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Patient Navigator specializes in:
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Volume 5 Issue 1
| September 2014
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Dear Readers,
Any serious diagnosis thrusts patients and their families into an unfamiliar world of doctors, tests and treatment options. They must simultaneously find information, make decisions under pressure, seek the best medical care, cope with family changes, and deal with insurance, financial, employment, caregiver or school issues.
Below are my four Key Tips as you begin the journey through illness.
And don't forget: the Fifth Annual Conference of the National Association of Healthcare Advocacy Consultants (NAHAC) is coming up October 30-November 1 in Chicago. Join us as we debut the "Standards and Best Practices for the Field of Healthcare Advocacy." Learn more here.
Elisabeth Schuler Russell
Founder and President
Patient Navigator, LLC
Past President, National Association of Healthcare Advocacy Consultants Member, Society of Certified Senior Advisors
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#1. Get Smart Fast.
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Become a savvy, health literate advocate.
Gather good information using only credible sources. National advocacy groups often have excellent information, such as the Alzheimer's Association. For cancer research, start with the National Cancer Institute and the American Society for Clinical Oncology. An excellent site is UptoDate clinical database with many free patient articles. The National Library of Medicine offers PubMed for academic research, articles and much more.
Beware of Dr. Google.
When evaluating health information on the internet, think about: Who operates the website? Who is responsible for the website's content? Who funds the website? H ow does the website maintain your privacy?Where do they get their information? H ow current is the information on the website? Does the website have a linking policy? What does your doctor say? Source: American Society of Clinical Oncology.
Learn the vocabulary of your disease.
This will help you understand what medical professionals tell you and position you to be a better advocate for yourself. Doctors respect that.
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#2. Get Organized.
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Take names and take notes from the very start.
It doesn't matter if you use a computer program or a small notebook. Develop a system that works for you. Keep a chronology of conversations and doctor visits, diagnostic and lab test results, symptoms, treatment plans/options, medications and any reactions to them. Collect business cards of your providers and keep them in a plastic sleeve.
Prepare a medical history and medication list.
You may be seeing many doctors or specialists. Type up a clear, concise medical history, including allergies, surgeries and major illnesses. Ask the nurse to put it in your chart and hand a copy to the doctor. You'll still have to fill out their forms, but they might pay more attention to your document than the form. Keep an up-to-date medication list and bring it to every visit.
Read and understand your insurance policy.
Learn the definitions and differences between co-pays, deductibles, co-insurance, pre-authorization, out-of-network, formulary tiers, denials, appeals and all the rest. Ask for an insurance case manager for complicated situations. Always check to see whether the medical professional you want to use participates in your insurance.
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#3. Stand your ground, nicely.
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Make friends and learn names.
You will need the help of front office staff, aides, nurses, and the billing office. Especially in a big institution, it helps to know and ask for specific people.
Come prepared.
Bring questions to your doctor visits but don't dump 12 inches of Google research on their desk. Bring a note taker if possible. Be mindful of the physician's time but don't let yourself get rushed out of the office if you haven't finished.
Get second or third opinions.
Don't feel stuck with the treatment team that first saw or diagnosed you. Ask for a full range of treatment options and research them yourself as well. You are the center of the medical team you will be building. Make sure you are satisfied with your doctors' credentials, experience and bedside manner. Verify that the doctor accepts your insurance.
Ask about medications or tests that you are being prescribed and why.
There may be alternatives, like a cheaper generic medication. Or maybe you don't need another MRI so soon. Remember, doctors have no idea or concern about what things cost you, your insurance or Medicare. Their "defensive medicine" can cost you a fortune.
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#4. Always Follow-Up.
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Never assume things will work as they should.
If someone tells you he or she will do something - consult with a colleague, order a test, fax a document, call you with results, talk to your insurance, phone in a prescription - make sure to follow up yourself. All too often, these things fail to happen as promised, with sometimes serious consequences.
Schedule appointments as early as possible.
Many specialists are booked months in advance. You can ask to be put on a cancellation list and call frequently to check for unexpected openings. This is where the "making friends" advice can help.
Continue your medical education.
Medical breakthroughs happen every day. Once you have identified your credible sources, check regularly for new information. Google Alerts are one useful tool that will send updates on the topics you request.
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| The NAHAC Conference - Chicago 2014
"Mastering the Power and Direction of Healthcare Advocacy."
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Healthcare advocates, patient navigators, healthcare providers and caregivers will meet at the National Association of Health Advocacy Consultants Fifth Annual Conference, "Mastering the Power and Direction of Healthcare Advocacy," to be held October 30th - Nov. 1, 2014 in Chicago, Illinois. The November 1 morning sessions will be open to the public but registration is required. Healthcare advocates from across the country will meet to explore the challenges of our rapidly evolving healthcare delivery system. In the keynote presentation and those following, speakers will provide an in-depth examination of the issues that both advocates and family caregivers must confront as policy and technology impact quality, coordination of care and patient safety. Making its debut: "Standards and Best Practices for the Field of Healthcare Advocacy." As healthcare advocacy grew into a profession, completing a set of standards and practices for healthcare advocates became a necessity. NAHAC stepped forward to develop these standards, creating a foundation for the profession of healthcare advocacy. NAHAC14 will be the first public presentation of these recently completed guidelines. This event is great for current advocates or those who are interested in doing this work. Come one, come all! |
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