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Dear Friends of Immunodeficiency Canada,
 | | World PI Week balloon release in front of our new facilities at 415 Yonge Street, Toronto |
World PI Week (April 22nd-29th, 2014) is a global campaign which aims to raise awareness and improve diagnosis and treatment of Primary Immunodeficiency (PI). Immunodeficiency Canada took part by: hosting a reception, launching red balloons on Yonge Street, distributing banners and posters in both English and French to 16 healthcare centres across Canada, advertising on Google using donated word ads, spreading the word through social media, encouraging individuals to sign the global petition, and supporting local events. At the University of Alberta students hosted an information table. "It was great to finally get the word out, but medical students definitely would benefit from more education on the topic," said University of Alberta dentistry student Mika Place. Immunodeficiency Canada supports World PI Week activities across the country and participates in the global steering committee. For more information on the campaign visit www.worldpiweek.org
Raising awareness is a year-long activity for Immunodeficiency Canada and we invite individuals living with PI in the Greater Toronto area to join us on June 26 from 6:30 - 8:00 pm for a brainstorming session on how to make inroads within corporations. This evening will be hosted by Wendy Bodnoff, Community Relations. RSVP at 416-964-3434.
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Eye on Science
LymphoSign Journal - now accepting papers! 
LymphoSign Journal publishes novel clinical, translational, or basic research articles aimed at clinicians and scientists in the fields of immunology, gastroenterology, neurology, dermatology, infectious diseases, rheumatology, and hematology. The focus is on defining the molecular basis and treatment of various immune disorders like innate or adaptive immunodeficiency, bone marrow failure, autoimmunity and auto inflammatory disorders and lymphoid malignancies. The Journal also publishes papers that can directly and immediately improve diagnosis and management of patients, including practice guidelines and algorithms.
Check out the journal's website at www.lymphosign.com. To submit a paper, please click here.
Chaim Roifman Scholar Award Deadlines
For senior investigators: Letters of Intent due September 26, 2014 by 5:00 PM. Visit For Senior Investigators for more info.
For young investigators: Applications are accepted year-round. Visit For Young Investigators for more info.
Upcoming Conferences
Canadian Society of Allergy and Clinical Immunology, CSACI,
Annual Scientific Meeting, October 23 - 26, 2014, Ottawa, ON
Featuring a Satellite Symposium hosted by Immunodeficiency Canada
European Society for Immunodeficiences, ESID
Biennial Meeting, October 29 - November 1, 2014, Prague, Czech Republic
American Academy of Allergy, Asthma, & Immunology, AAAAI
Annual Meeting, February 20-24, 2015, Houston, TX
Canadian Society for Immunology, CSI
Annual Meeting, June 4-7, 2015, Winnipeg, MB
Clinical Immunology Society, CIS
Annual Meeting, April 9-12, 2015, Houston, TX
Joint Garrod and Canadian Newborn and Child Screening Symposium
TBD 2015
Garrod/CNCSS Website
Autoimmunity Network
10th International Congress on Autoimmunity, April 6-10, 2016, Leipzig, Germany
PI Education Day - Ottawa, ON
On May 28th, 2014, the Children's Hospital of Eastern Onatrio (CHEO) welcomed 6 families (including 5 children) to a PI Education Day event, providing teaching and hands-on experience with subcutaneous Ig therapy. Immunology nurses Brenda Reid and Marie-Claude Levasseur spoke with families. The PI Education Day was funded by a grant from Immunodeficiency Canada.
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PI Community
World PI Week 2014 Events Across Canada
 | | PI info booth at the University of Alberta in Edmonton, organized by Mika Place and Brieanne Rogers |
 | | Dr. Chaim Roifman and guests at Immunodeficiency Canada's reception in Toronto |
 | | "My Life Is Better" Conference held at CHU Sainte-Justine in Montreal, coordinated by Heidi Labreque and hosted by the Association des Patients Immunodèficients du Québec (APIQ) |
 | | Dr. Anne Pham-Huy and the immunology team at the Children's Hospital of Eastern Ontario in Ottawa |
Check out a video of the Immunodeficiency Canada actual balloon launch. You can also read a review of the event here.
Upcoming Events Around Canada
SickKids Family Day - Toronto, ON
Toronto Sickkids' Immunology Department is hosting its annual family event on June 21, noon - 3PM. Contact wendy.shama@sickkids.ca or 416-813-8920 for details.
Japreet's Art Scholarship Fundraiser - Cambridge, ON
A fundraiser is being held July 6th, 2014 from 10AM to 4PM at the Hespeler Area (640 Ellis Road) in Cambridge, ON for Japreets Art Scholarship. This scholarship, founded in the beloved memory of Japreet Sandhu, will help kids who are living with a primary immunodeficiency and who have a love for art. For more information, join "Joy for Japreet" on Facebook.
l'Association des Patients Immunodéficients du Québec (APIQ)
Canadian Blood Services - Ally Blood Drive
Immunodeficiency Canada encourages friends and family to give at the upcoming Canadian Blood Services - Ally Blood Drive.
An Ally Blood Donor is a person who donates blood on behalf of an individual who cannot. Individuals who cannot donate blood include individuals with an illness, men who have sex with men (due to a 5-year deferral policy), pregnant woman, those who have travelled to certain countries, and those with recent body piercing or tattoos. Ally Blood Donors can be friends, family or coworkers who want to donate on their behalf. By coming together, we can make a difference for a patient in need. Book your appointment to donate at www.blood.ca or call 1-888-236-6283.
 Toronto, ON 67 College St., Friday June 27, 11 AM - 5 PM
London, ON
820 Wharncliffe Rd. S., Friday, July 25, 9 AM - 1 PM
Vancouver, BC
4750 Oak Street, Friday August 1, 11 AM - 7 PM
John Paul, a born runner living with PI
John Paul Jones was born in 1958, when little was known about Primary Immunodeficiency or its effects. He had been sick most of his first seven years of life, suffering from recurrent bouts of infections. At the age of seven, John Paul was diagnosed with hypogammaglobulinemia (a Primary Immunodeficiency), which meant that he had no way to fight off infection.
He started feeling better the day he started treatment with IVIg (intravenous immunoglobulin, which is injected into the bloodstream. Today, John Paul regularly participates in full marathons, including the Toronto Scotiabank Waterfront Marathon. Read John Paul's full story.
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Get Involved!
Brainstorm Event - Toronto, ON - June 26, 2014
Are you living with Primary Immunodeficiency? Do you work for a corporation? Want to raise awareness within your organization? Share your thoughts with us on June 26, 2014, from 6:30PM - 8:00 PM. RSVP at 416-964-3434.
2014 Scotiabank Toronto Waterfront Marathon - Free Registration & Training
The annual Scotiabank Toronto Waterfront Marathon is back and Immunodeficiency Canada is building their team. Last year, the Immunodeficiency Canada team raised over $10,000 dollars, which went toward improving treatments for patients, supporting families in crisis, education healthcare professionals and funding Canadian researchers.
Join the Immunodeficiency Canada 2014 team and help children and adults born with a Primary Immunodeficiency. 100% of your donation will be used for patient support, education and research into a cure, in thanks to our corporate sponsorship which covers administration costs.
Team registrants receive free entry and an Immunodeficiency Canada runner's t-shirt. To sign up with our team, email us at shirley.lau@immunodeficiency.ca for your team code. Every dollar raised will make a difference to an individual living with a Primary Immunodeficiency. For more information visit our website at www.immunodeficiency.ca.
Week of June 9th - Official STWM Training Clinics begin at over 40 Running Room locations. Select the one best for you! http://www.torontowaterfrontmarathon.com/en/training.htm
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Building a Strong PI community in Canada.
Richard Thompson, CFRE
Chief Executive Officer
Immunodeficiency Canada
Newsletter sponsored by:
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