Philly Cure HD      
Notes & News 
for our local 
HD Community

PHILLY CURE HD                                                         June, 2016
In This Issue

Upcoming Events

Myths & Facts About HD

Do You Know the Facts?                      
 
 
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Philly Cure HD
Upcoming EventsUpcoming
Caregivers Gathering
June 7th, 6:30 to 8:30 PM.  Our HD Caregivers meet every other month. Please RSVP. 

A Saturday Sail - Our June HD Social Gathering
June 11th, 3:30 PM.  Join us for our one hour cruise on the Green Lane Reservoir.  Click here for more details. 

2016 Philly Cure HD Luau Fundraiser
June 24th, 6:30 to 10 PM.  Eat, drink and enjoy a variety of gourmet "Street Food Philly" food truck options along with a delectable selection of Rita's Water Ice flavors.  For more information or to reserve your space, visit phillycurehdluau.org.
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Monday Morning Caregiver Chat 
This is a weekly, Monday 10 AM, Facebook chat moderated by Joanne, our HD Care Consultant.  To join the chat contact Joanne.
Myths & Facts about HDMyths
The HSG - HD Quiz
A Quiz from the HSG

Quiz Answers

From the Huntington's Disease Study Group. Huntington Disease (HD) Quiz
There are so many common misconceptions about Huntington Disease...  Think you can tell myth from fact?  Test your HD knowledge - take the quiz!

Question 1 
Huntington's disease only affects adults. True or False?

Question 2 
Clinical trials and observational studies for Huntington Disease have more volunteers than they need. True or False?

Question 3
Children of people with HD have a 50% chance of inheriting the mutated HD gene. True or False?

Question 4 
HSG Trials
Click Here to Find a Trial

There is a cure for HD. True or False?

Question 5 

The symptoms of HD include involuntary movement (chorea), impairment in cognitive function, especially thinking and reasoning skills, as well as anxiety and depression. True or False?
Question 6 
HSG Accomplishments
Click here to read about HSG's accomplishments
There are ongoing clinical trials around the world that are seeking ways to slow the progression of HD and treat the symptoms of HD, and others that are searching for a treatment. True or False?

Question 7 
Huntington Disease (HD) is a male disease. True or False?

Question 8 
The gene responsible for Huntington Disease was discovered in 1993. True or False?
Gene
Question 9 
A gene is the same as a protein. True or False?

Question 10 
HD research might also contribute to research, knowledge, and discoveries that would help to treat and improve other movement and cognitive disorders such as Parkinson's disease and Alzheimer's. True or False?

Question 11 

All clinical trials are designed to test new drugs. True or False? 
Question 12
If you have the gene you will start showing symptoms at the same age as your parents. True or False?

Question 13

Huntington Disease (HD) can skip generations. True or False? 
Do You Know the Facts?facts
Answers



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