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 May 2013

A Victory for Owen, or is it More?
When the hashtag, "#GetOwenOnSportsCenter" went viral, Owen Groesser's basketball shots made it into the top spot of "Sports Centers" Top 10 Plays of the Day on ESPN. Though Groesser typically serves as the student manager, his coach wanted to give him a chance to play in the final home basketball game. With his sister filming, Owen, who also happens to have Down syndrome made two-three-point shots. While this clearly is a success story for Owen, perhaps the bigger story is how the community (including the student body and his coach) rallied behind Owen for him to be included. Watch the video below to see for yourself. To learn more about this inspirational story click here.
Owen's Big Game
Owen's Big Game
Tell us about your Experiences with NE Programs 

The MunroeARC-Meyer Institute is collaborating with the Arc of Nebraska to obtain data on families' knowledge of and experiences with programs available to support families of children with developmental disabilities and chronic healthcare conditions. Go here to take the survey. You can also forward this newsletter to someone you know eligible to take the survey. 

 

*This project is being funded by a grant from the NE Planning Council for Developmental Disabilities. 

 Recruiting for a LEND Family Traineekristin
Do you know a parent or care-giver that is knowledgeable in obtaining services for their child with a disability? Perhaps that person has knowledge about many disability-related services and systems but would like to learn more? Does this describe you or someone you know? If you can answer yes, perhaps you might be interested in finding out about our LEND (Leadership, Education in Neurodevelopmental Disabilities) family traineeship? LEND is a federal program designed to build leadership and expand interdisciplinary training for the field of developmental disabilities. The LEND family trainee would work approximately 10-15 hours/week and receive a paid stipend to receive training about disability services and also work with other organizations and other LEND trainees. Pictured above is first year, family LEND trainee, Kristin Maylaben-Flott working with a family on navigation. Kim Falk, 2013 family trainee graduate shares, "While I was already involved with several disability organizations (Board of HETRA, PTI-Nebraska Board, and the Meyer Foundation for Disabilities Board) and had knowledge about caring for a child with Cerebral Palsy, the LEND program's interdisciplinary team allowed me to develop leadership skills and gain knowledge on multiple disabilities. This introduced me to wider array of disability services, and supports that I could suggest to families." To find out additional information, contact Mark Smith at 402-559-5744. 
 Are you Aware of Legislative Bills that Might Affect You?There are many Legislative bills that have been introduced in the state legislature every year that affect individuals with disabilities and their families. This year, these include: a bill that would require insurance companies to cover autism, expansion of the state medicaid program, appropriating money to fund those on the developmental disabilities waiting list, and a bill that changes the language of "mental retardation" to "intellectual disability" and more. To learn additional information about these and other bills check out Disability Rights Nebraska, our state protection and advocacy organization.
The Nebraska SILC seeks public commentKathy Hoell
The Nebraska Statewide Independent Living Council (SILC) is holding a public hearing to take comments on the (SPIL) Statewide Plan for Independent Living. The Council is a non-profit organization whose mission is to facilitate systemic change that promotes independence, inclusion, non-discrimination, and dignity for all people with disabilities in Nebraska. "It is important to make certain that everyone in Nebraska has an opportunity to provide comments on the state plan," states Kathy Hoell, Executive Director of the NE SILC, featured above with friends Mary Angus and United Nations Ambassadors from the United States and New Zealand. A public hearing is set for May 13th using video-conferencing at Vocational Rehabilitation offices in Omaha, Lincoln, Kearney and Scottsbluff. Individuals are encouraged to attend and provide public comment or fill out this survey. For more information about the SILC and this hearing go here. In addition, the SILC is recruiting new members who have a disability or are a family member with a disability. For additional information regarding membership, go here.
Summer Camps for Kids with Special Needs
Check out O'Hana Kids Newsletter for a list of Summer Camps. There are two editions; one geared toward the eastern part of the state and the other focusing on the central and western areas. 
Mark Your Calendars

Opportunities for Families:  

Nebraska's Behavioral Health Conference

May 13th-15th in Lincoln

This annual conference is for families, individuals and professionals wanting to learn more about mental health issues, best practices and the supports available. For additional information, go here.

PTI Hosts Special Education and Immigration Workshop

May 30th at Omaha Public Library (2808 Q Street)

Meet U.S. Citizenship and Immigration Specialist, Mr. Charles Pratt as he discusses immigration and special education.  To learn more about this workshop, click here.

Munroe-Meyer's Augmentative and Alternative Conference (AAC)

June 14th in Omaha

Geared toward professionals and students as well as families and individuals who use AAC, this conference will offer practical, language-based interventions in addition to displays by "Dynavox Technologies" and "Talk To Me Technologies." The conference is scheduled from 7:30a.m. - 4 p.m. at the Storz Pavillion at Clarkson Hospital and features Dr. Jennifer Kent-Walsh an Associate Professor and Director of the FAAST Assistive Technology Demonstration Center at the University of Florida.  Click here to view the conference flyer for additional information. 

 

 For Help Navigating Systems and Information: 

 Contact our family support coordinators:

  

Mark Smith

402-559-5744 or

msmitha@unmc.edu

 

 

Sarah Swanson

402-559-4573 or

sarah.swanson@unmc.edu

The Munroe-Meyer Institute is a University Center of Excellence committed to unlocking the potential of children and adults with developmental disabilities and genetic disorders through exceptional patient care, education and research.  
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Other Statewide Resources:

 

A statewide resource for parents of children with disabilities or special healthcare needs to have the capacity to improve their child's education and health.   Click link below for  upcoming trainings.

 

PTI's Calendar of Events 

 

 

 

O Hana Kids  

This is a statewide newsletter that promotes and disseminates information and events to families that have children with special needs. Go here for more info. 

 

 

 

 

 

Necesidad de traduccion al espanol?  1-800-656-3937 ext. 9-5815