Public Meeting on Neuropathic Pain...
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April 2016
Your Chance to Make Your Voice Heard!!!
Public Meeting on Neuropathic Pain Sponsored by U.S. Food and Drug Administration (FDA)
 
The Food and Drug Administration (FDA) invites you to an upcoming public meeting on neuropathic pain associated with peripheral neuropathy to be held on June 10, 2016 from 1pm-5pm (EDT) at the FDA Campus in Silver Spring, Maryland. We are asking you to help make this meeting a success.  Specific details and more information on how you may participate in person or virtually with your computer click here. 

Even if you can't participate in the meeting yourself, there is another way to make your voice heard!  Pam Shlemon, Executive Director for the Foundation for Peripheral Neuropathy will be attending the meeting in person.  We would like to send her with current information from patients like you about what it is like to live with peripheral neuropathy.  Please complete a very brief survey sharing your experiences and she will present this information at the meeting.  Click here to complete the survey.
FPN Hosts a Webinar on the Use of Cannabis for Neuropathic Pain, May 3, 2016 at 6:30 p.m. Central Time
The Foundation for Peripheral Neuropathy is pleased to host this webinar featuring: 
  • Judith A. Paice, PhD, RN, FAAN, is the Director of the Cancer Pain Program in the Division of Hematology-Oncology and a Research Professor of Medicine, Northwestern University; Feinberg School of Medicine. She is also a full member of the Robert H. Lurie Comprehensive Cancer Center. Dr. Paice is the current president of the American Pain Society, board member of the International Association for the Study of Pain, and a past member of the Agency for Health Care Policy and Research panel that developed clinical practice guidelines for cancer pain.
  • Tammy Vance, Executive Vice President for Medical Education at Cresco Labs. Cresco Labs is the leading medical cannabis cultivator and processor in Illinois.  
Please register for this webinar by using the link below:

- We will be using GoToWebinar. 
- You can join our session by using a Mac, PC or a mobile device. 

After registering, you will receive a confirmation email containing information about joining the webinar

For those who can't attend our live session, a recording will be available on our website (accessible to Premium members).
Beware Expensive Treatments for Peripheral Neuropathy
The Foundation invited guest writer Howard Levinson,

 
Clinical Director Fraud Investigations at Anthem, Inc. to inform our community about a recent controversial peripheral neuropathy treatment method that involves collaboration between chiropractors, medical doctors and/or podiatrists. Click here to read more!
Genetic Testing for Hereditary Peripheral Neuropathies: New Genetic Cause for Charcot-Marie-Tooth
Charcot-Marie-Tooth Disease (CMT) is a

family of inherited disorders of the peripheral nervous system, affecting approximately one in 2,500 Americans. New research from the University of Pennsylvania expands the number of genes known to cause the most common iteration of CMT. For more information about this research and the role of genetic testing in diagnosing CMT click here.
 
 
 
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News from our Support Groups:
 
N.E. Ohio Neuropathy Support Group
On Tuesday, May 10, 2016 at 1:30- 2:30 p.m., Ed Matasy will be speaking about Charcot-Marie-Tooth. The meeting will be at the Good Shepherd Christian Church, 9571 Shepard Rd., Macedonia, Ohio, 44056 [off RTF. 8]. A buffet luncheon will be served at 12:30. Donations are appreciated. For more information call 330-322-5506 or email kjcright@yahoo.com 
NEW: Portland Peripheral Neuropathy Support Group
One of the newest PN support groups, it meets on the first Wednesday of the month from 6:30-8:30 p.m. at the Mt. Hood Medical Center, 24800 SE Stark St. , Mt Hood Room, Gresham, OR97030. All are welcome. For more information contact Michele Davis at 503- 515-9248 cell or email redcoach99@aol.com.
Calgary Neuropathy Association
On Wednesday, April 20, 2016 at 12:45-3:00 p.m. Jesse Reimer and Eric Manarintr from Blue Ocean Financial Strategies will speak on Registered Disability Savings Plan and the Disability Tax Credit. The meeting is at 451 Northmount Dr. NW (Northmount Baptist Church Hall). $5 drop in/ $25 annual membership. For more information contact 403-668-9777.
Virtual Support Group Meets via Oovoo Video Conferencing
For those of you without a support group in your community but with access to a computer there is a virtual support group that meets on the second Monday of the month. Space is limited (by technology limitations). For more information and instructions for using "Oovoo" contact CJ Holliday  at 336-455-1075 or email at contacingcj@gmail.com
For a comprehensive list of support groups across the country and information about their meetings, click here to visit our website.
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Disclaimer: The information contained in this e-news is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without consulting a qualified health care provider. You are strongly encouraged to consult a neurologist with any questions or comments you may have regarding your condition. The best care can only be given by a qualified provider who knows you personally.
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