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A Primer on Family Centred Care
August 2014
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Each month, we will introduce you to members of the Family Centred Care Council and NICU Family Advisory Care Team. This month we feature two of our newest family members to the NICU Family Advisory Care Team, Jennifer Hanrahan & Sarah Topilko.
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MEMBERSHIP CORNER - JENNIFER HANRAHAN
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| NICU FACT Family Member, Jennifer Hanrahan, and daughter, Amelia! |
What brought you to NICU FACT?
What brought you to FACT? Our daughter Amelia was born at 24+5 weeks on Valentine's Day, 2013. For the first few days we struggled with trying to stay out of the way and allow the medical teams to do what they needed to do for our daughter. We felt helpless and removed from the experience of having our first baby. On our way to leave for a coffee when rounds began one morning, a nurse ushered us back to the bedside, introduced us to the team and changed our lives and the course of our stay. We became aware of Family Centred Care and everything changed. We were educated, informed and present. It took away a lot of the fear for us. I wanted to join the network and FACT to help to support other families who are facing crisis.
What is one thing that you would like network members to know about you?
What is one thing that you would like network members to know about you? I am passionate about children and the role that they play in the future of our society. I am proud to work for an organization that fosters confidence, creativity, leadership and environmentalism in youth. I LOVE MY JOB!
What is something that FACT has done (past or present) that you are most excited about?
What is something that FACT Council has done (past or present) that you are most excited about? During our stay at the RAH NICU, I was fortunate to participate in the parents entrance renovation and thanking the students who donated the artwork. The transformation was fabulous! It meant a lot to us to see efforts being made to make families more comfortable and the space brighter and more welcoming.
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MEMBERSHIP CORNER - SARAH TOPILKO
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 | NICU FACT Family Member, Sarah Topilko |
What brought you to NICU FACT? After spending time in the NICU with our oldest son, Connor, I inquired about volunteering and doing something to 'give back' in some way. I was introduced to FACT through conversations with Marni and Heather, after joining the Family Centered Care Network and reading the monthly primer emails as well. It sounded so interesting to me and something I would love to be apart of, so I expressed interest to both parties and was very excited when a few spots opened up! What is one thing that you would like network members to know about you? My husband Trevor and I are parents to two wonderful boys, Connor and Bentley and I do photography as a part time career when I'm not chasing the kiddos! What is something that FACT has done (past or present) that you are most excited about? I think the remodeling / expansion projects at both the David Schiffe and now the upcoming Royal Alexandra site are most exciting to me, as that is the space we, as parents, have spent such a substantial amount of time in. I look forward to the new features that future parents can benefit from. |
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Did you miss a couple editions of the Stollery Family Centred Care Primer? Do you want to re-read about some the great accomplishments families, staff and physicians have been able to make working together?
To view previous editions, since January 2013, just click on this link:
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ONLINE FCC NETWORK MEMBERSHIP APPLICATION
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Do you know anyone who would be interested in being part of the FCC Network? We've made it easier than ever to join!
Forward this primer by clicking:
Interested members can apply online or on their Smartphones or tablets by clicking on the following link:
Or by scanning the bar code above!
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FALL FAMILY CENTRED CARE NETWORK BARBEQUE
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Join us for a Fall Family Centred Care Kick Off Barbeque! Bring your friends and family to enjoy a fantastic afternoon of food, fun and entertainment!
WHEN: Sunday September 28
12 noon to 3pm
Magic Show at 1pm
WHERE: Riverdale Community Hall
9231 - 100 Avenue
Map
RSVP: Click here to contact Kaitlin Belair by Monday, September 22
BRING: Your whole family
And a delicious potluck item to share
Hamburgers, ice cream sundaes, and refreshments will be provided.
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MINIMIZING THE OUCH FROM NEEDLE POKES
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 | | One of 5 Posters Encouraging the Use of Numbing Cream |
The Pediatric Pain Committee continues to create new ways to help parents advocate for the best possible care for their children. This summer, the committee developed a poster to support the use of Maxilene, which is a cream that is applied to the skin prior to any needle, and numbs the pain of the needle. These great posters are now at the beside (by the white boards) at each inpatient bed, as well as in the Emergency Room, and the PreAdmmission Unit. We have 5 different versions featuring 5 great children. Feedback from parents and staff has been positive. They appreciate the opportunity to advocate for their child, and many of the kids tell us how much the numbing cream helps!
Our Pain Committee is working on many different projects to improve pain assessment and management for all the children and families here at Stollery. We are grateful for the continued involvement of parents from the Family Centered Care Network: Rana Biesenthal, Mary Bell, Stacy Grainger-Schatz, and Christine Cripps-Woods for their input on this and many other initiatives.
If you'd like more information, please contact
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NEW FAMILY CENTRED CARE COUNCIL MEMBERS
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The Recruitment and Selection committee of the Council had the privilege of meeting a number of families and previous patients interested in participating on Council.
We are excited to welcome the following new members to the Family Centred Care Council.
Family:
Monica Sneath, Amanda Moon, Shelley Wywall, Anne-Marie and Daniel Paquin
Previous Patient:
Tristan Pidner
Sibling:
Erin Cripps-Wood
We also want to thank all of the other families we met . We are very appreciative of their commitment to improving care at the Stollery . We welcome them to the Family Centred Care Network and look forward to engaging their experience and ideas in the many current and future initiatives.
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NEW NICU FAMILY ADVISORY CARE TEAM (FACT) MEMBERS
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The Recruitment and Selection committee of the NICU FACT are excited to welcome the following new members to:
Family:
Samantha and Ian Matheson, Raya Couette, Sarah Topilko, Jennifer Hanrahan, Stephanie Amoah, Leah Johnson-Coyle
Staff:
Catherine Ward, Diandra Yates
The NICU FACT now has a strong membership of 15 family members, 8 staff, 4 physicians and senior management representation!
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YOU ARE INVITED TO THE AHS PATIENT & FAMILY ADVISOR CONFERENCE!
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Engagement and Patient Experience, Quality & Healthcare Improvement are pleased to invite you to the first annual Patient & Family Advisor Conference on October 29, 2014 in Edmonton.
Objectives for the day include:
- Connecting and networking with other Patient and Family Advisors throughout Alberta.
- Sharing and celebrating examples of effective Patient and Family Advisor participation and collaboration in Alberta.
- Sharing and prioritizing strategies for how to support and ensure Patient and Family Centered Care in Alberta.
To register email:
or call: 780.407.7255
Patient & Family Advisory Day sponsored by: Alberta Health Services (AHS) and Quality & Health Care Improvement (QHI).
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SNELP (Pediatric Nurse's Orientation)
Family members Amanda Proctor & Jodie Craven spent Monday, August 18th role playing many scenarios with new pediatric nurses. They brought both the perspective of parents and patients to this engaging morning.
NICU Fellows Orientation
We were invited once again to welcome first year fellows to the NICU program! Family member and NICU FACT family member, Nicole Lyste, shared her experiences as a family in the NICU to three international Fellows who just joined the NICU Fellowship program!
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We have many exciting opportunities for families to make a difference by sharing your story. If you are interested in presenting at a future "Family Talk", please email:
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We look forward to seeing many NICU Graduates, Families and colleagues at the 2nd annual Northern Alberta Neonatal Program Fun Run in the Park! The support we recieved in 2013 was overwhelming, raising more than $20,000 for the Stollery Children's Hospital Foundation. This year's event takes place from 1:00 pm - 5:00 pm on Saturday, September 20 at Gold Bar Park (10955 - 50 Street, Edmonton).
To register to participate in either the 5KM fun run or 2km walk, please click on this link:
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STOLLERY QUALITY IMPROVEMENT COUNCILS
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The Stollery Children's Hospital Quality Council, previously known as CHIPS, has been revamped. This will be the first time that family members have participated on a Stollery wide Quality Council.
The purpose of the Stollery Quality Council is to provide program vision, leadership and direction for quality planning, monitoring and improvement within the Stollery.
If you are interested in big picture thinking, would like to bring your and other families' perspectives to a Stollery wide planning table, then consider this opportunity.
Next meeting is Sept 16 from 10 to 11am.
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Families are also invited to be part of one of the two new Quality Improvement Unit Councils:
FCC Network member Rosella Trulili attended the Pediatric Intensive Care Unit (PICU) and Pediatric Cardiac Intensive Care Unit Quality Council on August 19, 2014. We welcome others interested in this work to be involved in some of the working groups focusing on:
- Hand Hygiene/Infection Control
- Medication Management
- Early Mobilization and Pressure Ulcers (Wound Care)
- Central Line Infections
The next meeting is October 21st.
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The Pediatric Medicine Quality Council is kicking off on September 4th from 2 to 3pm.
This Council will be addressing quality initiatives specific to the Medicine Units on 4E4/F2 and 5G4.
The family perspective is crucial to improving the quality and safety of care provided to children.
If you are interested in participating in any of these quality councils please click here to email Heather
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NICU FELLOWS COMMUNICATION ROLE PLAYING
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Are you interested in having a real impact on how future Neonatologists communicate with families?
We are looking for one more family for the NICU Fellows Communication & Role Playing session. The next role playing event will take place on the morning of Thursday, October 16.
You receive coaching and plenty of assistance preparing for the engagement so the only experience you need ... is the experience of being a parent in the NICU. If you are interested in participating in this event please contact:
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