UNMC header bar
Oct2013Header

 September 2014

 Register now for MMI's free webinars
The Munroe-Meyer Guild is providing funding for the "Resources, Education and Disability Information" Project; or "R.E.D.I." This project provides free, informational webinars for individuals with disabilities, their families and professionals. The webinars can be viewed from any computer or notebook which has an Internet connection and speakers. Each webinar will last approximately one hour and will be delivered in "real time," with time reserved for questions and answers. They also will be archived on the Munroe-Meyer Institute here.

- Caring for the Caregiver/Respite -

Presented: Aug. 7th at 2 pm & 7 pm

By: Sharon Johnson, NE DHHS Respite Coordinator

Archived at: http://www.unmc.edu/mmi/services/familyresources/index.html

Joe Evans - Challenging Behaviors -

September 23rd at 10 am &12 pm

 

Presented by: Dr. Joe Evans, Director of Psychology at Munroe-Meyer and the Associate Clinical Director for the UNMC Behavioral Health Education Center of Nebraska.

 

                          For more information, or to register, click here.                                 

 Garrett's Fight

Garrett "G-Money" Holeve is a 24-year old  mixed martial arts (MMA) fighter.  He also has Down syndrome and rheumatoid arthritis and is being denied the right to compete by the Florida State Boxing Commission. He has started his own Facebook page  called "Garrett's Fight" to raise awareness of his will to fight. He also has started a petition called #letgarrettfight, which has more than 6000 signatures.

ESPN's SportsCenter recently conducted an interview with Garrett, his family, coaches and team members. Learn more about this story by clicking on the photo below and ask yourself, "Should Garrett have the right to fight?"

ESPN SCFeatured - full story and interview with Garrett - after the state stopped him from fighting!

ESPN SC Featured - story and interview

with Garrett "G-Money" Holeve

 

 

New Rules Defining Home & Community Services

The state of Nebraska recently released their transition plan for the Centers for Medicare and Medicaid Services' (CMS) new rule defining home and community based settings. Any setting or procedure that does not fit within the new definition will have to be identified and the state will have 5 years to come into compliance. The state is required to obtain public comments and incorporate the public comments into the state plan.

The new rule requires that:

  • An individual's primary residence cannot be on the property of/or adjacent to an institution; this includes a hospital, nursing facility, public institution or intermediate care facility for intellectual/developmental disabilities. But most importantly, settings that isolate individuals from the broader community of individuals not eligible for Home and Community Based Services funding will not be allowed under this new rule.

  • Person Centered Planning must be used, enabling the individual receiving services to describe his/her needs, along with family, friends, and other team members to make certain that the individual receives the services they need, in a way they prefer.

  • Individual's receiving services should have privacy, choice of roommates, and choice in how they decorate their home, control over who enters and has a key to the entrance, if included in the person centered plan.

  • In situations where the individual is living in a home or apartment owned by a provider, there needs to be a lease, residency agreement or another written agreement that approximates or is consistent with landlord tenant law.

  • Processes must be in place to ensure an individual's right of privacy, dignity, respect and freedom from coercion and restraint. (Source: HCBS Coalition of NE, 2014)

For more information or to make public comment, attend the following:

 

Kearney Sept. 29, 2014

1:00 - 3:00 p.m. CDT

Niobrara Room, Kearney Public Library 2020 1st Avenue

All Waivers Will Be Presented

 

 

Lincoln Sept. 30, 2014

1:00 - 4:30 p.m. CDT

Lower Level B, Nebraska State

Office Building, 301 Centennial Mall So.

All Waivers Will Be Presented

Omaha Oct. 7, 2014; 9:00 a.m. CDT

Metro Community College

5330 North 30th St

Building 10 Room 110

Medicaid & Long Term Care Managed Waivers will be presented

 

Sidney Oct. 9, 2014; 9:00 a.m. MDT

Western NE Community College

371 College Dr.

Room 115

Medicaid & Long Term Care Managed Waivers will be presented

 Additional Resources are available by clicking the links below:

Nebraska's State Transition Plan

White Paper by the HCBS Coalition of NE

CMS' rule

    People First of Nebraska

People First of Nebraska, Inc. (PFN), is the only statewide self-advocacy organization run by and for people with any type of disability.  Local  chapters meet once a month , and some even meet weekly. Members invite speakers to talk about issues and areas where they can exercise  self-determination (residential setting, work, health care, school, etc.), and they teach and support each other in self-advocacy.  Chapters also perform community service work and host dances and other fun events.

Each October, PFN hosts a statewide convention in Kearney where more than 300 self-advocates, advisors, family-members  and service providers network, learn self-advocacy skills, see old friends and make new ones. This year's conference is October, 10, 11 and 12th. Self-advocates will co-present with disability advocates and professionals on a variety of topics. This year, topics include: how to build a relationship with elected officials, how to tell your own story, the history of the disability movement in Nebraska, developing safe social and sexual relationships and fun activities like fundraising! On Friday night, conventioneers sing along with karaoke and on Saturday evening enjoy an Awards Banquet, Bingo and dancing the night away with a live DJ. 

Current chapters include Omaha (called Project 2), Lincoln, Norfolk, Columbus, Wahoo, Cozad, Grand Island, Kearney and Auburn and new chapters are in the works in York and Sidney! 

 

Learn more about People First of Nebraska, and register now for the People First Conference on October 10, 11 & 12th in Kearney.

 

For more information, please contact:

PeopleFirstNebraska@outlook.com

  

Like us on Facebook!

 

  
Community Living & 15th Anniversary of Olmstead

June 20th marked the 15th Anniversary of Olmstead v. L.C. This landmark Supreme Court case said that states must ensure that individuals in need of long-term services and supports have choices and are not forced into institutional and congregate care settings. In 2009, President Obama declared it the year of "Community Living" and the U.S. Office of Civil Rights launched intensive efforts to work with states, advocates, and others to ensure that the Olmstead decision was being upheld. Since the launch of this effort, numerous cases have been heard, and states are being asked to ensure that services are provided in the least restrictive of settings. The federal government has implemented many changes to ensure that home and community based services are being provided, including the newly formed federal "Administration for Community Living."  Learn more about these efforts by checking out the White House blog. 

 

The pictures and stories featured below detail some of the individuals who have been impacted and supported by the Olmstead decision. Learn more about their stories by clicking here.    

 (Source: US Dept. of Justice Division of Civil Rights, 2014)


Stephon is an 18-year old teen with intellectual, visual, orthopedic and physical disabilities. He also has graduated from high school, attended his prom and participates in Special Olympics. With the Medicaid home and community based waiver, Stephon has been able to live with his family and receive all his needed services in his home and community. 
Michelle was 47 years old when she was in a car accident and learned she would need round-the-clock assistance. Initially, she was told that the only way she could receive this
support was in a nursing home. However, with funding from her state's  Medicaid home and community based waiver, she is able to live in her home and have the supports she needs to live independently. 

Steven may have an intellectual disability, but that did not stop him from wanting to work. He went from earning $2/hour for the last 30 years in a segregated, non-competitive workshop to making minimum wage.  Now he gets to have a choice in where he works and even works with individuals that might not have a disability.

Changes to Employment, Transition and Independent Living

Both the Senate and the House recently overwhelmingly passed the Workforce Innovation and Opportunity Act. This bill makes amendments to the Rehab Act and:

  •  requires 15% of funding to Vocational Rehabilitation be allocated to serve youth with disabilities to access post-secondary education and/or supported employment.
  •  moves the Independent Living Program from the Rehabilitation Services Administration (RSA) within the federal Dept. of Education and forms the Administration for Independent Living, which joins with the Administration of Aging and Administration for Intellectual and Developmental Disabilities within the federal Administration for Community Living.

To learn more, check out:

Fact sheet

AUCD Summary

An informational webinar

 my social security portal
  

Starting this month, the Social Security Administration will no longer be issuing Social Security printouts in its field offices.  In addition, they will no longer provide benefit verification letters.  Instead, benefits verification will be available online and can be obtained by registering for "My Social Security" account here or by calling 1-800-722-1213. 

  • Check out this brief on how SSI eligibility is determined for a child.

(Source: Social Security Administration, 2014)

Training on Behavior Supports and More

The Nebraska Division of Developmental Disabilities and Omni Behavioral Health are currently providing a series of free workshops featuring nationally recognized behaviorist, Tom Pomeranz.  The target audience includes families that have children with developmental disabilities across the lifespan, educators, clinicians and anyone wanting additional information about best practices in building positive behavioral supports.  Check out this link for the full series of trainings which will be offered across the state in the next few months. 

 For Help Navigating Systems and Information: 

 Contact our family support coordinators:

  

Mark Smith, M.S.

402-559-5744 or

msmitha@unmc.edu

 

 

Sarah Swanson, B.S.Ed.

402-559-4573 or

sarah.swanson@unmc.edu

The Munroe-Meyer Institute is a University Center of Excellence committed to unlocking the potential of children and adults with developmental disabilities and genetic disorders through exceptional patient care, education and research.  

MMI Logo

 

*This newsletter is intended for informational purposes and does not necessarily reflect the views of the University of Nebraska.

To Share: 
  
Like us on Facebook 

 

Join Our Mailing List

 

 

Additional Information:
MMI Website
Contact News Editor   
 

Resources:

Information 

 

Advocacy 

 

Community Services 

 

Specific Disabilities 

 

 

About our Services:

Visit:

Clinical Services 

 

 

To Schedule an Appointment:

Call:

402-559-6418   or

1-800-656-3937 ext.9-6418

 

 

Take our survey:

Rate this newsletter 

 

 

Other Statewide Resources:

 

A statewide resource for parents of children with disabilities or special healthcare needs to have the capacity to improve their child's education and health. Click here for their upcoming trainings and events.

 

 

 

This is the federally-funded Protection and Advocacy Organization for Nebraska.

They protect and advocate for the rights of people with disabilities and their families. Check out what they are doing by going here. 

 

 

 

 

O Hana Kids  

This is a statewide newsletter that promotes and disseminates information and events to families that have children with disabilities and  special healthcare needs. Go here for more information. 

 

 

 

 

 

Necesidad de traduccion al espanol?  1-800-656-3937 ext. 9-5815