Notes & News

for our local

HD Community

PHILLY CURE HD February, 2016

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Upcoming Events

Huntington's Disease

Six Helpful Tips

HDYO Land

Upcoming Events

Caregivers Gathering

February 2^nd, 6:30 to 8:30 PM. Our Huntington's disease Caregivers meet every other month. Please RSVP.

White Elephant Bingo

March 5^th, 12:30 PM to 2:30 PM. Join us for this fun and crazy HD social event. Click here for more details and to RSVP.

Our Annual Philly Cure HD Fundraising Walk

April 17^th, 9 AM. Save the date. Click here for more information or to begin fundraising. We hope you will be able to join us.

Monday Morning Caregiver Chat

This is a weekly, Monday 10 AM, chat moderated by Joanne, our HD Care Consultant, with any of our Huntington's disease caregivers. Click here to learn how to join us for this Facebook Caregiver Chat.

Huntington's Disease

Huntington's affects around 30,000 Americans.

From Medical News Today - Huntington's disease is an incurable, hereditary brain disorder. It is a devastating disease for which there is no currently "effective" treatment.

Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behavior and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually eroded to such a point that they eventually become entirely reliant on other people for their care.

Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families.

Six Helpful Tips

All year long we share helpful tips on our Facebook page. This month we thought we would reprise six of them. Click on any picture to read learn more.