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YouTube VIDEOS ON PERIPHERAL NERVE PAIN MAY MISGUIDE PATIENTS
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Researchers who combed YouTube for videos regarding peripheral neuropathy, or nerve damage that causes weakness, numbness, and pain in the hands and feet, found 200 videos, but only about half of them were from healthcare professionals, mostly chiropractors. Alternative medicine was cited most frequently among the treatment discussions, followed by devices and pharmacological treatments. Only a minority of treatment discussions were based on recommendations by the American Academy of Neurology.
"Caution should be exercised when YouTube videos are used as a source of information for the treatment of neuropathy," said Dr. Harsh Gupta, lead author of the Muscle and Nerve study. "With the ever-increasing reach of YouTube to our patients, a stronger presence of neurologists in this social medium is needed."
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SHOULD PN PATIENTS GET A FLU SHOT??
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Flu season is upon us. At this time of year the Foundation frequently receives inquiries about the safety of getting the flu vaccine if a patient has peripheral neuropathy - especially peripheral neuropathy patients with underlying immune issues. HIV patients tend to be especially skeptical about receiving the vaccine.
According to the Centers for Disease Control there is no evidence that the flu shot will make their neuropathy symptoms worse unless they had a vaccine induced neuropathy associated with Guillain-Barre Syndrome. To learn more click here! |
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FOLLOW-UP NERVE CONDUCTION STUDIES IN CIDP AFTER TREATMENT WITH IGIV-C: COMPARISON OF PATIENTS WITH AND WITHOUT SUBSEQUENT RELAPSE
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Study found that most subjects developed new demyelinating findings during the active treatment phase of the immune globulin intravenous study even as they were improving clinically. This may reflect ongoing demyelinating activity even as other nerve segments were undergoing repair or remyelination. The appearance of new conduction blocks in patients with CIDP undergoing IVIG therapy has been reported previously. CIDP appears to be a more dynamic disease process than has been appreciated previously, with ongoing demyelination and remyelination, even during periods of apparent clinical remission, similar to what is seen in multiple sclerosis. This might limit the improvement seen in some patients undergoing treatment. Read more!
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SAVE THE DATE!!
Giving Tuesday is about ordinary people coming together to do ordinary things. The Foundation for Peripheral Neuropathy is joining the global giving movement: Giving Tuesday |
