The Celiac Disease Resource, Inc. Newsletter
P.O. Box 621, Glenmont, NY 12077 - www.celiacresource.orgupstateceliacs@yahoo.com - 518-461-7065
Early WinterJanuary 2013
In This Issue
Karavalli Jan. 22
Gluten Free Down Under
Heading to NYC?
Tidbits From Daria
Review by Kathleen Boehning
Saratoga Gluten Free Goods
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Happy New Year!
Here's hoping you all enjoyed the holidays. To start the year off, a planning meeting has been set for Thursday, January 24th, 6PM - 8PM, at the offices of Heslin Rothenberg Farley & Mesiti P.C., 5 Columbia Circle, Albany, NY
Light refreshments will be available. Click Here For Directions
  
This is a very important meeting to make plans for future group events, and determine the role of TCDRI to meet the needs of newly diagnosed individuals, and those seeking support and assistance with avoiding gluten.
  
I have been at the helm for over four years. Now, I must step down, hand the reins over, and only assist in an advisory capacity.
  
Currently, TCDRI maintains:
  • an informational web site: CeliacResource.org 
  • a membership list of supporting individuals who donate yearly membership dues, unless unable because of finanical hardship.
  • an email account, upstateceliacs@yahoo.com for:
    • requests to be added to the newsletter circulation list,
    • newsletter submissions,
    • magazine subscriptions,
    • vendor solicitations, etc.
  • a Constant Contact account for preparing and publishing newsletters and announcements.
TCDRI is fortunate to have a core of dedicated volunteers, and hopefully with some new energy, the group can continue to serve the gluten-challenged capital district community.
  
Your attendance is welcome!
Please RSVP to Roz Spiller, upstateceliacs@yahoo.com or leave a message at:
518-461-7065
Karavalli DecorationKaravalli Regional Cuisine of India
January 22, 2013, at 6:00 P.M.

9 B Johnson Road, Latham, NY

 

Please join us for a Celiac dinner get-together. As in years past, Karavalli will accommodate our needs and will be bringing their chef from Saratoga to cook especially for us.
  
RSVP by January 18, by sending a message to John Derderian at sra837@yahoo.com. Or, leave a message at 518-461-7065. We hope to have a good turnout, so please RSVP soon.
  
The restaurant is located at 9B Johnson Road (next to Comfortex), in Latham, NY. Phone number is 518-785-7600.
  
For more information or to view the menu, visit www.karavallilatham.com.
Thanks, and hope to see you there!
John Derderian

Note: This is an open invitation to all members of TCDRI, anyone interested in adhering to a gluten-free diet, their family members and/or friends.  Each Attendee is Responsible for Their Menu Choices.
Down Under
Gluten Free Down Under - By Marian Price 

I recently went on a vacation to New Zealand and Australia. I had been told that these countries are far ahead of the U.S. in terms of gluten awareness and gluten-free food availability.

 

I traveled on Air New Zealand and Qantas and both had gluten-free options on all flights. The cabin personnel were obviously aware and if a GF meal was preordered it was the first to be served! And Qantas serves a meal on flights as short as three hours!

 

When we arrived in Auckland after an overnight flight from L.A., the hotel's buffet breakfast was still being served and we were welcomed (even though we had not stayed the previous night). And what were the first things I saw on the buffet--two GF cereals and a loaf of GF bread (with its own toaster!!). And they were well marked. What a nice surprise and a great way to start a vacation.

 

At every Auckland restaurant we went to there were GF choices and they weren't a secret. For example, in the café at Auckland Museum, there were several GF choices and they could make a GF sandwich (with decent seeded and grainy bread, not "white" bread).

 

Of course there were exceptions. The free muffins offered on the harbor cruise were all wheaty. And I doubt if McDonald's had GF rolls (but I'm not even sure about that).

 

After Auckland, I went to Australia and joined a guided tour of Australia and New Zealand. The tour company had been advised of my GF diet and whenever the group went out to dinner, the restaurant was prepared with GF alternatives. The only thing lacking was GF dinner rolls.

 

All of the hotels had buffet breakfasts and some of them had GF bread available. But there were plenty of alternatives such as scrambled eggs, bacon, fruit, and baked beans on every hotel buffet. Places visited included Melbourne, Alice Springs, Uluru/Ayers Rock, Cairns, and Sydney in Australia and Christchurch and Queenstown and smaller places in New Zealand.

 

In some places we went on long bus rides and had lunch stops where we bought our own lunches. Without fail, every one of these places (often the only business in 100 miles) had GF options. In one place, I asked if the soup was GF and the woman said, "No, it contains pasta." But then she offered their GF choices. But in other places, the soups were GF. And these folks all knew what GF was. No need explaining!

 

In Christchurch, New Zealand we did not stay in the usual hotel the tour company uses because it was too damaged in the severe earthquake of Feb. 2011. So we were in a hotel which had some damage but was still able to house guests. However, their restaurant was damaged and so they were serving a continental breakfast in a converted hotel room and the choices were cereal, fruit, and toast. And even they had GF bread!

 

Our group had the privilege of dinner in a private home in Christchurch and there were two of us in the group on a GF diet. The hostess knew about us and told us right away that her good friend has celiac disease and she knows all about it and assured us that the delicious meal had been prepared without any wheat, rye, or barley.

 

It seemed that whenever I asked about GF, the person in the restaurant, sandwich shop, or deli knew what it was even if they didn't have it. No one tried to pretend that what they had was OK when they knew it wasn't. What enlightened people!

 

One town we stopped at was Franz Josef Glacier in New Zealand, near the glacier of the same name. The town has fewer than 500 residents and yet its grocery store carries several GF items including fresh bread!

 

Mt. Cook is New Zealand's highest peak at 12,000+ ft. and is served by a hotel with an enormous buffet with GF items well-marked. There's no town there, just the hotel complex, with the nearest town probably 100 miles away.

 

On the way home, I had a stopover in the Auckland airport at lunchtime and found a small "takeaway" shop in the airport selling several GF items. I got a container of risotto clearly marked GF and they even offered to heat it up for me. And it was very good. The next morning at the Los Angeles airport, there was nothing GF to be found. Welcome home! 
Pappardella
www.pappardella.com
Heading to NYC For a Great Meal? 
Herb and I went to NYC Sunday. Nov. 11th. We ate at "Pappardella" Cucina Tipica Italiana on 75th Street and 316 Columbus Avenue.
They had GF bread & GF Pasta, a very nice atmosphere & outdoor seating. IT was excellent. Being sensitive to contamination, I got through the night with NO problems!!!! Yeah!! They have a website: www.pappardella.com. The staff was excellent. Very accommodating. I had the GF linguine vongole with little neck clams, white wine, garlic & origano. The house salad to share with lemon vinaigrette. GF bread with olive oil instead of butter with their sauce. Herb had the GF vitello al parmigiano veal cutlet (where there was no cheese I tried his ) All EXCELLENT. We will go back again. We highly recommend this restaurant. Hope all is well.
Charlene Milbert and Herb

Emeril TIDBITS FROM DARIA  

From Triumph Dining:

Emeril Lagasse, the famed restaurateur, chef and TV personality best known for catchphrases from "Bam!" to "Kick it up a notch!", has been a supporter of the gluten-free community for more than ten years now. His reasons are very close to his heart - his two daughters. Read more @: Emeril Lagasse Leading the Way in Gluten-Free Cooking
  
Jennifer Esposito
Jennifer Esposito Starts a Nonprofit for Celiac Education:
  You may know Jennifer Esposito from television shows like Blue Bloods, Samantha Who?, Rescue Me and Judging Amy, or her roles in the movies Crash and I Still Know What You Did Last Summer. You may not know that Jennifer Esposito has celiac disease - she started a nonprofit to help with celiac education. Read more @:  Jennifer Esposito GF NonProfit

  
On another note about Jennifer Esposito: Blue Bloods' Jennifer Esposito Departs Show, Slams CBS For Its 'Shameful Behavior' Esposito, who has been very public about her battle with Celiac Disease, said that "CBS put me on unpaid leave and has blocked me from working anywhere else after my doctor said you needed a reduced schedule due to Celiac. CBS didn't listen to my doc and I collapsed on set. Which everyone saw!" Read more @: CBS Slams Jennifer
  
Finalize Standards for GLUTEN-FREE Labeling ... sign the petition ... go to this link: Sign The Petition  The Food Allergen Labeling and Consumer Protection Act required Health and Human Services to set a gluten-free labeling rule by 2008 to aid people with celiac disease, a life-threatening autoimmune condition. The only known treatment is a strict gluten-free diet. Email this link to your friends and family: http://wh.gov/Be7R

Are Celiac Rates Affected By When We Begin Eating Gluten? Many new parents have concerns about when they should begin giving their child gluten, especially if they themselves have issues with the protein. Some research suggests that feeding your baby gluten from the age of four months could help lessen the chance of them going on to develop celiac disease. Read More

 

Rice in the News:

GIG is a member of the ACDA (American Celiac Disease Alliance) and is in agreement with the following position statement issued by the ACDA on this topic.   This position statement reflects the input of medical experts in the field of celiac disease. The ACDA concludes that there is not sufficient scientific evidence at this time to make a recommendation regarding rice intake, but that it is recommended that individuals following a gluten-free diet consume a diverse diet which incorporates a broad range of whole grains.

 

Restaurants with Special-Diet Menus

More restaurants are serving up special-diet menus. A renaissance is taking place in the restaurant industry and people on special diets can taste the benefits. From independently owned restaurants to national chains and fast food franchises, the food service industry is recognizing food allergies and sensitivities as a market that can no longer be ignored. The shift in awareness is due to the growing number of people on special diets-12 million Americans have food allergies, 3 million have celiac disease, and millions more have dietary concerns due to conditions like lactose intolerance and diabetes. Read More

REVIEWS BY KATHLEEN BOEHNING
Googling celiac disease 2012, I discovered an e-newsletter on www.AllergicLiving.com. The subject covers all allergies and includes celiac disease/gluten sensitivity. The current issue has a cover story about author John Grisham, who found out he has a terrible skin reaction to red meat. It seems this allergy is on the rise, especially in tick infested areas, as there seems to be a connection between the tick and the red meat allergy.

In another article, it was reported that the actress, Jennifer Esposito, who plays the detective Jackie on the Blue Bloods series on CBS, has been put on unpaid leave from the show and blocked from any other work by CBS because of her severe problems with her celiac disease. Her doctor told her she needed to cut back her work schedule because of her extreme fatigue and gastro-distress. CBS did not reduce her schedule and she collapsed on the set. Jennifer said on her blog, www.Jennifersway.org, that they implied she was not really sick, but was just trying to get a raise. Sad. I hope she gets a good lawyer and fights them on their terrible treatment.
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Beth Israel Deaconess Medical Center's Celiac Center in Boston has just launched a new web site this past December called Celiac Now. It is still in development but there are some excellent pages of resources. That's where I found the Allergic Living magazine.
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Another restaurant that offers GF options is the newly opened Marotta's Bar-Risto. The Italian fare was fantastically flavorful on the GF penne. Housed just west of Union College in Schenectady on that one block full of options of taverns, cafe's, wine bars and this busy and a bit noisy, innovative bistro. Their menu was on an ipad with glorious color pics to whet anyone's appetite. I didn't try the piazza, but found out it is not made locally, unlike the one at Me Piazza on Pearl St. in Albany, which is still my favorite.
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From www.Medscape.com ...... some recent studies on CD.
Published in Dec. 2012 Biomedcentral Pediatrics journal, Swedish researchers found that if a child has at least 3 episodes of infections, regardless of the type, before the age of 2, then they have a higher risk of developing CD later in life. There is speculation that after breast feeding stops, a huge amount of gluten containing foods are introduced. If the child had gastroenteritis, which may affect the lining of the intestine, allowing permeability of gluten into the blood stream. But any infection seems to be a contributing factor. Antibiotics might play a role, disrupting the normal balance of intestinal bacteria, which affects immune response.
A British study, published in the Journal of Neurology, Neurosurgery and Psychiatry (August 2012), analyzed the MRI's of celiac patients with neurological disturbances, particularly balance problems, and found they had significantly less brain volume compared to those who don't have CD. The University of Sheffield researchers in the UK found that there was less grey and white matter in many areas of the brains of those celiacs in this study. These participants had been referred for imaging because of balance issues, headache or sensory loss. Those celiacs suffering from headaches had the greatest white matter abnormalities (WMA). Two thirds of celiacs in this study were compliant to the GF diet so this brain abnormality study implies that the brain is indeed affected by this disease. Anna Hohler, MD, at Boston Univ. School of Medicine, stated that this study helps strengthen the connection between CD and neurological problems. such as anxiety.
The authors of "Quality Improvement in Gastroenterology Clinical Practice" published in Clinical Gastroenterology and Hepatology Journal (Dec. 2012) advocate that practitioners heed the current recommendations of taking at least 6 samples during an endoscopy including from the duodenal bulb. In audits they conducted they were dismayed that there was a very low adherence to these recommendations.
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The Center for Celiac Research (CFCR) which was initiated at the University of Maryland in 1996, is moving to Boston to be a part of Massachusetts General Hospital for Children as of this month. For more information www.celiaccenter.org or massgeneral.org
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In the Dec 20, 2012 New England Journal of Medicine, CFCR co-directors, Alessio Fasano, MD and Carlo Catassi, MD, published an article, simply entitled "Celiac Disease", a review of the current research and guidance of diagnosis and treatment. Bringing his fellow physicians up to speed, he also warned that many have not been diagnosed have a silent celiac disease. Also, they state that cases of confirmed CD in childhood that seemed to have disappeared, with negative serum tests, relapse later in life.
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The Foundation of Celiac Awareness in conjunction with Postgraduate Institute for Medicine, offers a free accredited continuing education for primary care physicians called Defining, Diagnosing and Managing Celiac Disease. Refer your doctor to http://celiaccmecentral.com
They offer a free 13 page newsletter that concisely conveys the most current information written by experts from the Mayo Clinic and Beth Israel. They state that 95% of celiac cases have yet to diagnosed. Doctors have little time to keep up on all the journals and advances in their field. Make it a little easier and just print it out and give to your doctor. You may be helping them catch those undiscovered celiac suffers.

UpstateCeliacs@yahoo.com

MAIL BOX 

  
Chemicals in Water and Food - Submitted by Dena Thompson
  
During the past several weeks I have been reading some interesting articles on the symptoms of multiple chemical sensitivities as it pertains to fragrance mix sensitivity and how people who have gluten sensitivities have similar symptoms. Chemicals in food and water have a great effect on everyone not just people with fragrance mix sensitivities and gluten sensitivities because more and more people today have developed allergies and sensitivities to everything. Here are some very interesting links to articles I thought everyone would care about in regards to chemicals in the water supply! Not only do the mishandling of chemicals by people effect humans they effect the WHOLE ENVIRONMENT! The following links may be of interest:
  

Saratoga GF Goods LogoNews From Saratoga Gluten Free Goods

  

SAME GREAT TASTE...NEW LABEL!! By now some of you may have already seen our new look. Yesterday we launched our new label for our multigrain bread and rolls. Not only do they look fantastic, but also....(drum roll)... we finally have nutritional information that so many of you have been anxiously awaiting!

As for sweets, in the stores this month (starting Friday in most stores - check with your retailer) you will find our popular holiday dessert assortment. A variety of cookies, muffins, and cupcakes (approx. 18 pieces total) are packaged in a window bakery box and tied with raffia.It makes a lovely giftfor your favorite gluten free person or for yourself! (If you have great self-control and don't consume it right away, it can be frozen if wrapped tightly.)
Some of the items do contain dairy and walnuts. PRICES ARE SET BY THE RETAILER.

We would like to take this opportunity to thank you once again for your support, and we wish you all the happiest of Holiday seasons!
MaryAnna, Jeanne, and Robert

518-681-1707 - LIKE US ON FACEBOOK!      Click Here For Locations