Week Two - Read or recommend a book about Huntington's disease. Here are a few suggestions:
bestselling author of "Still Alice", Lisa Genova's newly released "Inside the O'Briens" a story about a Boston cop with Huntington's disease and his four kids, all in their 20s, each of whom stands a 50-50 chance of getting the fatal genetic condition.
in "Mapping Fate: A Memoir of Family, Risk, and Genetic Research" Alice Wexler tells the story of her family at risk for Huntington's disease
or find others such as on Goodread.com.
Week Three - Listen and share an on-line video about Huntington's disease. We list some great videos on our Philly Cure HD YouTube page including video's about:
general information including one "About HD"
being at risk such as "Do You Really Want to Know"
HD research such as one of Gene Veritas' videos from "2015 CHDI 10th Annual Huntington's Disease Therapeutics Conference"
Week Four - Attend and encourage others to attend our HD Social Gatherings or donate so that someone with tight financial resources can be given financial assistance to attend:
our May 31st HD Gathering for Mini Golf
donate to provide grants for others to attend an HD social gathering
Additional Information for you and for you to share -
our Philly Cure HD website
a flip booklet about Philly Cure HD
our Philly Cure HD facebook page
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