current Co-Chair Janice Belyea. You both make a fabulous team and we are very lucky to have you.
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| Peer Support | |
The purpose of peer support is for Family Mentors to meet current families in the Stollery and to:
- Be a listening presence
- Helping families navigate the hospital and health system
- Supporting caregivers when transitioning to another unit or going home
- Empowering caregivers to be advocates and partners in their child's care
1) Family Mentors attend weekly Parent Groups, one at the RAH Neonatal Intensive Care Unit and one at the Intensive Care Units at the WMC - for parents to meet with "graduate" parents
2) New this year, has been the implementation of a Family Bedside Orientation on the medical inpatient unit on 5G4. This is a unique program where Family Mentors go to the bedside, rather than asking families to attend a group away from their child's room. Many hospitals in Canada have not done this to date.
Through the funding of the Stollery Children's Hospital Foundation plus some extra dollars from the Canadian Foundation for Health Care Improvement we were able to put specific evaluation measurements in place to measure the impact of the visits - on key quality and safety priorities as well as the value the caregivers (inpatient families) received from the Family Mentor visits. See attached information sheet with highlights from the 3rd quarter report.
To date over 160 visits have been achieved with more than 140 families. In the last quarter over 90% of the families indicated the visits were either very important or extremely important to their hospital experience.
A huge thank you to all the peer support volunteers for making such a tremendous impact on the lives of families at the Stollery.
Looking forward to 2016:
In addition to sustaining the above projects we are:
1) In discussions with the NICU staff at the Royal Alex to implement a Family Bedside Orientation program, with a focus on visiting parents with very premature babies.
2) And to have Family Mentors attend a Breast Milk Feeding support group - to support
3) We are hosting another Training session for parents wanting to volunteer as Family Mentors.
If you are interested in being involved in peer support projects at the Stollery contact Christie Oswald or (780) 407-4710.
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| Family Talks |
Again the Stollery has been a leader in how we have engaged young adults and families in sharing their stories to further the understanding and integration of patient and family centred care practices in the daily care and support of Children and Families at the Stollery. Families are now a regular part of:
- Orientation of new staff,
- Nursing Classes at the McEwan University,
- Diabetic Classes at the UofA,
- Orientation and Training of NICU Fellows.
- Staff meetings
- Grand Rounds
- Visioning and Strategic Planning Days
- Families are also presenting at National and International conferences.
These presentations are specifically built around key learning messages, and the feedback has been overwhelmingly positive. Hearing the patient experiences helps staff recognize what they are doing well, how they can make small changes in their practice that make a big difference in care, and also reconnects them to the very things that motivated them to pursue their careers.
In this past year 33 young adults /family members have formally presented their stories to over 53 audiences.
Looking forward to 2016 - We continue to receive many requests for family presentations and are hoping to recruit new members that are able to share their stories.
- We are also developing a data bank of stories that we can use for meetings, newsletters, social media and in a variety of other ways to promote Family Centred Care at the Stollery.
If you are interested in sharing your story with us please contact Michelle Childs 780 407-2768
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| Transitions of Youth to Adult Care |
 The Family Centred Care Council identified the goal of improving the Transitions of Youth to Adult Care as a priority in 2013-14. This lined up with the priorities of the Stollery leadership and as a result we were able to host a Transitions of Youth to Adult Care Symposium in March 2015. This work continues now with: - a Steering Committee with representatives from adult care :Kaye Edmonton Clinic, Primary Care Networks; and pediatric care, Stollery and Glenrose. A parent and young adult are also represented on the Steering Committee. - a group of young adults and parents are meeting in focus groups on an ongoing basis to provide input on the development of a Transitions Framework and supporting documents and tools for healthcare providers, parents, teens and young adults.
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| Families and Capital Projects |
 Having families at the table right from the beginning of planning and discussions regarding capital projects has been instrumental in the development of: - Operative Services - Critical Care Expansions (PCICU, PICU, NICU) - Stollery 2030 Planning Focus groups and Visioning Day Over this past year we have had 4 key families involved on the planning committees for these different initiatives, which has been a huge commitment on their part. In addition we have had another 16 families participating in focus groups at different stages in the projects.
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| Families in Senior Level Committees |
A new initiative this past year has been to engage families on the newly formed Quality Councils. Having families involved on these councils ensures discussions and decisions are being made in the best interest of patients and families.
Families: - Bring in creative solutions; new eyes, new ideas
- Help mitigate "group think" by:
- bringing the perspective of families, community and own expertise from personal careers and life experience
- Ask the "why" questions: "Why do we do things this way?"
- Clarifying possible assumptions about what patients, and families want by sharing own experience and that of other families
- Share stories to create understanding and provide context
- Provide the family perspective in the review of materials and processes
- Encourage and recognize the staff for the good work they are doing
- Communicate issues and results with other patients and families (electronic / virtual family group, FCC Council) while maintaining the rules of confidentiality
We currently have 10 family representatives on the following 6 councils: - Stollery Quality Council
- Surgical Quality Council
- Ambulatory Quality Council
- PICU / PCICU Quality Council
- NICU Quality Council
- Medicine Quality Council
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| Aboriginal Child health Nurse Coordinator |
Through the support of the Stollery Children's Hospital Foundation we have been able to hire an Aboriginal Child Health Nurse Coordinator, Sherri Di Lallo. See attached announcement.
Reporting to the Manager of Family Centred Care, the Aboriginal Child Health Nurse Coordinator is responsible for planning implementing and evaluating Stollery-based programs and services for infants, children, youth, and families of indigenous backgrounds from rural and remote areas. Aboriginal families, particularly those in rural or remote communities / reserves, face unique issues when their children require long-term clinical management, particularly when a child requires critical or specialized acute care provided outside their community possibly requiring medical transport to Edmonton. While this is profoundly disruptive and stressful, the family also experiences many ongoing challenges, and sometimes difficulties, when children require extensive follow-up and / or home care post-hospitalization.
This position is responsible for:
- program development in clinical care planning and resource development with pediatric and neonatal clinical areas, child health care professionals, aboriginal community health professionals, and indigenous patients and families from rural and remote areas;
- working with stakeholders to evaluate and improve access to tertiary services, community supports and resources;
- providing advanced patient liaison services including admission, discharge, follow-up and transition planning.
Responsibilities include liaising with clinical programs and leads, AHS operational teams, zone leads, external stakeholders, patients and families to ensure:
- Programs, services, case management and care planning are timely and appropriate
- Cultural needs are recognized, supported and integrated in the care
- Better outcomes for indigenous patients and their families.
- Initiatives support the Stollery Children's Hospital's strategic goals and framework of family centred care
Sherri, in her first two months, has been busy orientating to the operations of the Stollery; meeting many of the healthcare teams on the different units, different community stakeholders, families and children.
In addition a focus group has been established to support her in her work including the following members:
- Manager of Family Centred Care
- Patient Care Manager from Cardiology
- Discharge Coordinator from Cardiology
- Dr Hasu Rajani
- Manager of Social Work
- Aboriginal Social Worker
- Home Care RN Triage /Transition Planner
- Aboriginal Cultural Worker
- Aboriginal Health Program Coordinator - North East Zone
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| NICU Family Advisory Care Team |
 The Neonatal Intensive Care Unit Family Advisory Care Team (NICU FACT) has a membership of 24 staff, families, physicians and NICU leadership staff; and supports the NICU Care Team in promoting: - the values, perspective, and practices of family centered care
- quality communication
- facilitated learning among all of the members of the Care Team
The NICU FACT continues to be very active on many projects (some as listed above) and in addition have embarked on a number of key initiatives this year as listed below.
1) Creating a Family section as part of the permanent hospital chart - encouraging and providing more opportunities for families to be an active member of the care team and to identify how they wish to participate in their child's care
2) Improving transfer process between units and hospitals - families and staff created general transfer information sheets for families, as well as hospital information sheets so families have information about the hospitals they are being transferred to (i.e. Stollery sites: Royal Alex NICU, David Schiff NICU; Grey Nuns Hospital NICU, Misercordia Hospital NICU, Red Deer Hospital NICU, Grande Prairie Hospital NICU
3) Baby's Journey - a family member has participated in a unit wide quality improvement committee reviewing the babies'' journey from admission through discharge and up to the follow-up appointment.
4) Family Representation on NIDCAP Committee - Newborn Individualized Developmental Care and Assessment Plan (NIDCAP) is an approach to care that engages families in their infants care. A family representative on this committee is key to ensuring the family perspective is included as this initiative becomes more embedded in the care on the unit
5) Family Representation on the Regional NICU Operations Committee - A family representative has been an active member on this senior level committee for the past 2 years.
6) Family Input / Review of Research Projects - family members now have the opportunity to review research proposals and have input on research projects and approval of projects.
7) Creating a greater Awareness / Presence of "Stollery" at RAH NICU - often families and the public are unaware that the RAH NICU is part of the Stollery. Also staff feel disconnected from the Stollery brand which can impact staff morale. NICU FACT is working with Senior Leadership to identify ways we can increase this awareness.
8) Participation in the Vision and Strategic Direction of the Regional NICU Program - 6 families participated in a family focus group to provide input on the preparations for the Regional NICU Visioning Day. Two families presented at the Visioning Day; helping start the day grounded in the perspective and experience of the family. An additional 3 families also participated in the discussions at the Visioning Day.
9) NeoPal working group- families are involved in the development of palliative care education curriculum / communication teaching tools
10) RAH 2030 Planning - families participated on two focus groups in the RAH 2030 planning process.
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| 2016 and beyond |
We are looking forward to 2016 and beyond.
Family members, and now young adults, as members of the Stollery Family Centred Care Network along with physicians, staff and leadership; are having a bigger and bigger influence in furthering a culture of patient and family centred care both at the point of care, and in the operations of the hospital.
We continue to be true to our Vision Statement of: - Striving to be Leaders in Family Centred Care
- By placing children and youth at the centre of how we provide care
- Always recognizing the family as a valued member of the child's care team and in the operations of the hospital
- We aspire to practice family centred care in a collaborative, consistent and continuous way!!!
We hope you enjoyed this blast to the past and we hope you will join us in all of the exciting ventures coming up. If you are interested in becoming more involved in Family Centred Care at the Stollery please contact Heather McCrady or apply online.
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| Facebook | 
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Did you know the Stollery Children's Hospital is now on Facebook?
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Family Centred Care at the Stollery
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At the Stollery Children's Hospital families, staff, and physicians work together on many initiatives such as:
- Sharing family stories at:
- New staff orientation
- Education of health professionals
- Grand Rounds
Reviewing and providing input on:
- Policy and procedures
- Educational materials for families
- Design and improvement of facilities and services
- Supporting other families through Peer Support opportunities
- Participating in the selection of new senior level staff and physicians
- Bringing Wifi to patients and families on the units
- Research
- Serving on the Family Centred Care Council
- Serving on the NICU Family Advisory Care Team
- Serving together on other committees and special projects
We are making ripples everyday and those ripples have a growing effect. We are getting more requests than ever to hear from families and patients as advisors, partners and consultants. If you or someone you know would be interested in the opportunity to make meaningful changes at the Stollery, please let us know. |
| Join today. |
Do you know anyone who would be interested in being part of the Family Centred Care Network? Apply Online .
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