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A Primer on Family Centred Care
March 2015
I've seen and met angels wearing the disguise of ordinary people living ordinary lives.~Tracy Chapman
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Each month, we will introduce you to members of the Family Centred Care Council and NICU Family Advisory Care Team. This month we feature our newest staff member to join the Family Centred Care Team.
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MEMBERSHIP CORNER -
Allan MacDairmid
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 Allan and Frazer, May 21, 2011
This month our feature Network Member is Allan MacDairmid.
Allan's experience caring for his newborn son, Frazer, in the Stollery NICU and PICU has driven his passion for change and supporting other families that will have similar experiences. It was at a follow up meeting after Frazer's death that Allan and his wife Jodie learned about the Neonatal Intensive Care Unit Family Advisory Care Team (NICU FACT). The NICU FACT team puts parent voices at the table along with the entire care team to optimize care. "We thought it would be a good way to meet parents with similar experiences, provide feedback on the journey, see how others are dealing with it and share our ideas." Allan joined this committee in the fall of 2011 and became Co-Chair in the fall of 2012 where he was able to help the committee become more solution oriented. He has helped to guide discussions and make changes that has improved care at the Stollery.
Allan has been involved in many initiatives through the Family Centred Care Network. When asked what his most memorable project was, he said "The Baby Milestones Calendar". Allan and his wife Jodie discussed the idea for a baby book like this while they were in the NICU and PICU with their son. Parents have had great feedback on this program, it helps them to realize the things that they have to celebrate and the important strides their child is making while in the PICU or NICU. As a teacher Allan was able to get students involved in the design of the stickers. "It was very rewarding, the students also got a lot out of it." Allan was able to take the project all the way from conception to delivery.
When asked if there is one thing Network Members should know about volunteering with the Family Centred Care Network, Allan had this to say:
"You are volunteering your time and you want it to be rewarding. There is an incredible variety of things we are working on. From reviewing and creating documents to peer support where you get to interact with people. Keep your ears open, find something that resonates with you and run with it."
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Did you miss a couple editions of the Stollery Family Centred Care Primer? Do you want to re-read about some the great accomplishments families, staff and physicians have been able to make working together?
To view previous editions, since January 2013, just click on this link:
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ONLINE FCC NETWORK MEMBERSHIP APPLICATION
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Do you know anyone who would be interested in being part of the FCC Network? We've made it easier than ever to join!
Forward this primer by clicking:
Interested members can apply online or on their Smartphones or tablets by clicking on the following link:
Or by scanning the bar code above!
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Peer Support Opportunities
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Family mentors provide peer support to
inpatient families as they navigate the health care system. We are looking for more volunteers to help with this important initiative. Training and support is provided.
1. Family Bedside Orientations- Parents provide support and general information for parents with a child currently admitted to a Medicine Unit at the Stollery.
2. Parent Support Groups- A time for support and conversation for families with children that are currently admitted or involved with David Schiff NICU/PICU, PCICU, and the Royal Alexandra NICU.
| "Calming one stressed family down through a Family Mentor visit means calming the whole unit down."
- 5G4 Staff Member
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3. Join our Peer Support team: You will be required to attend a two day workshop (4 hours each day) along with ongoing support from the Family Centred Care Team of Coordinators and Social Work. If you are interested in joining us please contact Jasmine Rosentreter (780-407-8128) or Christie Oswald(780-407-4710). If you have any questions about what it takes or how it feels to be a Family Mentor, please let us know.
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Transition of Youth to Adult Care Symposium
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The Transition of Youth to Adult Care Symposium was held on March 12 to discuss a strategy for building and implementing an effective approach in transitioning youth with chronic health conditions to adult care in Northern Alberta.
One hundred pediatric and adult care providers along with 13 young adults and parents attended at the Lister Hall site with 60 more participating across 5 Telehealth sites.
Five speakers shared their expertise on transitioning including:
- Dr. Miriam Kaufman, Good 2 Go Transitions Program - Toronto Sickkids Hospital
- Mary Paone, On TRAC Transition Program - BC Children's Hospital
- Deb Thul, Well on Your Way Transitions Program - Alberta Children's Hospital
- Dr. David Nicholas, Rethinking Transition for Youths with Development Disorders
- Simone Chalifoux/Lacey Haddon, Transitioning to Adulthood:Finding our Way
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Lister Hall- Youth to Adult Care Symposium
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Results will be reported to the Youth and Adult Care Steering Committee and used by members of Learning Collaboratives to adopt and further develop a transitions program. A report will be available in May 2015.
A huge thank you to everyone that was involved and participated in this event.
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Family Talks - Sharing our Stories
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It's been a very busy couple of months for Family Talks presenters!
In both February and March nurses new to the hospital were introduced to the Stollery's culture of Family Centred Care through presentations by Amanda Proctor and Nicole Lyste (February) and Anne-Marie Paquin (March). As well in March, nurses new to working in the NICU environment were treated to Jodie Craven's story of her son Frazier's life in the NICU. Participants from all three presentations reported being inspired and changed by the information presented.
On February 13 Karen Klak shared her story of her
daughter Haley's life and death to 4th year nursing students at Grant McEwan who were learning about Bereavement and Loss. Many students felt very honored to learn about Haley and her life.
| One of the students felt the presentations helped to confirm "the importance of my warmth and compassion as a nurse." |
Karen Klak presented a second time in February, this time with Karen Calhoun at PICU Nurse Orientation. They took a new approach to orientation and invited nursing staff to feel what it was like to enter the PICU for the first time as a parent, something that many families find very intimidating, frightening and overwhelming. This approach proved very effective and helped new nurses learn what matters most to families when their child is very sick.
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Tristan Pidner's Surgical Grand Rounds presentation on February 24 about his experience with post-operative pain was very well received by both physicians and staff. The slides of illustrations that Tristan drew of his hospital experience (see photos) worked well to emphasize the importance of learning about the effects of post-operative pain in pediatric patients and how it can be better managed.
And on March 12 Simone Chalifoux and Lacey Haddon spoke of their experiences with transitioning from pediatric to adult health care to over 100 participants at the Transitions Symposium. Their stories acted as great jumping off points for some rich discussion into the development of a better transition process for Stollery patients in the future.
As always, incorporating the real life stories of Stollery families into orientation and education has brought a better appreciation of a family's/patient's hospital experience and has effected change for the better. Thank you all for sharing these past two months!
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Alberta Association for Community Living
Annual Family Conference
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Spend the weekend of April 10-11, 2015 strengthening what meaningful inclusive community living means for you and your family at AACL's 2015 Family Conference.
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