Philly Cure HD      
Notes & News 
for our local 
HD Community

PHILLY CURE HD                                                         OCTOBER, 2015
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Disability Symbols
Disability Awareness Month
October is the annual celebration of Disability Employment Awareness which heightens awareness while recognizing the contributions of Americans with disabilities to both our workforce and our society.

Our Fall On The Farm HD Social Gathering   
October 4th, 1 to 3 PM.  RSVP to join us as we gather for fall on the farm fun.  We will enjoy a hayride, pumpkin picking & decorating, fall food, and great fun with friends at Kohler Farms in Ambler PA.  

Caregivers Gathering
October 6th, 6:30 to 8:30 PM.  Our HD Caregivers meet every other month in Conshohocken, PA. Please RSVP. 

Monday Morning Caregiver Chat  Caregiver Chat
A weekly, Monday 10 AM, online chat moderated by Joanne, our HD Care Consultant, with any caregiver dealing with dementia.  Click here for the chat schedule and for more information. 
No One Sees The HD No One SeesNoone

"I think having the invisible symptoms is just as hard if not harder then having the obvious HD symptoms, because people expect more of you. Or people think that you don't have Huntington's because you "look" normal to them. They would never know that you were disabled, unless you told them..."

Read more ....
Quotes
Click to view slideshow
See Me For Who I AmSee

The U.S. Department of Labor's theme for the 2015 National Disability Employment Awareness Month is "My Disability Is One Part of Who I Am." 

Our slide show of quotes, from an article "Should You Use Person-First or Identity-First Language?", provides a peak into the uniqueness of just a few disabled individuals.  Honoring the diversity of our HD community and the theme "My Disability Is One Part of Who I Am", we hope you will see each person for who they are.   
30 Things -- Invisible You
30 Things About My Invisible Illness You May Not Know

Learn more about someone's invisible illness.  Let them complete some or all of these 30 statements:
1. The illness I live with is Huntington's disease
2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I've had to make is:
5. Most people assume:
6. The hardest part about ....

See all 30 ... 
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