It's been a while since we've written a newsletter....lots has happened that has needed our utmost attention. Many apologies! But lo, and behold! Summer is here! We are winding down the days at our children's schools, and I know many of you are already out for summer. I heard that some schools up north are in school until the end of June due to the snow days, so it's a crazy time of year. Regardless, the Earth still spins and time still flies!
It's very interesting how easy it is to talk about how we don't take life for granted. Words, words... We talk about how we put others first, treat others as we want to be treated, and we are ever so grateful. Again, words, words... We have always openly talked to our kids about these words of wisdom, but the past year has offered us a challenge which has forced us to live up to all the hype. Living with true gratitude, compassion and grace has been MUCH more difficult than we ever thought.
A little over a year ago, our oldest daughter's hair started to fall out. She had a massive amount of thick, long blonde hair and over the course of a few short months, she lost about 90% of it. My dad had alopecia, so I knew what to look for, but it didn't follow any pattern of alopecia. We went to several dermatologists with little help. Then she started developing a telltale round bald patch and she was diagnosed with autoimmune alopecia areata. All the doctors told us there is no way we will ever find the trigger that flipped the switch. I became obsessed with researching alopecia and autoimmunity because we were getting no answers; it made no sense at all to me that we couldn't figure out or at least narrow down the field of possible triggers. A 14-year-old's hair just doesn't fall out without a trigger. It was a sign that something was wrong with her health, so we became her best advocates.
I researched the genetic mapping for alopecia and it is actually not related to skin autoimmune conditions (we were seeing a dermatologist??), but rather more closely to celiac disease, rheumatoid arthritis and Type 1 diabetes. I knew from graduate school about the nutritional protocols for these diseases, so I began to research autoimmune nutritional protocols. We completely overhauled our diet, took her off the meds they had prescribed for her (immunosuppressive drugs for an already messed up immune system), ran some other gut and allergy tests, and today we are seeing enough hair to have the cutest little bobbed haircut on the cutest 14 year old you have ever seen. We called and scheduled the haircut as soon as school is out! She is so excited to get rid of the hairpiece she has had to wear (we were so grateful to have found it!). We are hopeful that this will at least control the alopecia, knowing that we won't necessarily cure it.
Watching our daughter go through this was heartbreaking. What she will never understand is that she is more beautiful today than ever before because of the grace, compassion and confidence she exudes now. Middle school is difficult enough if everything is going well. The things said to her, the comments we overheard from girls at school while we were watching her play her heart out on the volleyball court, the friends that let her down have been eye-opening to say the least. The gift from this hardship was finding out who her true friends were and she has a sweet group of great friends who wouldn't care if she was as bald as a cue ball!
We have had many days of tears and breakdowns. Through it all, though, we have had to live with gratitude that we are dealing with hair loss not something more serious. We have had to live with grace as we forgive the kids that have made her life even more difficult. Anna has become so much more confident, so much more grounded as she has learned to focus on what she can control. Compassion, grace and gratitude....words to live by for sure.
We are grateful for our customers, for your patience as we heal our family and juggle several jobs at once, and for your support as we grow our company.
With our Gratitude,
The Beck Family