NQC Logo



in+care Newsletter

Issue 18


National Campaign to Improve Retention in HIV Care
in care Logo 
In This Issue
New Enhanced Reports
Provider Spotlight
Featured Article

51 days

until the next data submission deadline

Enter your data at: incarecampaign.org/database

Like us on Facebook!

 Spread the word to help others make an impact on the lives of people living with HIV/AIDS.


 Like us on Facebook

Like us on Facebook.

Data - National Averages*

(as of 05/30/13)

Gap Measure
(n = 149 sites, 105,459 patients)


Visit Frequency Measure
(n = 144 sites, 85,228 patients)


New Patient Measure
(n = 146 sites, 5,691 patients)


Viral Load Suppression
(n = 150 sites, 122,721 patients)


*data not unduplicated
Quick Links

Campaign Headquarters

National Quality Center (NQC)

New York State Department of Health AIDS Institute


90 Church Street, 13th floor
New York, NY 10007


Work: 212-417-4730
Fax: 212-417-4684


Website Updated!

 The in+care Campaign has recently updated its website to make searching for Retention Strategies and Tools easier for you! Visit the website today to explore the new area!

Adolescents and Retention


Upcoming Events
+ Partners in+care Webinar | Spanish Language Webinar
June 24, 2013 at 2pm ET
Agenda: National Quality Center is partnering with the Latino Commission on AIDS to providethis webinar. This webinar will be conducted completely in SPANISH. Content for the webinar will revisit Partners in+care presentations with a focus on issues most relevant to Latin Americans living with HIV. An English transcript of the webinar and chat transcript will be made available after the call is completed. NQC and the in+care Campaign is thrilled to offer this opportunity to our Spanish-speaking Partners in+care.
If you have any specific questions you would like to have addressed, please mail them in advance of the webinar to Michael@NationalQualityCenter.org. No pre-registration is needed, just enter the room as a guest at the time of this webinar.
Dial-in#: 866.394.2346
Participant Code: 397 154 6368 #
+ in+care Campaign Webinar | Latinos and Retention
June 25, 2013 at 1pm ET
Agenda: Erik Valera of the Latino Commission on AIDS Latinos in the Deep South program will discuss issues pertinent to retaining Latinos from different cultures in HIV care. He will cover various strategies HIV service providers can employ to retain this population in care and describe the specific work undertaken by agencies in the Southeast to retain people in care. In addition to Mr Valera's presentation, the Valley AIDS Council of Harlingen, TX will outline their recent strategies to retain Latin Americans in HIV care along the US-Mexico border. Lastly, Campaign staff will share recent retention data and strategies that have been submitted to the Campaign by participants.
If you have any specific questions you would like to have addressed, please mail them in advance of the webinar to Michael@NationalQualityCenter.org. No pre-registration is needed, just enter the room as a guest at the time of this webinar.
Dial-in#: 866.394.2346
Participant Code: 397 154 6368 #



+ Partners in+care Webinar | Adolescents and Retention
To be Scheduled - Stay Tuned
Agenda: The Maryland Department of Health and Mental Hygiene will describe their Red Carpet program for young MSM of color. The program seeks to rapidly link and engage newly diagnosed young MSMs in HIV care. In addition, the program works with people who have dropped out of care to re-engage them.
If you have any specific questions you would like to have addressed, please mail them in advance of the webinar to Michael@NationalQualityCenter.org. No pre-registration is needed, just enter the room as a guest at the time of this webinar.
Dial-in#: 866.394.2346
Participant Code: 397 154 6368 #



+ Next Campaign Performance Data Submission

June 3, 2013



+ Next Improvement Update Form Submission
June 17, 2013
Keep up-to-date with the latest in+care events through our webpage: http://incarecampaign.org/index.cfm/75283


General Campaign Updates

Enhanced Reports

The in+care Campaign has posted new Enhanced Reports for your review and use on the in+care Campaign website. You can view the reports at this link (click the enhanced campaign reports folder). These new reports stratify Campaign data along various lines: patient caseload, reporting facility type, and Ryan White Part funding. Each report contains a cover page that describes limitations and methods for the report. If you have any questions when reviewing these reports, contact your Campaign coach or Michael Hager and the team will do its best to assist. 


Improvement Updates

One of the most important products of the in+care Campaign is information on the types of strategies your organizations have put in place to improve retention in HIV care. The in+care Campaign shares these strategies back with Campaign participants in many ways, including webinar presentations, newsletter reports and though Campaign quality coaches. Reporting your strategies is very easy! All you need to do is complete four questions at this link. Tell what you have been up to to move the mark on patient retention in HIV care in your patient population today!


Tell Campaign Staff How We Are Doing

The in+care Campaign is interested in hearing from you!  Please take a moment to complete our in+care Campaign survey. The survey is intended to help us evaluate our current NQC Campaign activities and to plan for the next Campaign, which will build on the success of in+care and will focus on a related topic.


The survey should only take about 5-10 minutes of your time, and your feedback is valuable to us. We want to know how you feel about each of our Campaign activities, including our website, webinars, coaching, and data submission process, so that we can best serve you through the Campaigns. Also, we want to know which of the current Campaign activities we might want to maintain alongside the new NQC Campaign. Click here to take the survey.

Grady Infectious Disease Program (Ponce Family & Youth Clinic, Ponce de Leon Center) - Atlanta, GA

Atlanta's Ponce de Leon Center currently addresses the needs of about 500 HIV-infected infants, children, adolescents, and young adults in partnership with the Grady Infectious Diseases Program (IDP). Of the young people served, 88 percent are African American, 5 percent are Hispanic, and 83 percent receive Medicaid. Established at Grady Memorial Hospital in 1986, the PFYC moved to the Ponce de Leon Center in 1993. Together, the PFYC and Grady IDP constitute the largest stand-alone facility for adult, pediatric, and adolescent HIV care in the United States.

The Ponce de Leon Center provides one-stop shopping for its clients, which is a significant convenience when multiple family members are receiving care. It houses a primary care clinic serving men and women, a family clinic that treats mothers along with their children, and AIDS-related organizations and services. For example, Project Open Hand, an agency that provides meals for people living with HIV; AID Atlanta, a case management service; and an office of the Department of Family and Children Services all have a presence at the Ponce de Leon Center. In addition, the Center includes a dental clinic, a mental health clinic, a research area for clinical drug trials, and an infusion area where intravenous therapies are administered on an outpatient basis. A subspecialty clinic provides consultations in ophthalmology, dermatology, neurology, hematology and oncology, and palliative care. A perinatal substance abuse clinic cares for pregnant women who are using drugs and are at risk for contracting HIV. To ensure age appropriate and developmentally appropriate care, clinicians receive ongoing training through journal clubs, conferences, and hands-on learning.

An important aspect of the Center's program is to provide care to young adults up to the age of 25. Generally, young adults can be a difficult population to reach when it comes to health care. This challenge can be compounded by the stigma associated with HIV. The Center employs multiple strategies to support adherence and help their young patients remain in care. Case management and mental health services are tailored to the needs of young adults. Peer support groups are also an important form of support for patients. The groups are led by a social worker or psychologist. In the groups, patients who are doing well in terms of adherence to treatment are asked to discuss their strategies with their peers. In addition to adherence, participants discuss issues that are relevant to young adults such as education, housing, and employment options.

The Center has a process in place to transition patients to adult care. A critical aspect of this process is introducing the concept of transition early on so that patients are prepared when the time comes. If possible, the adult care providers are identified prior to transition so that patients have an opportunity to meet them. An advantage of the Center's co-located services is that the young adults can continue to receive care at the same facility after they transition.

In May, Dr. Rana Chakraborty, Dr. Andres Camacho-Gonzalez, and Ashley Boylan of the Ponce Family and Youth Clinic discussed their program during an in+care Campaign webinar. The archived webinar provides more detail on the program. 

Delayed Entry Into and Failure to Remain in HIV Care Among HIV-Infected Adolescents

Minniear, T.D., Gaur, A.H., Thridandapani, A. et al. Delayed entry into and failure to remain in HIV care among HIV-infected adolescents. AIDS Research and Human Retroviruses 2013; 29(1): 99-104.

In this article the researchers examine factors associated with HIV-infected adolescents who delayed entry into HIV care after diagnosis and the failure to remain in care. The researchers reviewed the clinical records for 202 adolescents (13-21 years old) infected with HIV via high-risk behaviors receiving services at St. Jude Children's Research Hospital, which operates a large, urban, comprehensive pediatric/adolescent HIV clinic in Memphis, Tennessee.

Delayed entry to care occurred in 38 percent of the subjects and failure to remain in care occurred in 29 percent. Factors associated with delayed entry included lack of a stable residence, being enrolled in college, and residing within five miles of the clinic- a finding that indicates that proximity and even free transportation do not have an effect on engagement with this population. The researchers suggest that the disruptions associated with unstable housing may impact engagement. With college students-who were four times more likely to delay entry into care-the researchers suggest that delays may result from the demands of an academic schedule, fear of being stigmatized, or the lack of a guardian's influence.

Once in care, college students were more likely to remain in care than high school students and those who did not complete high school. The researchers speculate that college students may have a better understanding of the concepts of HIV care that were explained during clinical visits or have greater self-motivation. Compared with adolescents with private insurance, those without insurance were more likely to fall out of care-even though the clinic offers care free of charge. It is important to note that those patients who remained in care showed slightly greater improvements in CD4+ cell count and significantly larger reductions in viral load at their last clinic visit than those that were lost to care.

The researchers suggested that interventions that address these factors can play a role in supporting early engagement in care and retention in care. 

Connect. With patients.
Collaborate. With a community of learners.
Change. The course of HIV. 

incareCampaign.org  |  212-417-4730