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Each month, we will introduce you to two members of the Family Centred Care Council and NICU Family Advisory Care Team. This month we feature three NICU Family Advisory Care Team (FACT) members, Andrea Brand, a Nurse in the NICU at the David Schiff site, and family members Allan MacDairmid (co-chair of FACT) and Jodie Craven.
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MEMBERSHIP CORNER -
ANDREA BRAND
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What brought you to the NICU Family Advisory Care Team?
I was interested in hearing the families feedback about the care we provide in the NICU. As a bedside nurse, joining the team was a unique opportunity to find ways of improving my practice as well as the way we practice as a team in the NICU.
What is the one thing you would like network members to know about you?
we are expecting our second child in August !
What is something that NICU FACT has done (past or present) that you are excited about?
I like that we did a petition to try to get free parking for parents in the NICU. I hate that family members have to pay for parking at all when one of their loved one is in hospital.
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MEMBERSHIP CORNER -
JODIE CRAVEN & ALAN MacDAIRMID
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 | Jodie Craven, Allan MacDairmid and two week old
Malcolm MacDairmid! |
What brought you to
the FCC Council?
Our first son, Frazer, spent six weeks in PICU/NICU with a congenital heart defect before passing away. We wanted to advocate for families who will have to face similar circumstances in the future.
What is the one thing you would like network members to know about you? We are proud parents who love sharing stories about Frazer and his younger brother Malcolm who is almost three weeks old. What is something the Council has done (past or present) that you are excited about? Sharing experiences with other staff and family members and using those experiences to promote family centered care. For example, we are working on a new initiative to help families track and celebrate milestones that are unique to life in the NICU.
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EMPATHY: EXPLORING THE HUMAN CONNECTION
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"What if you could see people's thoughts, feelings?"
The Cleveland Clinic in Cleveland, Ohio, does an amazing job answering this question through a video they produced entitled "Empathy: The Human Connection to Patient Care"
We encourage you to take a few minutes to look at this video at the following link. It will be sure to make you wonder with compassion about the stranger that passes you in the hallway and challenge you to put yourself in the shoes of the people you care for (at home and at work).
Thank you to Anne Lemieux, Senior Consultant - Patient Engagement, Alberta Health Services, for sharing this powerful video!
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FAMILY INVOLVEMENT ON EXECUTIVE DIRECTOR
INTERVIEW PANEL
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The FCC Council is excited to participate in the selection of the new Executive Director of the Stollery!
Understanding this role from a unique perspective the Council has discussed the important attributes and skills of this position and its important influence within the organization. As a result family members of the Council have contributed revisions to the position description, and a member of the FCC Network will be a member of the interview panel.
Thank you to Mike Conroy, Senior Vice President, Edmonton Zone, for collaborating with the Council in this important operational initiative.
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NEW FCC COUNCIL MEMBERS BRING NEW PERSPECTIVES
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The FCC Council has 7 new members!
One of the commitments of the Council has been to ensure renewal of membership. In this way new perspectives and ideas are brought to the discussions and decisions of the Council.
The Council welcomes:
Family members: Amanda Proctor, Alison Martens, Poonam Madan.
Resident member: Hannah Weinstangel
Staff members: Carol Brzezicki (Manager, Aboriginal Health), Sarah Kane Poitras (Patient Care Manager, Ambulatory Care), Tim Tsounis (Patient Care Manager, Surgery)
The Council is interested in hearing the Father's perspective. If you know of a Father who would like to participate on our Council, please contact Heather McCrady
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FCC BROCHURE AND APPLICATION FORM
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Many of our network's most involved members have joined the network after being referred by physicians, staff and family members. A new FCC Brochure and Application form has been created to assist in sharing what FCC is at the Stollery and how physicians, staff and families can get involved.
To view the new brochure, click on the following link. Feel free to pass it along to anyone you feel would be a great addition to the network!
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STOLLERY MIRACLE FAMILY NEWSLETTER - WINTER 2013
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 The FCC Council bid a fond farewell to Linda McConnan as she prepares for retirement from her position as Executive Director of the Stollery Children's Hospital.
We wish to thank you, Linda, for your leadership and support of Family Centred Care values, not only throughout the existence of this Council, but for all the children and families you have cared for in the past 30 plus years.
We wish you and your family all the best of health and happiness during the next exciting phase of your life.
Click on the thumbnail below to view a brief video that was shared with Linda on behalf of Council and the Network!
 | | Thank You, Linda, from the Stollery Family Centred Care Network |
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RECOGNIZING OUR CHAMPIONS!
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 | Linda McConnan receives her Champion pin from FCC Council and family members, Simone Chalifoux and Karen Klak.
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There are many people who do great things to unleash the culture of Family Centred Care at the Stollery Children's Hospital. We are introducing a program designed to recognize these individuals or groups as Family Centred Care Champions, celebrate their contributions and share the results of their efforts with others to further the growth of Family Centred Care.
We are thrilled to announce the first of our two inaugural recipients of the soon to be coveted Family Centred Care Champion pin!
There have been many people who were instrumental in the creation of the FCC Council and will all be recognized in due time. As she approaches her retirement, it is most fitting to honor Linda McConnan, Executive Director, not only for here dedication to the creation of this council, but her leadership and contributions since its establishment four years ago. Through her words and actions she continually reminds everyone she comes in contact with that including families "Is the way we do things at the Stollery". Thank you, Linda, for all you have done in unleashing the culture of Family Centred Care at The Stollery!
Do you know a person or team who should be recognized as champions?
A "Champion" can be best described by one or more of the following statements:
- Have been directly involved in the development of the Family Centred Care Network and/or its initiatives
- They will have demonstrated the principals of Family Centred Care in their own practice and through their own modeling and leadership, have influenced others to be family centred in how they carry out their duties
- Have provided a significant contribution to a project or event that helps promote and carry out the philosophies of Family Centred Care at the Stollery
If this describes anyone you know, please send a brief description as to why you feel they should be recognized to:
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 | Karen Klak and Hope Chick present to 4th Year
MacEwan University Faculty of Nursing |
McEwan University - 4th Year Nursing Students - Bereavement & Loss
Family member Karen Klak and MU Faculty and previous Clinical Nurse Specialist with the Stollery Children's Hospital, Hope Chick, shared their own experiences of preparing for and dealing with loss to 4th year nursing students. The audience was captivated by the two perspectives, one of a mom and the other of a caregiver, during their own very personal experiences through the end of life journey.
Communicating with Residents
Family members, Darlene Thompson and Karen Calhoun,
spent an afternoon with Residents from Surgery, Emergency, PICU and Cardiology during their weekly Academic Half Day. The presentation about communication with families quickly turned into an engaging and sincere conversation which lasted 30 minutes longer than the 1:15 that was originally scheduled for this presentation. Special thanks to PICU Intensivist, Dr. Dan Garros, for your leadership in engaging families in education of our Residents.
University of Alberta Nutrition Students - Tube Feeding
Family members, DeeAnn Schwanke and Tara Hergott, teamed up once again to share the experiences of their families living with a child who has a g-tube. This is the second year that DeeAnn and Tara have presented to U of A Nutrition Students. The student evaluations always indicate this presentation as a high light in their education.
McEwan University - 3rd Year Nursing Students - Tube Feeding
Family member, Dee-Anne Schwanke, shared the journey of their son and entire family as they experience life with a g-tube. Her ability to share her story with honesty and sincerity, mixed in with a little humor, really connected with the three 3rd year university nursing students.
Family member's, Dee-Ann Schwanke and Christina Herbers, along with Clinical Nurse Educator, Wanda Ma, welcomed 17 new staff to the Stollery during their orientation.
Thank you to all of the family members and staff who collaborated together to provide these amazing presentations. The evaluations for all presentations had a profound impact on the participants.
If you are interested in introducing the values of Family Centred Care to staff through the sharing of your personal journey, please click on the link to email Marcel Panas!
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FEEDING STRATEGIES WORKSHOP
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Increasing Nutrition and Food Variety with the
Get Permission Trust Approach to
Mealtimes and Basic Sensory Strategies
Learn about feeding strategies to manage children with mild to severe feeding difficulties. Specifically:
- The Get Permission Trust Approach to mealtime and basic sensory treatment, including how it relates to tube fed children and their families
- Making the best use of common GI diagnostic procedures
- Oral cautiousness vs. oral aversion
- Ways to make tube feedings part of mealtimes
- Setting Goals and strategies for improving nutritional intake
When: Friday, April 26th, 8:00am - 3:00pm
Where: University of Alberta Hospital
To register or to find out more on the program visit http://www.cvent.com
Click on 'RSVP on an event'
Event code: DCNNV6N6S3Q
*See attached poster*
Workshop Poster
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