You can raise awareness about Huntington's disease

Things you can do for HD Awareness Month
HD Awareness

Week One - Let others know that May is Huntington's Disease Awareness Month.  

  • photograph yourself with our "May is Huntington's Disease Awareness Month" poster and share your photo on Facebook, Google+, Instagram, Pinterest, LinkedIn or Twitter.

  • send your photo to us via our Facebook

    HD Awareness Month
    Joanne is promoting HD Awareness Month

    page or email it to [email protected] and we will help share your photo 

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    To print the Awareness poster just click on the image to the left and select "print".

    Week Two - Read or recommend a book about Huntington's disease.  Here are a few suggestions:  Inside the O'Briens
  • bestselling author of "Still Alice", Lisa Genova's newly released "Inside the O'Briens" a story about a Boston cop with Huntington's disease and his four kids, all in their 20s, each of whom stands a 50-50 chance of getting the fatal genetic condition.
  • in "Mapping Fate: A Memoir of Family, Risk, and Genetic ResearchAlice Wexler tells the story of her family at risk for Huntington's disease

  • or find others such as on Goodread.com.
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    Week Three - Listen and share an on-line video about Huntington's disease.  We list some great videos on our Philly Cure HD YouTube page including video's about: 

  • general information including one "About HD"  

  • being at risk such as "Do You Really Want to Know"

  • HD research such as one of Gene Veritas' videos from "2015 CHDI 10th Annual Huntington's Disease Therapeutics Conference"
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    Week Four -  Attend and encourage others to attend our HD Social Gatherings or donate so that someone with tight financial resources can be given financial assistance to attend:

  • our May 31st HD Gathering for Mini Golf   Mini Golf

  • donate to provide grants for others to attend an HD social gathering

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    Additional Information for you and for you to share -

  • our Philly Cure HD website 

  • a flip booklet about Philly Cure HD

  • our Philly Cure HD facebook page