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Volume 6 Number 4
| March 2013 |
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Kick-Off the Party! This Tuesday evening, March 12, we'll meet at the U of Minnesota Orthopedic Clinic to begin working towards the Party in the Park. We have a great crew of team leaders, and many exciting opportunities for you to join. Free parking vouchers (for the Blue Lot) and refreshments will be available, so come join the fun! This is fun with a purpose: hosting our flagship event and helping to raise the funds that will allow the RIS mission to continue.
At 6:30 some of our researchers and doctors will be there to answer your questions and update you about what the money you are working so hard to raise will do for sarcoma research and patient treatment. We will also have delicious treats and a time to reconnect with old friends. At 7:00 our meeting will start. After an introduction to the work RIS has been doing, you'll hear from each team and have the chance to attend small-group working meetings. Registration is not required, but will help us plan. To learn more and register, please click here. If you can't attend, but wish to sign up for the team that interests you, please complete our volunteer form by clicking here.
Click here for directions and more info. |
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Saturday March 2, Dean Katie Dusenbery convened the 4th Annual Rein in Sarcoma Mini-Medical School at the University of Minnesota. Thirty students joined researchers, physicians and Sarcoma Dogs to learn about many facets of the war on Sarcoma. It was a fascinating, informative, and exciting day for all of the RIS Class of 2013.
During the morning, we were instructed by an all-star faculty including: Dr. Logan Spector, Dr. Subramanian, Dr. Clohisy, Dr. Largaespada, Dr. Keith Skubitz, Dr. Amy Skubitz, Dr. Amy Skubitz, Dr. Gross, Dr. Modiano and Dr. Borgetti. They covered a wide range of Sarcoma issues including:  sarcoma statistics, what to expect from next generation research, new bone cancer treatments, controlling pain, targeted treatments, and a major breakthrough in Giant Cell Tumors research.
It is often said that Dogs are man's best friend. At the mini-medical school we met Charlie, Buddy and Buster who along with their owners and doctors are taking part in research into sarcoma treatments that holds great promise to help both our canine friends and human sarcoma patients. Read more...
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Thanks and Congratulations go out to the 2013 Mud Dog Riders: Pat Bourgeois, Joel Mellenthin, Lynn Keillor, Justin Klett, Jeff Gruhlke, Dan Skallet and Jessie Steinwand for their overwhelmingly successful 235 mile snowmobile ride to Brainerd and the MnUSA Rendezvous to support RIS and keep alive the memory of Eric Skogman. They collected an amazing amount of money from the snowmobiling community.
One very touching moment was recalled by Joel Mellenthin as be passed Eric's snowmobile helmet at the Banquet for the MN Snowmobile 2013 Rendezvous. Read more...
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Red Flags Medical Advisory Team Works
to Educate Doctors and the Public
The RIS Red Flags of Sarcoma Medical Advisory Team, composed of Doctors and Researchers from the University of Minnesota, Children's Hospitals and Clinics and Health Partners met to discuss ways to expand RIS outreach efforts to medical professionals in order to increase the professionals awareness of early signs of sarcoma leading to a timely diagnoses for patients.
The Medical Advisory Team began work to edit and vet a new 4th Edition of the RIS Sarcoma Patient Starter Notebook with the hope to have it published by this July's "Party in the Park". The Advisory Team is anxious to learn of how sarcoma patients and loved ones use the current Notebook and what ways it could be improved. To learn more and provide them your ideas, click here.
Other initiatives that are being worked on include: - Develop, and distribute laminated physician Red Flags of Sarcoma cards encouraging medical professional to beware and take proper action when confronted with possible symptoms of a sarcoma cancer
- Provide sarcoma educational programs for medical professionals and medical students
- Speaking and having exhibits at Medical Conferences
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 Wellness After Cancer - Survivorship Conference - April 6
A cancer diagnosis can alter the landscape of your life. Although it doesn't redefine you, it can change your lifetime health care needs. Join us for this educational conference that addresses topics such as cancer-related fatigue, the importance of primary care for survivors, the transition of care from pediatric to adult providers and much more.
The Conference, which is free of charge, will be held on Saturday, April 6th at the McNamara Alumni Center at the U of MN. Advanced Registration is required.Learn more and register.... |
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RIS Volunteer Opportunities
 If you can make the the time, we need your help! Here are several volunteer opportunities. -
RIS at " Relay for Life" - Friday evening, April 5 TCF Stadium, University of Minnesota. RIS will be staffing a booth to promote Sarcoma awareness. We need volunteers for the booth between 6:00pm and 10.00 pm for one hour shifts.
- It is a fun opportunity to meet with the wider cancer community starting with an opening ceremony at 6:00.
- Please call (651-214-5821) or e-mail Nancy Hendrickson if you would like to help out.
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2013 Party in the Park Kick-Off Meeting - Tuesday, March 12. See info above or to register, click here.
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RIS Website & Database Assistants - Like to write? Comfortable with being on the internet? Want to learn new skills, at your own pace and on your own time? Being an RIS website or database assistant should be fun and rewarding. As we streamline our on-line database (Salesforce), we need additional data entry volunteers.Training will be provided. To learn more , call 651-486-9114 or email Pete Wyckoff.
To learn about other opportunities, complete the RIS Volunteer Form by clicking here or contact Nancy Hendrickson by email or phone 651-214-5821.
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The Karen Wyckoff Rein in Sarcoma Foundation is the primary sarcoma cancer foundation in the upper Midwest. Our mission is "dedicated to educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers." We are an all-volunteer non-profit organization, which allows over 95% of our revenues to directly support our mission!
Sincerely,
Karen Wyckoff Rein in Sarcoma Foundation |
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