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Each month, we will introduce you to two members of the Family Centred Care Council and NICU Family Advisory Care Team. This month, thanks to Child Life's Inspiration, the Family Room was turned into a castle and taken over by Princesses for Halloween! We would like to introduce you to two of them - Cinderella and Aurora!
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MEMBERSHIP CORNER -
FAMILY ROOM PRINCESSES
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 | | The Family Room Princesses Aurora & Cinderella |
What brought you to the Stollery Castle Family Room?
To put smiles on the faces of the children and their families!
What is the one thing you would like network members to know about you?
That we love being part of this wonderful place!
What is something that the Family Centred Care Network has done that you are most excited about?
The constant reminder that there is always room for a genuine and compassionate smile ... in every interaction.
(We missed two of our Family Room Princesses: One was celebrating her honeymoon with her Prince Charming while the other had a last minute crisis with her glass slipper. Special thanks to the Child Life team for including the Family Room on the Pumpkin Trail! It was too much fun!)
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With 10 Family Talks presentations in October, this was the busiest month for sharing the family perspective in this way yet!
September 30: Family Centred Care Week Joint Presentation with Alberta Children's Hospital
Karen Calhoun (FCC Council Family Member), Dr. Chloe Joynt (Neonatologist), Heather Mattson-McCrady (Manager, Family Centred Care) took turns with three presenters from the Alberta Children's Hospital in a province wide, joint "Pecha Kucha" style presentation.October 3: Stollery Pediatric Grand Rounds Heather Mattson McCrady (Manager, Family Centred Care) &Dee-Ann Schwanke (Co-Chair, Stollery Family Centred Care Council) shared the FCC Survey results during Pediatric Grand Rounds to audiences across Alberta and in Winnipeg. Joining in the conversation was Donald Lepp (FCC Council Family Member from Winnipeg, Manitoba) and Dr. Leonora Hendson (Neonatologist and former FCC Council member now residing in Calgary, Alberta). October 3: NICU Grand Rounds
Ali Martens (NICU FACT Family Member), Dr. Chloe Joynt (Neonatologist) & Marcel Panas (Coordinator, Family Centred Care) shared their presentation for the Canadian Association of Pediatric Health Centres Conference during
NICU Grand Rounds
October 3: NICU Fellows Consult Simulation
NICU Family Advisory Care Team Family Members, Joyce Tang, Laura Townsend, FCC Council Family Member, Ali Martens and FCC Network member, Sarah Topilko, joined Dr. Chloe Joynt in engaging NICU Fellows in a series of role playing exercises to help develop skills in communicating with families.
October 8: New Pediatric Nurses Orientation (SNELP)
FCC Network Family Members, Karen Klak and Christie Oswald joined Heather Mattson McCrady in welcoming new Stollery nurses at the monthly orientation.
October 15: NICU Wee Wonders Workshop
New FCC Network Member and recent NICU grad parent, Jennifer Hanrahan, gave the first of two presentations during a day long workshop for NICU nurses.
October 17: NICU Grand Rounds
Recent NICU grad parent, Cari Mutch, joined Dr. Brandene Lorraine and Dr. Juzer Tyebkhan during NICU Grand Rounds to present the personal and clinical experiences and value of NIDCAP.
October 23: Canadian Association of Pediatric Health Centres Conference (Toronto, ON)
FCC Council Family Member, Ali Martens, was invited along with Dr. Chloe Joynt (Neonatologist) and Marcel Panas (Coordinator, Family Centred Care) to share the Stollery NICU's leadership in engaging families to be "part of the story" in the training and education of NICU Fellows to a national audience of administrators, health professionals and family advisory network members.
October 26: Cardiac Symposium - Tetrology of Fallot
FCC Network Family Member, Christine Cripps-Woods and her daughter, Erin, shared the experiences of their family journey to 200 members of the cardiac community in Edmonton and to many centres across Alberta at the annual Cardiac Symposium.
October 28: MacEwan University 4th Year Nursing Students
FCC Network Family Member, Karen Klak, was joined by Marcel Panas (Coordinator, Family Centred Care) to share to forth your nursing students, the family perspective of children in palliative care and families facing a loss of their child.
October 30: NICU NIDCAP Workshop
Recent NICU grad parent, Cari Mutch, joined Dr. Brandene Lorraine and Dr. Juzer Tyebkhan once again to present the personal and clinical experiences to NICU staff during a work shop focused on developmental care of the newborn.
There is a growing belief in the value of including the family perspective in a variety of ways. This became even more evident with the number of presentations that were held in October. This is made possible because of the staff and physician's desire to engage families in this way and the ability of families to deliver their messages with great sincerity and clarity. Thanks to all of you who were involved in Family Talks events this month!
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NEW! ONLINE FCC NETWORK MEMBERSHIP APPLICATION
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Do you know anyone who would be interested in being part of the FCC Network? We've made it easier than ever to join!
Forward this primer by clicking:
Interested members can apply online or on their Smartphones or tablets by clicking on the following link:
Or by scanning the bar code above!
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CELEBRATING FAMILY CENTRED CARE WEEK
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Families enjoy cake and conversations with hundreds of staff during Patient & Family Centred Care week 2013.
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The Stollery joined Family Centred Care partners across Alberta in celebrating Patient & Family Centred Care Week September 30th to October 3, 2013.
With 15 family members contributing over 100 hours to this past week's events, this made it the largest single event that we have engaged in. By all accounts, the celebration was a huge success and resulted in many positive conversations about Family Centred Care at the Stollery.
Some of the many highlights include:
- Over 1,000 pieces were cut from 37 cakes for every unit, clinic, office at every site
- 700 of these pieces were hand delivered by FCC network members to staff and physicians
- 15 family members (and some of their children) volunteered over 100 hours to deliver cake, sitting at the display booth and delivering the various presentations
- The FCC Network engaged in conversations with over 500 different staff and physicians (group and individual) about Family Centred Care at the Stollery (yes, we counted!)
- Six Dr. Patch Up bears donated by the Stollery Children's Hospital Foundation were randomly awarded to visitors to the display booth
- We received applications from new family members
- We received numerous requests for information on where to donate to the SCH Foundation
- We received emails acknowledging the great work of staff from families who found the StolleryFCC email address on the tent cards in the main cafeteria (these comments have been forwarded to the managers in those areas)
- We received numerous comments from staff who were most appreciative
- Heather McCrady (Manager, Family Centred Care) & Dee-Ann Schwanke (Co-Chair, Stollery Family Centred Care Council) shared the FCC Survey results during Pediatric Grand Rounds to audiences across Alberta and in Winnipeg
- Karen Calhoun (FCC Council Family Member), Dr. Chloe Joynt (Neonatologist), Heather Matson-McCrady (Manager, Family Centred Care) took turns with three presenters from the Alberta Children's Hospital in a province wide, joint "Pecha Kucha" style presentation
- Ali Martens (NICU FACT Family Member), Dr. Chloe Joynt (Neonatologist) & Marcel Panas (Coordinator, Family Centred Care) shared their presentation for the Canadian Association of Pediatric Health Centres Conference during NICU Grand Rounds
This wouldn't have been the success it was without the energy and commitment of all who participated. Whether you were sitting by the booth, handing out cake, giving presentations, taking part in the Fellows training, your presence WAS the single most important part of all of these activities.
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Stollery Family Centred Care teamed up with Alberta Health Services Patient Engagement, to celebrate FCC initiatives and create awareness to staff and the public at the University of Alberta Hospital
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Dee-Ann Schwanke (FCC Council Co-Chair & Family Member) teams up with Heather Mattson-McCrady (Manager, Family Centred Care) to present the results of the recent Family Centred Care Survey at
Pediatric Grand Rounds
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INVOLVEMENT OPPORTUNITY: CRITICAL CARE REDESIGN - FAMILY MEETING WITH PLANNERS AND DESIGN TEAM
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Families have the opportunity to provide input on the development of the Functional Plan for the Critical Care Redesign. This project involves the Pediatric Intensive Care, the Neonatal Intensive Care, and Pediatric Cardiac Intensive Care. We welcome any family members from our Network who have had experience in these areas to attend a meeting with the Planning and Design team.
Date: November 27th, 2013
Time: 6 - 8 pm
Location: (TBA)
RSVP by November 20th to
kaitlin.belair@albertahealthservices.ca
Share your ideas on:
- What could better serve children and families in these areas?
- What works well?
- What could be improved?
- How you want the space to feel?
- Specific needs of children of different ages and abilities.
Three Members of the Family Centred Care Network are representing families on an ongoing basis at the Redevelopment Meetings: Karen Calhoun (FCC Council Member), Kevin George (NICU FACT Member), Sharon Willey (FCC Network Member).
Add photos of Karen, Kevin and Sharon
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ON THE ROAD - NICU NIDCAP TRAINERS MEETING, WINSTON-SALEM, NORTH CAROLINA
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Left to right: Marcel Panas (Coordinator, Family Centred Care), Leonora Hendson, (Neonatologist & NIDCAP Professional - Calgary), Andrea Nykipilo (NIDCAP Trainer in Training), Carol-Anne Middleton (Unit Manager & NIDCAP Professional), Juzer Tyebkhan (Neonatologist & NIDCAP Trainer in Training), Hannah Abdellateef (NICU Fellow & NIDCAP Trainee) & Dr. Joy V. Browne (NIDCAP Master Trainer, University of Colorado & Honorary Canadian) show their Canadian Pride in North Carolina!
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Canadians, and the Stollery in particular, were well represented at the 24th annual NICU NIDCAP Trainers Meeting held in Winston-Salem, North Carolina. The event was attended by 65 people including physicians, nurses, professors and families representing 11 countries and four continents dedicated to the neuro-developmental care of babies in the NICU.
While the purpose of the Trainers Meeting is to learn from others and share knowledge around the optimal care of these infants, a theme of supporting the staff in supporting the family in supporting the child was prevalent throughout.
In addition to the many engaging conversations, networking opportunities and team building exercises, the Stollery formally participated by:
- Dr. Leonora Hendson & Marcel Panas shared the results of the recent Family Centred Care Survey and the initiatives of the NICU Family Advisory Care Team which influenced the results
- Dr. Juzer Tybekhan shared the Stollery's response to a recent meta-analysis on NIDCAP and its affect on outcomes
- Marcel Panas & Dr. Juzer Tybekhan joined an international panel of family members reflecting on Dr. Heidelise Als presentation on "The Newborn and the Meaning of Family"
The Canadian contingent, recognized as "the most impressive team" by NIDCAP Federation International President, Dr. Gretchen Lawhon, left the conference with a new energy to continue the important work in creating Canada's first NIDCAP training centre. Not only was this a great opportunity to learn about what others are doing throughout the world but to share the Stollery's leadership and commitment to Family Centred Care leaving one participant to state:
"Your hospital is the gold standard to which all other hospitals should aspire to be."
 | | Participants of the 24th NIDCAP Trainers Meeting representing 12 disciplines (including families, physicians and nurses) from 11 countries on 4 continents |
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ON THE ROAD - CANADIAN ASSOCIATION OF PEDIATRIC HEALTH CENTRES (CAPHC) CONFERENCE, TORONTO, ON
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 Four Stollery Family Centred Care Network family members joined staff and physicians in representing the Stollery at the CAPHC conference in Toronto, ON from October 19th - 23rd. Family members who attended included: Dee-Ann Scwhanke (Co-Chair, FCC Council), Allan MacDermaid (Co-Chair, NICU FACT & Member, FCC Council), Jodie Craven (Member, FCC Council) & Ali Martens (FCC Council). The week began with the gathering of members of various patient and family advisory councils across Canada during the annual Canadian Family Advisory Networks (CFAN) annual meeting. This was an opportunity to network, learn what others are doing to further Family Centred Care in their centres while sharing many of the initiatives that the Stollery is leading in. The week continued with the beginning of the CAPHC conference which included workshops, plenary speakers, motivational presenters and social activities: all providing opportunities to share knowledge and experience. Ali Martens (FCC Council Family Member), Dr. Chloe Joynt (Neonatologist) and Marcel Panas (Coordinator, Family Centred Care) were invited by CAPHC to present the Stollery's leadership in engaging families in the training of NICU fellows during a concurrent session. The presentation was well received and inspired thoughtful discussion among the participants. We wish to express our sincere appreciation to the Stollery Children's Hospital Foundation for their continued support in providing funding for the four family members to travel to this important gathering.
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CELEBRATING OUR CHAMPIONS
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 | Family Centred Care Champion, Dr. Chloe Joynt, celebrates with
NICU Neonatologists, Fellows & Families! |
Dr. Chloe Joynt has taken Family Centred Care to the next level by engaging families in the training of NICU Fellows. She leads the way by including families in the formal orientation of new Fellows, role playing exercises focusing on communication and in preparing for their oral exams. She also models Family Centred Care in her every interaction with peers and families at the bedside and, in doing so, inspires others to do the same.
Thank you for being a champion!!!
Do you know a person or team who should be recognized as champions?
A "Champion" can be best described by one or more of the following statements:
- Have been directly involved in the development of the Family Centred Care Network and/or its initiatives
- They will have demonstrated the principles of Family Centred Care in their own practice and through their own modeling and leadership, have influenced others to be family centred in how they carry out their duties
- Have provided a significant contribution to a project or event that helps promote and carry out the philosophies of Family Centred Care at the Stollery
If this describes anyone you know, please send a brief description as to why you feel they should be recognized to:
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PEDIATRIC STROKE CONNECTIONS
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Informing parents. Empowering children.
Are you a parent of a child affected by stroke?
If you are interested in connecting with parents dealing with similar issues, and connecting your child with peers who have also had a stoke; on November 20, 2013 multiple parents and their children will be gathering to speak of their pediatric stroke experience.
They will be sharing inspirational success stories, current and reliable medical information and learning strategies to build confidence and resilience in your child.
Vision
To ignite positive thinking and the power of spirit in both children affected by stroke and in their parents.
This informational evening will be held every third
Wednesday of the month from 6:30 to 9:00 pm at Bonnie Doon Mall (Networks Activity Centre Society of Alberta #214, entrance across from Target)
To RSVP or if you have any questions e-mail Nicole, parents and program facilitator at parents@edmontonpediatricstroke.ca
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