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Each month, we will introduce you to two members of the Family Centred Care Council and NICU Family Advisory Care Team. This month we feature two FCCC members, Dee-Ann Schwanke, Co-Chair and Family Member and Dianne Tuterra, Child Life Team Leader.
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MEMBERSHIP CORNER -
DIANNE TUTERRA
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What brought you to the FCC Council?
A deep belief in Family Centred Care and finally having a counsel after 35 years.
What is the one thing you would like network members to know about you?
That I've been practicing the values of Family Centred Care for over 37 years!
What is something that the FCC Council has done (past or present) that you are excited about?
There is a definite increase buzz about Family Centred Care. It is visible, people know it. It's talked about. A lot of people know about it before but now everyone is doing something about it. It is no longer just a concept.
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MEMBERSHIP CORNER -
DEE-ANN SCHWANKE
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What brought you to the FCC Council?
My husband, Ken and I have a blended family of seven children, the youngest of which has spent much time at the Stollery. I connected with the Family Centered Care Network in 2011 after facing a challenge at the Stollery over feeding pumps. As I discovered what the Network does, and then the work of the Council, I wanted to be involved. The Council, through its ongoing excellent working relationship with the Stollery, is actively making a direct difference in the lives of patients and families. I wanted to be a part of this. There are outstanding people in the network and Council, and I am excited to work alongside them on creating a family centered culture.
What is the one thing you would like network members to know about you?
I like to be involved with things that matter - things that make a difference in the lives of people. Whether that comes in my private life or work life, I want to make a difference.
What is something that the FCC Council has done (past or present) that you are excited about?
I strongly believe that when we lead and teach others, we grow ourselves. So I am really excited when representatives from the Stollery FCC Council teach, present and share information through conferences and relationships around the world. We are doing very well as an active, functional body of an incredibly important institution in Canada. As we share what we learn with others, it will only improve our own ability to succeed. I am proud to be associated with such a highly successful and forward thinking group.
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WHAT IS IT LIKE TO PROVIDE AND RECEIVE FAMILY CENTRED CARE AT THE STOLLERY?
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On May 1st staff, physicians and inpatient / outpatient families are being invited to participate in a survey conducted by the Stollery Family Centred Care Council.
The goals of the survey is to:
1) understand the experiences and perceptions of service providers in delivering family centred care to children and their families at the Stollery.
2) understand the experiences and perceptions of families regarding the delivery of family centred care at the Stollery.
The results will be used to help improve supports for staff in delivering care and to improve supports for children and their families while at the Stollery.
The FCC Council has much to learn from this survey and look forward to sharing the results in the Fall of 2013!
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National Volunteer Week:
ENGAGE. SHARE. CARE.
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When 5 committed family members met with the Senior Management team of the Stollery in 2009 they had a hope and a vision of creating a Family Centred Care Council.
Now just 4 short years later we have:
- over 100 volunteer families Engaged on the FCC Network;
- Sharing their unique and collective experiences with staff and physicians,
- to improve the Care of children and families at the Stollery.
THANKS TO EACH OF YOU for making a difference!
Join us and celebrate together this great accomplishment!
Mark your calendars for:
The ANNUAL FAMILY CENTRED CARE NETWORK BARBEQUE
On the afternoon of Saturday, June 22nd At Riverdale Community League Hall
9231 100 Ave
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NEW EXECUTIVE DIRECTOR, STOLLERY CHILDREN'S HOSPITAL
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Participating on senior level interview panels has been one of the many important ways families have influenced the operations of the Stollery. This practice just toke another step forward when the co-chairs of the FCC Council, Loreen Gomes and Dee-Ann Schwanke, along with the the FCC Staff, Heather McCrady and Marcel Panas met with Mike Conroy, Senior Vice President of the Edmonton Zone.
This meeting resulted in family members having input on the position description, and interview process. Christie Oswald, a member of the FCC Network, brought the family perspective to the selection process by participating on the interview and selection panel for the new Executive Director.
We welcome Ms. Tracy MacDonald to the Stollery who has been appointed as the Executive Director of the Stollery effective May 13th 2013. Most recently Tracy was the Health Services Administrator at the Kelowna General Hospital with the Interior Health Authority in British Columbia. Previously she was the Chief Operating Officer and Vice President of the Sault Area Hospital in Sault Ste. Marie, Ontario. Her pediatric experience includes nine years as a Director in various roles at the Children's Hospital of Eastern Ontario in Ottawa.
We look forward to working with Tracy in her new role at the Stollery.
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CREATING IMPORTANT SPACES
OF BEAUTY AND COMFORT
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On April 5th over fifty people, including students, families and staff, celebrated the completion of an important collaboration between the Victoria School of the Arts and the NICU Family Advisory Care Team (FACT).
Until now, new families first impressions of the NICU at the Royal Alex site were created when entering the unit via this white hallway.
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The NICU (FACT) enthusiastically took on this project and contacted the school. Family members had the pleasure of choosing twenty six different pieces of art from the many creative works of students from Grade 1 through Grade 12. These pieces are now displayed at the pedway entrance into the Royal Alex Neonatal Intensive Care Unit from the Lois Hole Hospital for Women - brightening the space and creating a much warmer welcome for families who are entering an often unexpected and difficult time in their child's early life journey. It also provides an important place for families to have a visual break, and to recognize hope in the creative work of young people.
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A BIG Thank you to:
- All of the students for sharing their artwork!
- Patty Harrigan, the art teacher, and the Victoria School of the Arts for enthusiastically engaging in this project,
- Laurina Panas, Jodie Craven & Allan MacDairmid, members of NICU FACT, for taking on this project.
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RECOGNIZING OUR CHAMPIONS!
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Michele Beaumier receives his Champion pin from FCC Network Family Member Christina Herbers
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There are many people who do great things to unleash the culture of Family Centred Care at the Stollery Children's Hospital. We have introduced a program designed to recognize these individuals or groups as Family Centred Care Champions, celebrate their contributions and share the results of their efforts with others to further the growth of Family Centred Care.
Many families who visit the 1D1 Outpatient Clinic at the Stollery Children's Hospital will recognize Michele Beaumier who greets each family with a smile and a friendly "hello". Michele has been "caught in the act" many times makign families feel welcome and ensuring they are aware of all of the services of the clinic and contact information. Michele was presented with his FCC Champion pin during one of their regular staff meeting giving everyone in the 1D1 clinic an opportunity to celebrate the great care that families receive during their many appointments. Thank you, Michele, for being a Family Centred Care Champion!
Do you know a person or team who should be recognized as champions?
A "Champion" can be best described by one or more of the following statements:
- Have been directly involved in the development of the Family Centred Care Network and/or its initiatives
- They will have demonstrated the principals of Family Centred Care in their own practice and through their own modeling and leadership, have influenced others to be family centred in how they carry out their duties
- Have provided a significant contribution to a project or event that helps promote and carry out the philosophies of Family Centred Care at the Stollery
If this describes anyone you know, please send a brief description as to why you feel they should be recognized to:
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FAMILIES COLLABORATE TO EVALUATE NICU NIDCAP PRACTICES!
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Parents - clockwise from bottom right: Amanda Proctor, Stephanie Amoah, Nicole Lyste, Kristy Wolfe,
and Marcel Panas
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Over the course of the last few months, family members have been gathering monthly to work through an audit of the NIDCAP practices in the NICU. They evaluated the philosophy of care for the infant, the family, staff and the physical environment. The evaluations of the families were then combined with the perspectives of staff at the four Edmonton NICU sites. A final report of these combined efforts will not only include the evaluations, but recommendations of what needs to be done to create a top NICU NIDCAP Training Centre in Edmonton while improving care and services for patients, families and staff.
Thank you to Dr. Juzer Tyebkahn for continuing to include the family perspective in this important work. And a special thank you to family members Nicole Lyste, Amanda Proctor, Stephanie Amoah, Kristy Wolfe and John Tachynski for your contributions to this important work!
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HELPING OUR RESIDENTS LEARN - THE STACER
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Our general pediatric residents are entering exam season. We are looking for patients/parents to participate in the "STACER" exams (STructured Assessment of Comprehensive Exam Reports):
Dates: This Wed - May 1 - 8:30am, and Wed May 15, 8:30am, and possibly another date in June
Duration: about 90 min max
Process: a senior resident interviews a guardian about the child' s complete health history, focusing on the main/current/active issues, and does a complete physical exam. This is a timed process of 60 minutes maximum, and is observed by 2 pediatrician examiners (they remain silent/passive during their observation, but make notes on the resident's skills).
Location: 2nd Floor of ECHA (multi-coloured building west side of UAH)
Compensation: $50 paid in cash to the parent
What is needed:
a) Parent must be able to give a clear history
b) Child likely to cooperate with being in a room for 60 min, and tolerate a physical exam
c) Child has one significant health problem (eg Down syndrome, or diabetes, or Crohn's) and a few minor health issues
d) The child's physician must also be able to provide a brief summary of the child's health issues
if you are interested in participating, please contact:
erin.blazey@ualberta.ca
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Thank you to family members, Christie Oswald and Karen Klak, Nurse Practitioner, Kathy Reid and Clinical Nurse Educator, Julie Moore for welcoming 10 new nurses to the Stollery Children's Hospital at April orientation! As always, the real life stories from the family and staff perspective proves to be invaluable in the orientation and training of our new staff!
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