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Each month, we will introduce you to members of the Family Centred Care Council and NICU Family Advisory Care Team. This month we feature one of our newest staff additions to the Family Centred Care Council, Janice Belyea, LPN.
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MEMBERSHIP CORNER - JANICE BELYEA
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 | Janice Belyea, LPN on 4E4/F2 Pediatric Medicine
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What brought you to FCC Council?
When I started at the Stollery, Heather McCrady and two family members from the Family Centred Care Network presented to our SNELP [Stollery Nursing Entry Level Program] orientation. I went home that day and signed up as a member of the FCC Network, and eagerly applied to be a member of the FCC Council two months later. I view the Stollery as a community, and I want to be an active participant in that community, so many amazing things happen here! As the only unit nurse on the Council, I believe my bedside nursing perspective is unique and important to a variety of our initiatives.
What is one thing that you would like network members to know about you?
Nursing is my second career, I was previously a graphic designer and chose to go back to school to study nursing after my Grandpa was diagnosed with cancer and I was at his bedside daily. I realized that nurses are often the support, voice and advocates for patients and their families, and I knew that was what I was meant to do. I love being a nurse, getting to know the kids and their families and supporting them through stressful times. I understand what it's like to be a family member receiving life changing news, trying to get answers, and navigating through the hospital experience. If you ever find yourself on our unit and you need a hug or a hand to hold, look for the redhead with purple glasses, I'm your girl!
What is something that FCC has done (past or present) that you are most excited about?
I'm involved with several of our working groups, but I am currently most excited about the various Peer Support initiatives we have going on throughout the Stollery (NICU, PICU, Inpatient and Outpatient) - there are many, it's a very productive group! I have heard great things from new nurses who have gone through the newly revamped SNELP, which now includes role playing exercises with real family members. And Marni Panas and her team have just completed peer support training with a group of Family Mentors who will be doing Family Bedside Orientations on 5G4 starting in June, I think it is going to be amazing.
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NEW! ONLINE FCC NETWORK MEMBERSHIP APPLICATION
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Do you know anyone who would be interested in being part of the FCC Network? We've made it easier than ever to join!
Forward this primer by clicking:
Interested members can apply online or on their Smartphones or tablets by clicking on the following link:
Or by scanning the bar code above!
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Most families of newborns are very familiar with the "Baby First" type books and calendars out there. But for a family with a baby in the NICU, their "Firsts" are much different.
Families face much stress and anxiety day to day in the NICU. So much is happening that milestones might pass without them realizing the significance of the moment. To recognize and celebrate the important achievements that the babies make during their journey in the NICU, the NICU Family Advisory Care Team (FACT) came up with a brilliant initiative. Students of the W. P. Wagner High School Design & Communications 20 & 30 class (Instructor: Leona Bjarnason) took on the task of designing graphics for 48 stickers representing these milestones. Families apply these stickers to a specially designed calendar to highlight these special moments. Marni Panas, Coordinator, Family Centred Care, worked with the students in their classroom where they learned about the NICU environment and what is involved in caring for our babies and their families.
Congratulations to NICU FACT on a truly collaborative community initiative. Especially to the "Baby Milestones Working Group" family member and Co-Chair, Alan MacDairmid, and Neonatal Nurse Practitioners, Tara Follet and Denise Clark, on your creativity and leadership on this initiative.
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CELEBRATING OUR CHAMPIONS
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 | | Family Centred Care Champion, Sarah Southon (Nurse Practitioner) celebrates with the Scoliosis Clinic Team and FCC Network Member, Karen Gartner and her son Benjamin. |
As the Nurse Practitioner for the Scoliosis Clinic, Sarah Southon sees many children and their families - before, during and after consultations and treatments. She is a strong advocate and support. Frequently she brings families to the Family Room on the long days when the children are in surgery, popping in to provide regular updates. A couple of years ago, she initiated a Scoliosis Support Group and Information Night for families and young patients to meet others who are going through similar experiences. Collaborating with other members of her team she has facilitated this important opportunity for families, children and youth to support each other in their life journey with scoliosis.
Thank you for being a Family Centred Care Champion!!!
Do you know a person or team who should be recognized as champions?
A "Champion" can be best described by one or more of the following statements:
- Have been directly involved in the development of the Family Centred Care Network and/or its initiatives
- They will have demonstrated the principles of Family Centred Care in their own practice and through their own modeling and leadership, have influenced others to be family centred in how they carry out their duties
- Have provided a significant contribution to a project or event that helps promote and carry out the philosophies of Family Centred Care at the Stollery
If this describes anyone you know, please send a brief description as to why you feel they should be recognized to:
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CONSIDER BEING A FAMILY MEMBER ON OUR :
FCC COUNCIL OR NICU FAMILY ADVISORY CARE TEAM
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The Family Centred Care Council and NICU Family Advisory Care Team are important forums to further the family voice and family centred care in the care and operations at the Stollery Children's Hospital.
The Collaboration and diversity of members has contributed to our many successes to date. The enthusiasm that new member brings adds to this success.
We are currently inviting new applications from:
- Family Members of children who have received services at the Stollery
- Previous Patients or Siblings of children who have received services at the Stollery (young adults)
We are looking for new members who will:
- Share insights in ways others can learn from them
- Respect the perspectives of others
- See beyond their own personal experience
- Speak comfortably in a meeting setting
- Work in partnerships with others
- Are positive and supportive of the values of the hospital
If you are interested in being a member on either of these groups please send an email by June 6 to:
All interested family members will be notified of the interview process.
Many of our Council and FCC Network's most active members have joined after being referred by physicians, staff, and family members. A new FCC Brochure and Application form has been created to assist in sharing what FCC is at the Stollery and how physicians, staff, and families can get involved.
To view the Brochure, Council Terms of Reference, and NICU Terms of Reference click on the following links. Feel free to pass these along to anyone you feel would be a great addition to the Council, NICU Family Advisory Care Team or our FCC Network! Family Centred Care Brochure & Application form
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QUESTIONS ABOUT SIBLING CARE: HOW DO YOU MANAGE IT?
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A working group of the Family Centred Care Council is exploring the need for different spaces and services from a family perspective.
One of the areas that has been identified as a priority is the need for Sibling Care.
We are currently gathering stories and input from different families. These stories will be shared at Council and with Senior Leadership in discussions about future space needs and allocations at the Stollery.
Please click on the link below to share your experiences.
Share Your Experience
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Many nurses new to the Stollery Children's Hospital were welcomed and orientated to Family Centred Care at three key events ...
SNELP (Pediatric Nurse's Orientation)
Family members Ali Martens made the long drive from Grand Prairie, Dawn Newburry traveled from Vermillion and Tristan Pidner (from Edmonton!) spent Monday, May 5th role playing many scenarios with new pediatric nurses. These sessions always inspire engaging conversations of both families and staff.
PICU Orientation
Family members, Karen Klak and Karen Calhoun, introduced Family Centred Care by sharing their own experiences as parents of a critically ill child at the PICU orientation on May 13. The session has grown from 60 to 90 minutes and we still went over time because of the engaging exchange between nurses and families.
NICU Orientation
It was the first time for family members, Sarah Topilko and Leah Johnson-Coyle, to share their experiences at a Family Talks. The evaluations from the nurses who were introduced to Family Centred Care through hearing their journeys were exceptional.
Advancing Family Centred Care in Child and Adolescent Mental Health
Family member, Lorien Wilson and Manager FCC, Heather McCrady presented at Child and Mental Health Grand Rounds on May 1st. Congratulations go out to Lorien for being the first family member to present to this audience and furthering a conversation about Patient and Family Centred Care in Mental Health.
We have many exciting opportunities for families to make a difference by sharing your story. If you are interested in presenting at a future "Family Talk", please email:
marni.panas@albertahealthservices.ca
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CALL FOR PARTICIPATION: Parents of children and youth with medical complexity- Understanding the health service gaps in Canada
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As parents of children and youth with medical complexity, no one knows your child and family's care needs better than you. And yet 49% of parents like you report that their child has unmet needs and 33% report difficulty accessing care (Kuo et al., 2011) . How can we align health services to the real needs of families?
The Canadian Association of Pediatric Health Centres (CAPHC) is collaborating with healthcare professionals and families across Canada to start answering the big question: What resources and services do you and your child NEED?
If you would like to learn more or participate, please click on the link below:
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