Connections, e-Newsletter
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November 2014

 Vol. 5, No. 11    

 www.caregiver.org

(800) 445-8106

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Newsletter Credits

 

Editors
A.J. Dugay

Andrea Orvik
Michelle Venegas 
 

Contributors

Kathleen Kelly
A.J. Dugay
Andrea Orvik
Lana Sheridan
Michelle Venegas

Graphics/Production
Andrea Orvik


Executive Director
Kathleen A. Kelly

Board of Directors 

 

Directors
Ping Hao, President
Herman S. Brown
Katy Thomas Fike
Moira Fordyce
Jeff Kumataka
Jacquelyn Kung
Mark Lachman
Dan Lieberman
Michael Malewicz
Rajiv Mehta
Kathleen Raffel
F. Burns Vick
Deborah Wolter

 

November is National Family Caregiver's Month. FCA recognizes all the hard work that our nation's dedicated caregivers provide everyday! In honor of Thanksgiving, FCA wholeheartedly thanks you for the care and support that you provide to the person(s) to whom you care. We know its not an easy task. Your commitment to the health and well-being of your loved one is admirable and impressive. Below you will find several articles and upcoming events for family caregivers in the Bay Area, that we hope you find useful in your caregiving journey.


You may notice that this issue of Connections has a different look and feel. We would appreciate any feedback that you have for us. Please email me directly at adugay@caregiver.org.


Sincerely,

AJ Dugay  

Education Coordinator, Family Caregiver Alliance 

CommAnnounceSPECIAL ANNOUNCEMENTS
Caregiver Support Group in Alameda County

FCA would like your feedback on having a caregiver support group held in Alameda County. Please click HERE for the survey, thank you!
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November: National Caregiver's Month  
 
Remember to Acknowledge and Support the Caregivers in Your Life! 
 

  

 
LEADARTICLESLEAD ARTICLES FOR CAREGIVERS
How to hire in-home help when your aging parents don't want to move- PBS Newshour

 
Worrying about the safety and health of your frail or ill older family member at home can consume your thoughts, making it difficult to focus on other important demands in your life...
 

How to balance your career with the needs of an aging family member- PBS Newshour  


Holding a job and caring for a frail or ill older family member at home can be a huge challenge as you attempt to balance competing demands on your time and energy. As our population ages, more families than ever are providing this care... 
 



"The capacity to care is the thing which gives life its deepest meaning and significance."

- Pablo Casals



What Are the 3 Steps to Becoming Stress-Proof?- Time.com 

 

We all handle stress differently. Some common ways that people deal with stress are not necessarily effective. Find out what actually works to reduce stress... 

 



"Caring for our seniors is perhaps the greatest responsibility we have. Those who walked before us have given so much and made possible the life we all enjoy."


-John Hoeven

 


 


When the War Comes Home- The Daily Beast

There are more than 5 million military caregivers providing care. One military wife talks about her struggles her husbands deployment and the challenges caring for him upon his return. The  random outbursts of rage that drove him and his family apart and the discovery of his many injuries including a traumatic brain injury... 

 


  

"From caring comes courage."  

   

- Lao Tzu

   
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Seeing the 'Invisible Patient'- The New York Times   

 

Often healthcare professionals overlook the caregiver as a patient themselves. With caregiver burden becoming such a prominent issue, it's vital that physicians assess the health and well-being of family caregivers as well as the care receiver...

 

 [Read More]    
CGINFOCAREGIVER INFORMATION
Together Strong App: Veterans & Service Members Help Peers Adjust to Civilian Life- Kognito

A new App that uses virtual humans and gaming technology to help veterans and active service members learn what to say and do when a peer is struggling with adjustment to civilian life...

 


Alzheimer's Disease & Caregiving (Fact Sheet)- Family Caregiver Alliance

Alzheimer's disease (AD) is a condition that causes abnormal changes in the brain mainly affecting memory and other mental abilities. Alzheimer's is a disease, not a normal part of aging...
 
FCAEVENTSFCA PRESENTATIONS & WORKSHOPS
SAVE THE DATES! December 16th and January 21st

Two Upcoming Webinars on use of Technology in the Home by Family Caregivers.

December 16th, we will explore Current Trends and Emerging Products for consumer home technologies for family caregivers and on January 21st, we will highlight finding and using the best new technologies now on the market in the second webinar entitled, New Technology Products and Services: Making the Match for Caregiving Families. More information to follow but save the dates for these exciting new informational webinars!
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December 17, 2014; 1:00pm-2:00pm (PST) - ONLINE
 

How to Prevent Falls in Aging Adults- Webinar 

Worried about falls in an aging adult?

In this webinar, geriatrician Dr. Leslie Kernisan will discuss practical approaches that you can take, to help an older person reduce the chance of a serious fall.   

  

*This webinar costs $15 (please purchase ticket at least 24 hours before this webinar). You have the option to register to view it live OR as a recording. CEU's are available through the Board of Behavioral Sciences (MFTs, LCSWs, Ed. Psychologists, & Licensed Professional Clinical Counselors)  

  

To Register: Click 
 HERE   
  

January 21, 2015; 1:00pm-2:00pm (PST) - ONLINE

The Normal Aging Process and How it Affects the Body- Webinar

FCA presents a webinar on how aging affects the body and suggestions on healthy aging. Our bodies are miraculous, over hundreds of miles of nerves, tendon, muscles and veins. Mix in the water, minerals and brain matter and we have a life. An average life span for 2014 is now 80.4 years in California. (More or less for race). As our bodies age each body system goes through changes. We will discuss each of the 11 body systems and how they may be altered by age. We will also look at ways we can either slow or repair those changes.


*This webinar costs $15 (please purchase ticket at least 24 hours before this webinar). You have the option to register to view it live OR as a recording. CEU's are available through the Board of Behavioral Sciences (MFTs, LCSWs, Ed. Psychologists, & Licensed Professional Clinical Counselors)

To Register: Click  HERE  

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February 20, 2015;
8:30 AM - 4:30 PM  in San Francisco 
 
Preparing for the Changing Horizon: Dementia Awareness and Caregiving for LGBT Older Adults in Diverse Communities Conference

The Stanford Geriatric Education Center, Family Caregiver Alliance, Openhouse, Alzheimer's Association, UCSF NorCal Geriatric Education Center, Institute on Aging and The San Francisco Department of Aging are hosting a 1-day educational program on dementia care and caregiving for diverse, (Lesbian/Gay/Bisexual/Transgender) older adults. Come join leading experts and community leaders at this anticipated event designed specifically for the LGBT community, their famillies, friends and partner caregivers, as well as healthcare/social service providers and policy makers.

 

 

Where:The Milton Marks Conference Center, Hiram W. Johnson State Office Building, Lower Level

455 Golden Gate Ave., San Francisco, CA 94102

  

To Register: Click HERE 

  

  

COMMEVENTSEVENTS IN THE COMMUNITY

November 20, 2014; 6:00pm - 8:00pm in Berkeley  

 

"Intergenerational Living" Architecture for Community  

   

Both aging baby boomers and families who want their children to grow up in age diverse environments are increasingly interested in forming intergenerational communities yet housing design and development opportunities are lacking. Prof. Sieple-Coates will talk about what architecture can do to provide such opportunities, present examples of realized projects and share ideas from her graduate students.  

 

Where:

Ed Roberts Campus

3075 Adeline, Berkeley, CA

At Ashby Bart Station, Fully Accessible

 

 

To Register: Contact sstadler@AtHomeWithGrowingOld.com

 

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November 22, 2014; 10:00am-6:00pm in Berkeley 

 

Free Senior Health Fair

 

University of the Pacific School of Pharmacy & Health Sciences as part of their community outreach program will be hosting in conjunction with the Center for Independent Living a free Senior Health Fair.

They will be offering a variety of FREE services including:

 

*             Medicare Part D plan assistance

*             Blood Pressure Testing

*             Cholesterol Testing

*             Diabetes Testing

*             Body Fat Analysis

*             Anemia Testing

*             Bone Density Testing

*             Falls Risk Assessment

*             Asthma Testing

*             COPD Testing

*             Depression Screening

*             Anxiety Screening

*             Immunizations  

*             Medication Use Safety Training

*             And much more

 

 

Where: Ed Roberts Campus
3075 Adeline St, Berkeley, 94703

 

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November 26, 2014; 12:00pm-2:00pm (streaming live) 

 

History of Dementia and Brain Disorders

 

Presented by Mary Hulme of Moonstone Geriatrics.  

 

Click HERE for live stream.

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Part 1: December 3; Part 2: December 10; Part 3: December 17; 10:00am-12:00pm in Lafayette

 

Living with Alzheimer's: For Caregivers (3-part workshop)  

 

When someone is diagnosed with Alzheimer's, friends and family have many questions. What does the diagnosis mean? What kinds of plans need to be made? What resources are available to help? As the disease progresses, there is growing needs for skills, programs and services. "Living with Alzheimer's for Caregivers" is a series of education programs that provide answers to the questions that arise in the early, middle and late stages of the disease. Hear from those directly affected and learn what you need to know, what you need to plan for and what you can do at each point along the way. 

Where: 3675 Mt Diablo Blvd #250, Lafayette, CA 94549

To register: Contact Lan Trinh at 800.272.3900

 

Pre-registration is REQUIRED.

Meeting times and location

will be provided after

registration is complete.

 

Caregiving InformationRESEARCH OPPORTUNITIES FOR YOU

PROFESSIONAL LISTINGS:

 

Life Enhancing Activities for Family Caregivers (LEAF)

 

Researchers at the University of California San Francisco are testing a program for family caregivers of people with dementia. Six positive emotion based skill-building sessions are delivered one-on-one via videoconferencing on study-supplied tablet computers, so caregivers can take part from anywhere in the USA. This study consists of six weekly hour-long sessions, nightly home practice, and online surveys. To be eligible, you must be the primary caregiver of someone with any type of degenerative dementia, and you must have consistent access to a reliable wifi connection for your weekly sessions.  

 

For more information, please access our website:

HERE, email us at: leaf@ucsf.edu, or call (415) 514-2935.

 

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Caregiver Health-eBrain Study: Research to Improve Brain Health

 

Are you one of the 15 million caregivers looking after a loved one with Alzheimer's or other types dementia? Help scientists understand how the caregiving lifestyle impacts brain performance. Join the Caregivers' Health-eBrain project and participate in an online study to assess your cognition. 30 minutes of your time is what's required. 

 

For more information or to join the study, Click HERE  

 

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Age Differences in Health-Related Behaviors of Family Caregivers

 

Researchers are seeking to learn about health and self-care behaviors of family caregivers.  Eligible participants must be a primary caregiver to a relative 50+ with a chronic illness, disability, or terminal illness, provide 10+ hours of care per week, and have been a caregiver for at least 6 months.  Information will be collected through an online survey which is estimated to take 20 to 25 minutes to complete.  Following completion of the survey, participants have the option to receive a University of Kentucky promotional item.  If interested, contact Natalie at natalie.pope1@uky.edu or access the anonymous survey using the link:

 

HERE 

 

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Young Adults as Family Caregivers

 

Are you between the ages of 18 and 40 and caring for a relative with a chronic illness, disability, or terminal illness? Researchers at the University of Kentucky and Western Oregon University are seeking to learn more about how young adults assume the role of family caregivers and the effects of off-time caregiving on education, employment, and social relationships.  Participation involves a 60 to 90 minute telephone interview and providing feedback on preliminary research findings via email.  Participants will also receive a $25 check. For more information, contact Natalie at 859-218-2768 or Paula at 503-838-8065.

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Dementia Behavior Study

 

Are you caring for a person with dementia and dealing with challenging behaviors? Do you live in the greater Baltimore metropolitan area? This research study evaluates ways of helping families address challenging behaviors of persons with dementia who are living at home. Participation involves 3 home interviews and up to 8 home visits with research staff over 3 months, to learn potentially helpful strategies to care for a person with dementia. For more information, call 443-287-4595.  

 

Laura N. Gitlin, PhD: Principal Investigator,
IRB# NA_00067873; Funded by National Institute on Aging

 

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GRADUATE LISTINGS:

 

Do you have a family member who is near the end of life, and who lives away from you?

 

Oxford Brookes University is conducting a study exploring the views and experiences of people who have a family member nearing the end of life who lives away from them, making visits difficult, whether in a different town, state, or even a different country.

 

The views and experiences of distance caregivers are an under-researched area. This is why we need volunteers for a short online survey, so that we can learn what people who are providing support to such a relative need.

 

This study is part of a PhD at Oxford Brookes University (UK) and has been approved by England's National Health Service (NHS) Research Ethics Committee. All responses will be treated as strictly confidential and later anonymised.

 

If you would like to learn more about this study, or know someone who might, please follow this link: HERE, or email the Chief Investigator Carolina at 12090237@brookes.ac.uk.

 

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Smart-Home Technology and caregiving - Monitoring and Visualizing sensor data

 

Are you a family caregiver and interested in Smart-Home Technology?

 

A Smart-Home can be considered as a dwelling fitted out with sensor technology that observes the residents. It can reduce the amount of work for health providers or family caregivers. Monitoring, visualizing and making this data accessible for each party involved can give insights into the activities and the overall wellbeing of the residents.

 

We are conducting an online survey that will help develop a user-friendly application for visualizing sensor data for older adults and their caregivers.

 

More information and the online survey can be found  HERE. 

 

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Usability Impact of Injection Devices

 

Have you or the person you're caring for ever experienced any type of issues or problems during the first few attempts at using an injection device at home, whether this applies to a current device/drug or a previous device/drug? Please share your injection experiences with me through this anonymous 10 minute survey. I am interested in issues involving all forms of injection devices, including: vial/syringes, prefilled syringes, injection pens, auto-injectors, and reconstitution kits. For every survey completed I will donate $1 to Red Cross or The Humane Society (your choice). For more information, contact me at: drswett@hotmail.com.

Survey Link: HERE 

 

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Anticipatory Grief Study: Caregivers of Terminally Ill Invited to Participate

 

My name is Kylie, and I am a licensed professional counselor (LPC), nationally certified counselor (NCC), college professor, and doctoral candidate. My dissertation study is intended to help counselors better serve anticipatory grievers (i.e., people who are preparing for a loss). Eligible participants must be 18+ years old and be a family member or friend of an individual who is living with a terminal condition (e.g., end-stage cancer, advanced Alzheimer's, other chronic diseases, etc.). The survey is available both online and in hard copy form (hard copies can be requested by email). All participants may choose to enter into a drawing for one of three $50.00 gift cards. Thank you!

Online survey: HERE

Contact Information: Kylie B. Rogalla, M.S., LPC, NCC; krogalla@iusb.edu; (507) 993-6766

 

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Online Study for Caregivers

 

Are you currently an unpaid caregiver for a loved one? Often times the well-being and experiences of the caregiver are largely ignored. This is your chance to help other caregivers and to contribute to research by sharing your experience through writing.

You can complete the entire study online and receive a $10.00 gift certificate in appreciation of your time. To participate, you must meet the eligibility requirements of the screening questionnaire by clicking on the link below:

 

HERE 

 

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The Family Caregiver's Experience - Examining the Positive and Negative Aspects of Compassion Satisfaction and Compassion Fatigue


Are you a family caregiver of someone with a chronic illness? We are conducting a short, 15 minute survey and ask that you to reflect on your experience as a family caregiver and provide insight regarding both the positive and negative aspects of your experience.

If you would like to participate in this research study or know someone who might, please click on the link below to go to the survey.

Survey Link:  HERE

Your participation in this survey is voluntary and all your responses will be anonymous and kept confidential.

 

 

donorsGIFTS FROM THE HEART
heart-shaped money-box with ribbon

A thank you to our donors and supporters

We would like to take a moment to extend a warm thank you to the many generous supporters who make the work we do possible through thoughtful donations to Family Caregiver Alliance.



For over 30 years, Family Caregiver Alliance has offered programs to support and sustain the important work of families and friends caring for loved ones with chronic, disabling health conditions. FCA offers programs at national, state and local levels. The National Center on Caregiving was established at FCA in 2001 to advance the development of high-quality, cost-effective services and policies nationwide. A wealth of caregiving advice, resource listings, newsletters, fact sheets, research reports, policy updates and discussion groups are available free on the FCA website. Visit www.caregiver.org or call (800) 445-8106 for more information.

 

2013 Family Caregiver Alliance. All Rights Reserved. No portion of this newsletter may be reproduced without the express permission of Family Caregiver Alliance.

 

 

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