Important Updates
New CMS System to Access CROWNWeb and Quality Incentive Program Reports - Don't Wait to Set Up EIDM/QARM Accounts!
The QualityNet Identity Management System (QIMS), used to access CROWNWeb and Quality Incentive Program (QIP) reports, will be replaced by the new QualityNet Authorization and Role Management (QARM) system and the Enterprise Identity Management System (EIDM) in July, 2016. The QIMS / CROWNWeb / QIP user information from QIMS will be transferred to QARM. To access Performance Score Reports and Certificates during the preview period of Quality Incentive Program (QIP), which starts on August 1, 2016, every facility should have users created in EIDM/QARM system (and at least one user as "Facility Point of Contact"). Since the deadline to submit clinical data for May 2016 is July 31, 2016, it is important that every facility has users set up as "Security Official" and "End users" in EIDM / QARM.

The Network recommends that:
  • All clinical data for May be submitted by July 14, 2016 (before QIMS is retired)
  • Every facility should have users set up in EIDM/QARM before July 21, 2016 
For further information, please see the "Special edition of CROWNWeb newsletter" and
Steps to take NOW:
1. Take the EIDM/QARM training. The training schedule and registration can be found here.
2. Complete registration in EIDM
  • New user registration for EIDM: (all existing QIMS users must sign up as a new user)
  • Leave QualityNet Authorization and Role Management (QARM) in the "Application Description Field"
  • Select QualityNet User as you role - do not select any other field

3. Do Not Miss: July 19 - 21, 2016- Log in and out of QARM- Missing this step means your QIMS data will not be transferred over. You only need to do this step once, this will save time and effort in the future


Other Important Dates:

  • July 8, 2016: QIMS registration ends- make sure any updates you want to make using QIMS is completed
  • July 14-20, 2016: CROWNWeb system is down for maintenance in preparation for EIDM/QARM. Keep this downtime in mind for form due dates and clinical data entry
  • July 31, 2016: May clinical month closes
  • August 1 - September 6, 2016: ESRD QIP Preview Period 

2016 IPRO Quality Award Nominations
Each year, IPRO recognizes outstanding performance by healthcare providers and stakeholders throughout New England with our Quality Awards Program.
The goal of the Quality Awards Program is to recognize members of the End Stage Renal Disease (ESRD) community who have consistently set themselves apart from others by delivering exceptional care and/or contributions to Network activities in the New England area throughout the year. The ESRD award categories -Excellence, Engagement, and Continuous Improvement- align with the mission of IPRO ESRD Network of New England to promote healthcare for all ESRD patients that is safe, effective, efficient, patient-centered, timely, and equitable. 
Nominations should be completed no later than Friday, July 8, 2016.
Nominate someone today!
Save the Date for the 4th Annual ESRD New England Fall Meeting


When: Thursday, October 27, 2016

Where: Mohegan Sun Conference Center, Uncasville, CT

Registration: Participant registration will open August 8, 2016


For more information, visit the Network website.

Quality Improvement
Arteriovenous Access May Slow Pre-Dialysis Renal Decline
For patients with advanced chronic kidney disease (CKD), timely creation of an arteriovenous fistula or graft (AVF/AVG) may be more beneficial than previously thought. A new study links AVF/AVG creation with slowing of renal decline, independent of its maturation status.

Using data from the Transition of Care in CKD (TC-CKD) study, Keiichi Sumida, MD, of the University of Tennessee Health Science Center in Memphis, and colleagues examined 3,026 US veterans (average age 67; 98% male; 75% diabetic) with pre-dialysis placement of AVF/AVG during 2007-2011. The investigators calculated estimated glomerular filtration rates (eGFR) using at least 3 outpatient serum creatinine measurements and the Chronic Kidney Disease Epidemiology Collaboration equation, both before and after dialysis initiation.
To continue reading the full article, click here.

CMS ESRD Webinar Tomorrow - Register Now
The Centers for Medicare & Medicaid Services (CMS) recently released the CMS ESRD Measures Manual, which provides detailed specifications for performance measures used by the ESRD Quality Incentive Program (QIP) and Dialysis Facility Compare (DFC). CMS invites you to learn more about this comprehensive guide through the following webinar.
Understanding the CMS ESRD Measures Manual 

Date: Tuesday, June 28, 2016
Time: 2:00 - 3:00 p.m. ET
Register: To participate in the webinar, please visit the registration webpage.

CMS Proposes Rule to Improve Health Equity and Care Quality in Hospitals
On June 13, CMS proposed new standards to improve the quality of care and advance health equity in our nation's hospitals. The proposal applies to the 6,228 hospitals and critical access hospitals that participate in Medicare or Medicaid. The rule proposes to reduce overuse of antibiotics and implement comprehensive requirements for infection prevention. CMS estimates that these new requirements could save hospitals up to $284 million annually, while also improving care and potentially saving lives. The proposed rule also:
  • Advances protections for traditionally underserved and often excluded populations based on race, color, religion, national origin, sex (including gender identity), age, disability, or sexual orientation
  • Requires critical access hospitals to implement and maintain a Quality Assessment and Performance Improvement (QAPI) program
For More Information:
ESRD Patient Reported Outcomes and Patient Centric Measures - 

Comments Due by June 30, 2016
The University of Michigan Kidney Epidemiology and Cost Center (UM-KECC) is preparing a report for CMS that investigates avenues for acquiring the evidence, data, and infrastructure necessary to implement ESRD patient-driven measures, such as patient-reported outcomes (PROs) quality of life; patient centered outcomes (PCOs) and experience of care; and other measures that are patient driven.  To complete this report we are seeking feedback from the kidney community on the following: 

  1. What ESRD patient reported outcomes/patient centered outcome measures are meaningful to patients and health care providers? 
  2. What data may be available to support future development and testing of these measures


Please send your feedback to by June 30, 2016 to ensure consideration for the report.

Patient Services
Prior Living Kidney Donors With ESRD May Not Get Timely Transplants
Despite receiving high priority on the kidney transplant waiting list, many prior living kidney donors in whom end-stage renal disease develops spend months or years on dialysis before being placed on the list, researchers reported at the 2016 American Transplant Congress in Boston.

Jennifer L. Wainright, PhD, and colleagues at the United Network for Organ Sharing in Richmond, VA, identified 210 prior living donors (221 registrations) with end-stage renal disease who were added to the waiting list from January 1, 2010 to July 31, 2015. As of September 4, 2015, 168 were removed from the waiting list because they received a deceased-donor transplant. Two patients died, 5 were too sick for transplantation, and 29 were still waiting for a transplant.

Click here to read the full article from Renal & Urology News.

KIDNEYWORKS - Helping Non-Dialysis Kidney Patients Continue to Work
An estimated 10% of U.S. adults (more than 20 million Americans) have some degree of CKD, which has five stages.  Renal replacement therapy (dialysis or a kidney transplant) begins during stage 5.  CKD symptoms at earlier stages can include fatigue, headaches, nausea, muscle cramps, shortness of breath, and problems sleeping, which can make working challenging, but are often treatable.  Having a job that provides an employer group health plan or enough income to purchase a private health plan will help ensure that CKD patients who desperately need preventive care will receive it-and will help them stay active and productive.
To address this need, the American Association of Kidney Patients (Tampa, FL) and the Medical Education Institute (Madison, WI), have developed KidneyWorks™, a collaboration that will investigate barriers to continued employment and develop strategies to keep patients employed.  The first phase of KidneyWorks™ will be a consensus conference to be held in Washington, D.C. on June 29 and 30.  During this meeting, stakeholders will identify and investigate the issues that may keep patients from working, and develop strategies and recommendations to help patients slow progression of their disease, cope with symptoms, and keep their jobs and their quality of life.

Legislation Promoting ESRD Coordinated Care Introduced in House
On June 16, 2016, Reps. Todd Young (R-IN) and Earl Blumenauer (D-OR) introduced H.R. 5506, the Dialysis PATIENT (Patient Access to Integrated-Care, Empowerment, Nephrologists, and Treatment) Demonstration Act. This legislation seeks to facilitate end-stage renal disease (ESRD) patient access to coordinated care. The press release issued by Rep. Young's office announcing the bill's introduction notes that it is intended to establish "an ESRD integrated care demonstration program where interdisciplinary teams, led by a nephrologist, provide holistic management for all of the patient's health care needs." As of June 20 text language for the bill was not available, and a Senate companion had not been introduced.
Click here to read more.

Data Management
NHSN Dialysis Event Surveillance - June 30, 2016 Deadline Approaching
The Quarter 1 deadline for the CMS End Stage Renal Disease (ESRD) Quality Incentive Program (QIP) rule for calendar year 2016 (payment year 2018) is right around the corner!
To meet CMS' ESRD QIP National Healthcare Safety Network (NHSN) reporting requirements for Payment Year 2018, outpatient hemodialysis clinics must submit their first quarter 2016 Dialysis Event data collected from January 1, 2016 through March 31, 2016, by Thursday, June 30, 2016. New or revised first quarter data entered into NHSN after June 30 will not be sent to CMS. Therefore, please be aware that any changes or corrections to first quarter 2016 data should be made prior to the reporting deadline.
For more information click here.

Have You Used the Network Data Knowledge Base and Customer Portal?

Get Answers to Your Questions Quickly
With the increase in data that must be submitted, as well as systems through which the data is collected, the ESRD Network is excited to announce expanded support. There are multiple ways in which you can reach the Network Data Support Team. Please see the information below on how to access the portal and contact the Network.

1. New Knowledge Base and Customer Portal
  • Browse knowledge and articles on a multitude of frequently asked questions. This is a "one stop shop" for information on various systems and initiatives such as CROWNWeb, NHSN, the Quality Incentive Program (QIP), and more.
  • If you are unable to resolve your questions with the Knowledge Base, register for the portal through the "Sign Up" feature and enable yourself to quickly and easily submit questions or requests for assistance directly from the website.
2. Updated Email Contact

3. Phone

  • Network staff members are still available by phone to answer questions and assist with data management. The Network data team can be reached at 203-387-9332.
*Please remember that you should NEVER include any patient-specific information such as Name, Date of Birth, Social Security Number, Medicare Claim Number, etc. The only patient identifier that can safely be communicated is the Unique Patient Identifier (UPI) from CROWNWeb.*
Upcoming Meeting & Events
Monday, August 1, 2016 - The Renal Support Network's (RSN) 14th Annual Essay Contest submission deadline. Visit the RSN website for more information.
September 23-25, 2016 - American Association of Kidney Patients (AAKP) 2016 National Patient Meeting in Nashville, Tennessee.
Thursday, October 27, 2016 - Save the date for the 4th Annual ESRD New England Fall Meeting at the Mohegan Sun Conference Center, Uncasville, CT.

IPRO End-Stage Renal Disease Network of New England, the ESRD Organization for Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont, prepared this material under contract with the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy. CMS Contract Number: HHSM-500-2016-00019C.

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