Philly Cure HD
Notes & News
for our local 
HD Community

  
    Philly Cure HD                                         Issue # 8, August, 2015
In This Issue Donate

Upcoming Events family
National Son & Daughter Day 
Inheritance of Huntington's Disease
Inheritance - Definition
Our Children
Upcoming EventsUpcoming

 

Caregivers Gathering
August 4th, 6:30 to 8:30 PM.  Our HD Caregivers meet every other month. Please RSVP. 

Our Fall On The Farm HD Social Gathering
October 4th, 1 to 3 PM.  RSVP to join us as we gather for fall on the farm fun.  We will enjoy a hayride, pumpkin picking & decorating, fall food, and great fun with friends at 
Kohler Farms in Ambler PA. 

Monday Morning Caregiver Chat 
The Caregiver Chats are suspended for the summer.  We hope to offer them again in the fall.  Let Joanne know if you are interested.
National Son and Daughter DayNational

August 11th is National Son and Daughter Day and many will look at it as a day to spend with their children.  For our Huntington's disease community it has a very special meaning. The Huntington's disease gene can be inherited from a parent but sons and daughters inherit so much more.  What Son & Daughter Day did you inherit?  What did you pass on to your son or daughter?  Was it good looks?  A sense of humor?  Your beautiful smile?  

 

Celebrate the greater meaning, the wonderful things we inherit.  Wishing each of you a Happy National Son and Daughter Day.  

Parents - quote"Huntington's disease has autosomal dominant inheritance, meaning that an affected individual typically inherits one copy of the gene with an expanded trinucleotide repeat (the
Inheritance
 mutant allele) from an affected parent.  Since penetrance of the mutation is very high, those who have a mutated 
copy of the gene will have the disease. In this type of inheritance pattern, each offspring of an affected individual has a 50% risk of inheriting the mutant allele..."  Read more at Huntington's disease - Inheritance - from Wikipedia.

InheritanceInheritance in·her·it·ance
noun: inheritance; plural noun: inheritances
  • a thing that is inherited.

"he came into a comfortable inheritance"

synonyms: legacy, bequest, endowment, bestowal, provision, birthright

"a comfortable inheritance"

  • the action of inheriting.

"the inheritance of traits"

synonyms:  succession to, accession to, assumption of, elevation to

"his inheritance of the title"

 

Other Notes and NewsNotes

The rebate program benefits eligible Pennsylvanians age 65 and older; widows and widowers age 50 and older; and people with disabilities age 18 and older. The income limit is $35,000 a year for homeowners and $15,000 annually for renters, and half of Social Security income is excluded.  Read more.  

Liking and following Philly Cure HD on Facebook is another way to stay informed.  Get the weekly "Today's Tuesday Tip", updates on Huntington's disease research, information/reminders of Philly Cure HD events, and much more.  So like and follow our Facebook page".

CompassCompass is the fast and easy way to apply for benefits - anytime and anywhere. It is an online application for Pennsylvanians to apply for many health and human service programs.  Click here for Compass. 
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