Philly Cure HD      
Notes & News 
for our local 
HD Community

PHILLY CURE HD                                                ISSUE # 7, July, 2015
In This Issue Research

HD Buzz
The Most Promising Possible Treatments From HDBuzz.com  Promising

"Some of the world's top scientists are working round the clock to develop treatments for Huntington's disease - and real progress is being made. Dozens of possible treatments are being worked on, and every day a successful treatment gets one day closer."  Read HDBuzz's personal top four approaches.

Genzyme Video
Midyear HD Research UpdateMid
Sharing a few highlights 

"New Hope For Patients With Huntington's Disease"
New
Genzyme researchers have utilized a natural biological process called RNA Interference.  By adding an RNA molecule to the gene, researchers could actually shut off or silence the mutant "Huntington" gene to stop the disease in a mouse model.  Watch their 5 minute video.

CHDI 2015
Watch this Video Postcard
HD Therapeutics Conference HighlightsHD
This conference covered all aspects of drug discovery related to Huntington's disease. Sessions include:
              • Promising New HD Biology
              • Energetics and Metabolism
              • Advancing HTT Lowering Therapies
              • Leveraging Patient Biology
              • Clinical Trials

View this short video sharing the highlights.

Enroll-HD will be the world's largest observational study for Huntington's disease families.  Learn more!


Pride-HD is a Phase II clinical research study of an investigational drug called pridopidine
Pride-HD
in people who have a diagnosis of Huntington disease (HD). The purpose of this randomized, double blind study is to see what effect the investigational drug, pridopidine, has on movement, thinking, and behavior .... Find out more.

Upcoming EventsUpcoming

Caregivers Gathering
August 4th, 6:30 to 8:30 PM.  Our HD Caregivers meet every other month. Please RSVP

Monday Morning Caregiver Chat 
The Caregiver Chats are suspended for the summer.  We hope to offer them again in the fall.  Let Joanne know if you are interested.
Other Notes & News
Our 2015 HD Luau 
A big thank you to everyone who made our 2015 HD Luau a success.  Click here to enjoy Luau photos.

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