My Story about Living with...
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June 2016
My Story about Living with Peripheral Neuropathy, By: Phyllis Bear
Phyllis Bear PN Story 
Phyllis Bear has been suffering from idiopathic peripheral neuropathy since 2009. Phyllis shares her story of facing up to the diagnosis, challenging herself to live the best life she can with the condition and her determination to never give up hopeClick here to read Phyllis' story. 
FDA Drug Safety Communication: FDA Recommends Against Use of Particular Antibiotics Connected to Causing Peripheral Neuropathy
FDA Drug Safety Communication
FDA advises restricting fluoroquinolone antibiotic use for certain uncomplicated infections: acute sinusitis, acute bronchitis, and uncomplicated urinary tract infections which have other treatment options. The FDA warns about disabling side effects that can occur together and can involve the tendons, muscles, joints, nerves, and central nervous system.  Read more!
Announcement: New Scientific Advisory Board Member, Dr. Richard Lewis
The Foundation is very pleased to announce a new member of our Scientific Advisory Board (SAB), Dr. Richard Lewis from Cedars- Sinai Medical Center in Los Angeles. Dr. Lewis, a research and treatment expert in disorders that attack nerves, has been named director of the Electromyography Lab in the Department of Neurology and co-director of the Neuromuscular Clinic at Cedars-Sinai, joining one of the most comprehensive neuromuscular disorders research teams in California. Before joining Cedars-Sinai, Dr. Lewis served as vice chief of neurology and director of clinical neurophysiology at Harper University Hospital in Detroit. He was professor and associate chair of neurology at Wayne State University School of Medicine, where he directed the Hiller Amyotrophic Lateral Sclerosis Center. He was also co-director of the Muscular Dystrophy Association Clinic at Detroit Medical Center and Director of the Inflammatory Neuropathy Center of Excellence. Dr. Lewis is widely known as a leading physician and scientist specializing in inflammatory and inherited disorders that attack nerves. He studies ways to improve diagnostic testing and patient evaluation standards and has been active throughout his career in educational, scientific and advocacy groups for patients suffering from Guillain-Barré syndrome, myasthenia gravis, ALS and other complex diseases," said Patrick D. Lyden, MD, chair of the Department of Neurology and the Carmen and Louis Warschaw Chair in Neurology. To see all the current members of the Foundation's esteemed SAB, click here
May 3, 2016 Webinar on the use of Medical Cannabis for Neuropathic Pain Now Available Online
Cannabis Webinar
91% of webinar participants responded that their expectations for the May webinar on the use of medical cannabis for neuropathic pain were met or exceeded! If you were unable to join us last month for the very informative webinar, the recording is now available to premium members on our website media center. Watch Now!

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Disclaimer: The information contained in this e-news is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without consulting a qualified health care provider. You are strongly encouraged to consult a neurologist with any questions or comments you may have regarding your condition. The best care can only be given by a qualified provider who knows you personally.
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