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A Primer on Family Centred Care
July 2014
Rest is not idleness, and to lie sometimes on the grass under trees on a summer's day, listening to the murmur of the water, or watching the clouds float across the sky, is by no means a waste of time. ~ John Lubbock
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Did you miss a couple editions of the Stollery Family Centred Care Primer? Do you want to re-read about some the great accomplishments families, staff and physicians have been able to make working together?
To view previous editions, since January 2013, just click on this link:
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ONLINE FCC NETWORK MEMBERSHIP APPLICATION
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Do you know anyone who would be interested in being part of the FCC Network? We've made it easier than ever to join!
Forward this primer by clicking:
Interested members can apply online or on their Smartphones or tablets by clicking on the following link:
Or by scanning the bar code above!
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FALL FAMILY CENTRED CARE NETWORK BARBEQUE
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 (Photos from 2013 Barbeque)
Join us for a Fall Family Centred Care Kick Off Barbeque! Bring your friends and family to enjoy a fantastic afternoon of food, fun and entertainment!
WHEN: Sunday September 28
12 noon to 3pm
Magic Show at 1pm
WHERE: Riverdale Community Hall
9231 - 100 Avenue
Map
RSVP: Click here to contact Kaitlin Belair by Monday, September 28
BRING: Your whole family
And a delicious potluck item to share
Hamburgers, ice cream sundaes, and refreshments will be provided.
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New Family Centred Care Council Members
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The Recruitment and Selection committee of the Council had the privilege of meeting a number of families and previous patients interested in participating on Council.
We are excited to welcome the following new members to the Family Centred Care Council.
Family:
Monica Sneath, Amanda Moon, Shelley Wywall
Previous Patient:
Tristan Pidner
Sibling:
Erin Cripps-Wood
We also want to thank all of the other families we met . We are very appreciative of their commitment to improving care at the Stollery . We welcome them to the Family Centred Care Network and look forward to engaging their experience and ideas in the many current and future initiatives.
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PCICU TRANSFER STUDY COMPLETE!
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Just over twelve months ago, the Stollery's Family Centred Care Network Members were asked to take part in an exciting study. The hope of the Pediatric Cardiac Intensive Care (PCICU) Transfer Study is to prove that families who are present and engaged during Transfer Rounds experience less anxiety as they prepare to transfer from the PCICU and after they have left. As part of the study, families were offered the opportunity to have a Family Mentor provide them with Peer Support.
Elina Williams (Research Nurse and Study Coordinator, Pediatric Cardiac Sciences) shared these words:
Dear Supporting Parents,
It is with tremendous gratitude for your contributions that I write to inform you that the Transfer Study is now complete.
Over the past year we screened 360 patients, enrolled 230, and randomized 90 to the intervention arm. We had a total of 15 requests for peer support. We observed that parents tended to request support when it was their first ICU or surgical experience, regrettably a minority experience in our ICU. Although many of our families are "well seasoned" your willingness to come and support a parent in need (often at the drop of a hat) and the quality of the support provided made a tremendous difference in the story these families now have to share with others.
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To supporting parents who did not have a chance to connect with a family for the purpose of this study, thank you. Thank you for being willing. For doing the training. For being on call. For substantiating and authenticating your own journey, and recognizing the value that holds for other families.
It has been my absolute pleasure in getting to know you and to work alongside you in a research study that truly captures family centered care at its core.
On behalf of the entire Transfer Study team, thank you.
A BIG THANKS to:
Each of the Family Mentors who were involved in this work. The experience that we gained have and will continue to form a great foundation for expanding peer support to other families and for further collaboration with our health care professionals.
To the team of Social Workers in the PCICU and on 4C. Your knowledge, experience and support was invaluable to this experience for me and for our Family Mentors.
And finally, to Dr. Ian Adatia, who initiated this project, and the rest of the Cardiology team for being so thoughtful in your approach to Family Centred Care and including families in such a meaningful way.
We look forward to seeing the published results! Stay tuned!
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SUCCESSFUL APPLICATION!
Partnering with Patients and Families for Quality Improvement
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In May 2014, the Canadian Foundation for Healthcare Improvement invited organizations to apply to join a pan-Canadian collaborative focused on building capacity and enhancing organizational culture to partner with patients and families in order to improve quality across the healthcare continuum.
We were successful in our application!
The quality improvement initiative we are focusing on is: Family Bedside Orientations
This improvement project aims to:
- Embed a peer support initiative on a Medicine inpatient unit (5G4) to ensure families are aware of available services and staff roles, as well as share opportunities and effective ways for inpatient families to participate in their child's care and care team.
- Improve both staff and family practices and communication in regards to hand hygiene, medication reconciliation and education.
- Support family engagement with their child's care team by involving staff and physicians in discussions about the principles of patient and family centred care and how to embed these principles in daily practices through empowering inpatient families to participate in rounds and ongoing communication with unit staff - increasing level of family engagement at medical rounds, and the use of bedside whiteboards.
This is a big initiative involving:
- Family members of our FCC Network who have trained to be Family Mentors,
- The Staff on 5G4 (Managers, Nurses, Social Workers, & Child Life staff)
- Physicians (Hospitalists and Community Preceptors), Medical students & Junior Residents
- An Evaluation Specialist, from AHS Research Innovation and Analytics
- And Family Centred Care Staff
Stay Tuned for further updates! This project will begin this Fall.
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SNELP (Pediatric Nurse's Orientation)
Family members Tristen Pidner, Amanda Proctor and Dawn Newberry spent Monday, July 14th role playing many scenarios with new pediatric nurses. They brought both the perspective of parents and patients to this engaging morning.
NICU Nurse's Orientation
Family Members Sarah Topilko and Kristy Wolfe (with a special guest appearance by Kane) welcomed new nurses to the NICU at their orientation. Sarah and Kristy engaged the nurses in meaningful and thoughtful conversations about Family Centred Care in the NICU.
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START TO THINK ABOUT FALL - MANY OPPORTUNITIES TO BE INVOLVED:
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STOLLERY QUALITY IMPROVEMENT COUNCILS
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The Stollery Children's Hospital Quality Council, previously known as CHIPS, has been revamped. This will be the first time that family members have participated on a Stollery wide Quality Council.
The purpose of the Stollery Quality Council is to provide program vision, leadership and direction for quality planning, monitoring and improvement within the Stollery.
If you are interested in big picture thinking, would like to bring your and other families' perspectives to a Stollery wide planning table, then consider this opportunity.
Next meeting is Sept 16 from 10 to 11am.
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Families are also invited to be part of one of the two new Quality Improvement Unit Councils:
The Pediatric Intensive Care Unit (PICU) and Pediatric Cardiac Intensive Care Unit Quality Council had it's first meeting in June.
This working groups will begin working on:
- Hand Hygiene/Infection Control
- Medication Management
- Early Mobilization and Pressure Ulcers (Wound Care)
- Central Line Infections
The next meeting is August 11th at 1:00pm
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The Pediatric Medicine Quality Council is kicking off on September 4th from 2 to 3pm.
This Council will be addressing quality initiatives specific to the Medicine Units on 4E4/F2 and 5G4.
The family perspective is crucial to improving the quality and safety of care provided to children.
If you are interested in participating in any of these quality councils please click here to email Heather
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We have many exciting opportunities for families to make a difference by sharing your story. If you are interested in presenting at a future "Family Talk", please email:
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NICU FELLOWS COMMUNICATION ROLE PLAYING
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Are you interested in having a real impact on how future Neonatologists communicate with families?
We are looking for one more family for the NICU Fellows Communication & Role Playing session.
The next role playing event will take place on the morning of Thursday, October 16.
You receive coaching and plenty of assistance preparing for the engagement so the only experience you need ... is the experience of being a parent in the NICU.
If you are interested in participating in this event please contact:
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INVOLVEMENT OPPORTUNITY: PARENTS OF PREEMIES FOCUS GROUP
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An important opportunity to make a difference in the future for children and families following discharge from hospital:
Participants (parents of infants born preterm, <38 weeks gestation) are needed for focus group interviews discussing parent support following discharge home from the hospital.
Parents with children born prematurely can have a challenging time during the transition from the high intensity hospital environment to the more isolated home environment.
We are recruiting families to fill out a brief questionnaire and share their experiences and opinions with us in order to help us understand more about what type of direct parental support would be most helpful in this transition period.
If eligible for the study, you will be required to attend one 2 hour focus group session in Edmonton with other parents of preterm infants.
This study is being conducted by the Northern Alberta Neonatal Program and has received approval from the University of Alberta Research Ethics Board (Pro00044432).
To find out more about the study and your eligibility to participate please contact:
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We look forward to seeing many NICU Graduates, Families and colleagues at the 2nd annual Northern Alberta Neonatal Program Fun Run in the Park! The support we recieved in 2013 was overwhelming, raising more than $20,000 for the Stollery Children's Hospital Foundation. This year's event takes place from 1:00 pm - 5:00 pm on Saturday, September 20 at Gold Bar Park (10955 - 50 Street, Edmonton).
To register to participate in either the 5KM fun run or 2km walk, please click on this link:
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The Stollery NICU FACT project, Baby Milestones, which allow parents to celebrate and remember key moments in their child's journey, have inspired similar projects in other pediatric health centres!
Since sharing the success of the "Milestones" project, we have fielded inquiries from the Chinook Regional Hospital in Lethbridge, AB, the Alberta Children's Hospital in Calgary, AB and as far away as the Sydney Southwest Are Health Service in Sydney, Australia! They have all recognized the wonderful talent of the W. P. Wagner High School Students and the great work by the Stollery NICU FACT. We are always happy to assist our colleagues in other health centres across the globe!
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